Author Topic: PIP lower than expected (thread title changed)  (Read 600 times)

Sunny Clouds

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PIP lower than expected (thread title changed)
« on: November 10, 2017, 11:43:59 AM »
(I've edited this for clarity.) 

I got my letter.  I was on DLA HRC LRM.  I thought I'd probably lose the mobility, but expected enhanced care PIP and I've got standard rate care.  (Underlined bit added because what I wrote wasn't clear.)

I'm mystified on why they've turned it down.  Well, apart from the obvious targets thing.  But they  haven't picked what I'd have thought was the 'borderline' or 'easy to split hairs over' stuff, they've picked the stuff I thought was straightforward.  Maybe that means I didn't make enough effort to communicate it.

They say I can understand verbal information unaided.  I'm not sure why they say that since I sent evidence I wear hearing aids.  I asked AHL about info and they emailed an info sheet but my computer won't open it.  Has anyone got info on the verbal communication stuff?

I'm at a loss on the monitoring thing.  I thought I'd provided plenty of evidence that I rely on others in that respect.  I'm inclined to gather lots of statements from people that they  monitor my condition.

I suppose at least they're things I can evidence and I won't say it's a shock needing to appeal, but I was expecting it to be the mobility component not the care component and obviously in relation to that, I'd be taking into account Monic's advice as to thinking carefully about whether to risk losing the care component.

Quite frankly, with standard care, I might as well argue the toss over everything.

Meanwhile, given that they seem to think I have no trouble communicating, I've decided to kick up a fuss with the NHS trust that manages my hearing, because if the DWP thinks I can hear ok, then the NHS can jolly well provide me with hearing aids that actually enable me to hear ok. 
« Last Edit: November 10, 2017, 12:07:41 PM by Sunny Clouds »

KizzyKazaer

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Re: PIP turned down - odd reasons
« Reply #1 on: November 10, 2017, 11:50:40 AM »
Turned down altogether??  Total nil award?  I can't get my head round that.  As I'm sure you are struggling to understand also ... I had you lined up for enhanced 'daily living' as well  >confused< 

You seem to be taking it very well, at least on the surface.  Certainly there's nothing to lose by appealing now .. >doh<

So sorry you got such a shite result  >steam<  The system sucks  >thumbsdown<

Sunny Clouds

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Re: PIP turned down - odd reasons
« Reply #2 on: November 10, 2017, 12:05:20 PM »
Sorry, I explained it wrong.  I did get some, I got standard care.  I'll edit the thread title.  There, you can tell what a state I'm in.

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #3 on: November 10, 2017, 12:19:46 PM »
Given that I'm expecting to inherit a bit of money, and I'm cynical enough to suppose the government will cut back benefits further, I'm more upset on principal than on the money, although it is a lot of money.  (About two and a  half thousand a year.)

Apart from this adding to my general anxieties/fears over government policies, politics etc., I think what bothers me most is that they've turned me down on the bit about needing help to monitor my condition and my GP said he spoke to them.  I thought from what he says to me when he sees me that he knows I rely on others to monitor it.  I hate the sense of that miscommunication between us.

Having said that, I feel very insecure about the future and what I'll do and where I'll go.  I'd thought that my lovely GP was a factor in wanting to stay local, then this made me do a knee-jerk "If he's so good, how come he doesn't know that?"  Of course, it's not that straightforward and I never quite got the hang of expecting my doctor to be  perfect.  (Maybe if I read enough government and tabloid propaganda, I'll learn how to do it.)  But it did make me stop and think how he's probably going to retire soon anyway, so I shouldn't be psychologically clinging onto him.   Maybe that's a good outcome of this - making me think again about some things.

Also, bluntly, it's making me think again about other stuff.  I'm not getting anything on mobility, which is down to my meds; and I'm pretty sure the problems I'm now getting with making sense of sounds are mostly to do with the medication, so I'm now asking what my priorities are.  My mood's ghastly anyway, so my inclination is to keep up with the medication reduction with a view to coming off it, maybe even paying to see a psychiatrist that specialises in these things (some do), on the basis that if the government's not going to help with stuff like that, I'll take action myself.

