Recent Posts

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Cafe / Re: General chat about anything you want :-)
« Last post by Sunshine Meadows on September 23, 2018, 05:54:56 PM »
Fiz,

Well done and congratulations  >star<. I know what you mean about when you talk about days of pain following activity. Some of us are told to pace ourselves and do a bit at a time, and not matter how many times I do that it never gives me the same rewards as a big clean up or garden etc.  However these days I am less able to push forward with a BOOM KaPowee Ye Haaa Tahdaaa than I used to be.

I hope to hear more about how Dear Daughter is getting on in her new job.

Huhn,

Hugggggss  >chocolate<


Frances,

It is good to see you  :-) I hope things have improved for you and your son. Has he started playing any new games? I was playing one called Dragonage earlier in the year and got as far as the penultimate stage.


 >bighugs<
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Lankou,

Thank you for that it led me to a further thought. How can we make sure the DWP, Government and Assessors don't benefit from videoing of assessments at the expense of a claimant? We have to be careful about spin and this being made into a win for the powers that be. After all they are not going to say the allowed the assessments to be videoed so the assessors could no longer get away with lying - assuming that works.

Why do you think 'they' have agreed to a pilot study?

It seems like more mainstream long lived disability rights campaigners could benefit from coming to places like Ouch Too we just need to wake it up from slumber.
 >dove<

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Cafe / Re: General chat about anything you want :-)
« Last post by Frances on September 23, 2018, 04:26:39 PM »
I will be thinking of you Huhn.Take care of Yourself as best you Can.
Pm me if you want to chat.
I am not always about due to caring for My Son Etc.
But will reply as soon as I can.
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Cafe / Re: General chat about anything you want :-)
« Last post by huhn on September 23, 2018, 04:13:23 PM »
great to hear.  >thumbsup< >thumbsup< >thumbsup< >thumbsup< >thumbsup<
 I struggle in the moment with a lot of problems, I do not want to talk about it, I am also not aloud to talk about it. It is with the police involved, but I struggle that  they are not  often aware how to  deal with  handy capped people. I hope it turns  out to be solved to the best.
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Cafe / Re: General chat about anything you want :-)
« Last post by Fiz on September 23, 2018, 01:01:56 PM »
I'm sure I've mentioned several times that I'm decluttering the house with the incentive of simple living and making it easy to clean. I've been working hard at clearing what has been dd's room but is being changed into a guest room worthy of guests. I've finally completed all the sorting and bagging up of a storage cupboard in the small room so that dd's things she's keeping until she gets a home of her own. Now I've also sorted and bagged up all of the rubbish from her old room and I've black bin liners filling my car boot and a couple of crates on the back seat plus a whole hallway of black bags to go too. Trouble despite 30mg morphine and the patches I am in excruciating pain so I've washed and into clean pj's and into bed. Experience tells me I will be virtually immobile for days while I recover, despite letting the bin bags fall/roll down the stairs so I've not lifted anything. I'm so done in. I ought to feel pleased or proud of what I've achieved but instead I'm in too much pain to feel that. I suspect I will feel pleased in however days it takes for the pain to recede.

Dd is here Tuesday,  then starts her very well deserved career on the 1st of October. I remember that someone we know's husband told dd that she wouldn't manage the course as nursing is a hard job. As we'd never spoken to him before, that was obviously what his nurse wife believed. Shame we're not in contact with them I would love to tell that nurse that my highly intelligent daughter has a 2:1 in BSc Paediatric nursing and every single placement she worked on during the course asked her to apply to that ward or department when she qualifies so practically she must be pretty good too! So sad that people write off autistic people just because they're autistic when the fact is, every different person with autism has different challenges than other autistic people. They're all unique. I knew my dd would make a brilliant children's nurse practically but expected her to struggle with the academic side so I am so proud of her 2:1 and it was a high 2:1 too, she got a first for 2 or 3 assignments. Sorry for waffling on about dd but I'm so proud of her.  >blushing<

Dd is just going to rent a room in a family home near her job. I hope she keeps in regular contact with me.

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Cafe / Re: When did you start using the internet? and What does it mean to you?
« Last post by Fiz on September 23, 2018, 12:30:29 PM »
Well Google is a qualified Doctor isn't it? And it's taught me a lot for well over the 7 years full medical training so I'm trawling through senior registrars posts every day at the moment ...
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Disability Talk / Re: First I've heard of this- Are PIP assessments going to be videoed ?
« Last post by lankou on September 23, 2018, 11:26:11 AM »
Quote

I know there are only a handful of us posting but surely you should have heard comments like this already as the campaign was set up.

I was have been campaigning against the sham assessment since before they started to be used. If you can remember that far back charities for disabled people were all for the assessments for some time before the realised they had been sold a pig in a poke.
I made contributions to the government "consultation" at the tiem and there were also heated written exchanges between myself and Peter Lilley because I could see the assessments were going to be a sham before they started to be used.
So over 28 years on you can see why I am disappointed.
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Quote
I am despairing at the comments on this thread.

Are you despairing because the comments are related to aspects the campaign had not expected?

I know there are only a handful of us posting but surely you should have heard comments like this already as the campaign was set up. What was the old groups campaign slogan 'Nothing for us without us.' ?

The more we talk the more we learn  >dove<
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Disability Talk / Re: First I've heard of this- Are PIP assessments going to be videoed ?
« Last post by lankou on September 23, 2018, 09:30:12 AM »


Lankou, I cannot get where you are coming from,.

That I am afraid is the problem. Video and audio recording with embedded time stamps will stop the current problems of verballing of claimants and the lies in reports.
(That is why the DWP and the contractors are so opposed to it.)
I am despairing at the comments on this thread.
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Disability Talk / Re: First I've heard of this- Are PIP assessments going to be videoed ?
« Last post by JLR2 on September 22, 2018, 06:58:30 PM »
''Frankly I don't knoiw why I have been bothering about this issue for a very long time, as I appear to have been wasting my time.''

Lankou, I cannot get where you are coming from, none of us on here are against the  audio recording of 'all' WCA assessments and always have been mainly due to the seriously inaccurate assessments provided by the likes of Atos. It was not so long ago that Atos and similar assessment providers were fighting tooth and nail against providing recording of assessments, at one point telling claimants they could only have their assessment recorded if they themselves provided Police quality dual recorded recordings. The change in things has come about through the involvement of visual recording of claimants and the concerns that such recordings bring to the whole assessment issue.
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