Oh well, at least it's some of my DLA/PIP income I'm losing.  I feel really sorry for people in the UC trap.

Fiz

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Re: PIP lower than expected (thread title changed)
« Reply #4 on: November 10, 2017, 12:20:32 PM »
Oh sunny what a faff. I've no doubt you'll get enhanced care in the end but so annoying to go through the whole rigmarole.  >hugs<

Eta did you lose your mobility? Only wondered because I did.
« Last Edit: November 10, 2017, 12:22:11 PM by Fiz »

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #5 on: November 10, 2017, 12:52:07 PM »
Yes, I lost my mobility.

I have mixed feelings about that.

I think it's wrong they took away the mobility element for people like me, but the unfamiliar places thing under DLA was always weird, because it's the more familiar places that are the bigger problem for me.  So that was an example of a criterion that was 'wrongly' worded in the first place with a degree of specificity that wasn't appropriate, which made it an easy target to remove.

It's also the case that I spend money on physical mobility and have done for a long time but
I recognise that whilst it is unfair that I don't get it, and that it was daft that in order to get it for the physical mobility I need help with I had to be entitled for mental problems in unfamiliar places which in reality I rarely need help with because I avoid unfamiliar places like the plague, it's not like those people that can't get out of the door.  There's a difference between having to tighten my belt and stay home a bit more or whatever, and not having the money you need to get just about anywhere.

However,  I feel more strongly about the government doing the bit about the money being for people who are really ill/disabled than about the actual change.  I.e. the change in attitude bugs me more than the actual money, but I'm in a privileged position to be able to say that. 

I confess my initial reaction to receiving the letter was extreme distress.  I've just got to pick myself up and carry on.  But as I say, some of it is about reinforcing existing priorities, like weaning myself off the rest of my meds.

Fiz

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Re: PIP lower than expected (thread title changed)
« Reply #6 on: November 10, 2017, 03:34:26 PM »
 >bighugs< I think you're amazing.

I can't leave my close without pain, getting to my nearest shop is excruciating. Taking my great nephew to school on a Friday leaves my incapacited for 24-72 hours where I'm bed bound and I'm not entitled to any mobility either.  A car would transform my life, I'd no longer be housebound, alone and I could go see people.

I think the system stinks so big fat raspberries to it and the government. 

Big hugs again, one hour at a time when distressed. Try and focus on doing/watching something you enjoy doing.

Lots of love X

ally

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Re: PIP lower than expected (thread title changed)
« Reply #7 on: November 10, 2017, 04:46:52 PM »
I had my f to f three weeks ago, and still waiting for the outcome.  They rang with a date for the f to f, but, no interpeter was booked.  They did say, I could book a different date, but, I wasnt sure if I'd be penalised, or, if an interpreter would definitely  be present on the revised date.  I attended the original assessment using my husband as the interpeter.  I've no idea how it went.  The nurse, directed all the questions  to my husband.  I was asked very little.  Luckily, he'd read my pip form before we arrived.

Sunny, I've only ever had a  standard dla care award.  That was for being  profoundly deaf.  my audiology chart is a flat liner.   Since I now have so many more issues ongoing, I intend to go to tribunal if I'm awarded the above, or zilch.  It's all wait and see from me.  Have you asked for the assessors report to see how she scored you?  Look at that, then, see where you could've scored.  Use arguments to fit the criteria.  Like you, it's a principle thing for me regarding pip.  Good luck

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #8 on: November 10, 2017, 04:48:24 PM »
The more I think about this, the more positive I feel.  Quite frankly, I've been wanting to dump my meds in the bin for a while, and as I see it, this letter is from a ministerial department, therefore in the absence of proof to the contrary, it's a statement of fact in law.

Therefore if my doctor tries to say that I'm not in a fit state to determine whether I need my meds, he can shove it.  I've got proof it's not his decision to make. 

And as for the hospital, I'm going to see if I can get an injunction based on this letter forcing them to fix my auditory processing problems.  If the DWP says I haven't got trouble hearing, then it must be possible to fix it so I don't.

The NHS doesn't know what's coming!

SunshineMeadows

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Re: PIP lower than expected (thread title changed)
« Reply #9 on: November 10, 2017, 04:48:39 PM »
 >bighugs< >chocolate<

I am shocked and at the same time wonder how much living alone effected your claim. On Mr Sunshine's form I was able to explain things  that I help him with day to day and describe what would happen if he lived alone.

 >hugs<

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #10 on: November 10, 2017, 04:58:15 PM »
I could see how they might try to knock me back on other stuff if I lived alone, but the understanding oral stuff?  Either I have hearing loss that requires aids or I don't.

And the monitoring doesn't necessarily have to be monitoring by a partner.  It can be monitoring by others, such as people in a support group etc.

Well, I can either be angry or I can use it as a starting point for what to do next.  I'm fed up with the disabling effects of my meds, I've got proof from a neurologist that my physical symptoms are caused by the meds, I managed for a quarter of a century with bipolar without meds, so I've had enough of them.  I want to be able to go out without falling over.

I've had a fractured bone and 3 mild traumatic brain injuries in six months.  I now have tinnitus, sudden fatigue if I tilt my head back etc.  Enough's enough.  If the state's not going to pay for help with the side-effects, I'm not taking this poison.

(Edited for typo.)
« Last Edit: November 10, 2017, 06:14:06 PM by Sunny Clouds »

SashaQ

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Re: PIP lower than expected (thread title changed)
« Reply #11 on: November 10, 2017, 06:39:09 PM »
I'm sorry you didn't get the outcome you should have, especially as you submitted so much evidence to back up all your statements.  Makes me think they missed the evidence that was most relevant to the specific points they decided to downgrade you on... 

The Going Out question does ask about familiar as well as unfamiliar places, but it is an odd one to answer when you are not able to go to unfamiliar places but are not completely unable to go out...

Glad you've got plans for what to do next to improve things >thumbsup< - good luck with it all  >hugs<

SunshineMeadows

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Re: PIP lower than expected (thread title changed)
« Reply #12 on: November 10, 2017, 07:15:55 PM »
Sunny,

I know it is horrible for you right now  >bighugs<

PIP claims are decided by humans and humans on criteria which to some extent is there to reduce the number of successful claims so before you stop taking meds you need to have you head in the game to appeal.

I might need you to say that back to me when my claim comes thought.

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #13 on: November 10, 2017, 07:18:13 PM »
I always liked the 'unfamiliar places' thing as a good illustration of why DLA was one of those weird benefits where to get the money you need, you have to prove you have a different need.  I used the money I got for the unfamiliar places for other needs.  Now, with PIP, I don't have it.  Well, so what if I want to get a taxi or have someone with me on days when I'm struggling more because of all the falls?  After all, it's not like it costs the NHS much to send out an ambulance, cart me off to hospital on a back board, scan me, examine me, etc., etc.  And after all, a broken bone only involved four nurses, two plaster room technicians, three orthopaedic consultants, five X-ray technicians, and sundry reception staff, data input clerks etc. 

Oh dear, I sound horribly sour.  Well, I just got the letter today, so a strong response on my part was predictable.  And I've known for years that the system was absurd. 

Sunny Clouds

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Re: PIP lower than expected (thread title changed)
« Reply #14 on: November 10, 2017, 07:21:34 PM »
Ah, the meds thing.  Well I've been reducing them in line with the neurologist's advice anyway, so I want to reduce further.

I'm serious about managing for decades without them.

My GP, who used to work in psychiatry, wasn't in the least bit surprised when I told him that my psychotic symptoms disappeared when I stopped taking my antipsychotics, and that if it came to that, I didn't have any before I started taking them. 

Anyway, the DWP may say I don't need help from others, but I suppose you lot are going to start 'shouting' at me if you think I've gone bonkers again.   >whistle<