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Disability Talk / Re: Low iron in blood
« Last post by ally on June 17, 2018, 08:42:28 AM »
Fizz, thanks.  I just want it over.  It's the uncertainty of not knowing what's causing the anaemia that's concerning me.  I hope your daughter does grow out of the crohns.  I'm glad the drugs are working for her.   >hugs<
Welfare Rights / Re: My call-up papers have arrived
« Last post by Fiz on June 17, 2018, 08:04:02 AM »
Auntie, how are you getting on with it all?
It might come down to whether you can prove what was said in the phone calls. It'll be evidence that makes a case.

Many financial products have an online lower price and an over the phone higher price. I've several times requested companies only charge me the online price if for some technical reason with their website I've been unable to continue with the purchase online and each time they've dropped the price to the online price. The most recent example was the prepaid funeral plan that I've recently purchased. The online price was 100 cheaper but there was a question online that didn't fit what I needed so I had to pone them to buy the product. They initially gave me the quote of 100 dearer than online but when I pointed out the only reason I wasn't buying online at the cheaper price was xyz they agreed to drop the price down 100 to match the online prices.

I don't see how the cost of selling a product by phone and using a real person can cost as much as a 100 unless the staff are earning extremely high salaries though!
Disability Talk / Re: It do's not affect disabled people
« Last post by Fiz on June 17, 2018, 07:47:23 AM »
So do I.

I think it's frightening that scammers can hack into someone's email account and read emails to and from that person and scam that person accordingly. Recently a woman was buying a house and early on completion date she received an email from "her solicitors" asking her to transfer the balance of the house purchase into a bank account which the named providing the sort code and bank account number. She transfered 320,000 and only after lunch when her solicitor phoned her asking why she hadn't transfered the money into the solicitor's bank account details of which were on the written letters received from the solicitors did she realise she'd been scammed. The police contacted the bank that had the account the money had been paid into but the scammer had already removed the money. The lady's own bank is refusing to compensate saying they had done absolutely nothing wrong and the she herself made the transfer and therefore authorised the transaction. That was a hell of a lot of money to lose.
Disability Talk / Re: Low iron in blood
« Last post by Fiz on June 17, 2018, 07:32:00 AM »
My daughter was told they'd ruled out Crohn's disease following her last colonoscopy and then was given drugs to try to ease her pain. She tried a few drugs none of which worked. Then her consultant gave her a regime of drugs to take at each stage of a flare up as the pain comes for a while then she's pain free for a while. This regime of drugs has worked perfectly and when the pains return they respond quickly to the drugs she then takes and so with these drugs she is kept virtually pain free and able to control any flare ups quickly. At her next appointment with the consultant he told her the drug regime that she's been taking is the Crohn's drug regime and he's 99% certain her condition is Crohn's. When she said but she'd been told she didn't have Crohn's following her colonoscopy he said that Crohn's can only be diagnosed via a colonoscopy if it's completed during a flare up and hers had been in a pain free patch. Diverticulitis can always be diagnosed during a colonoscopy but Crohn's needs to be done at the right time. Not something they told her at the time! But, we're both happy that the various drugs she now has are working and that she doesn't need to take any drugs in pain free times. Some people grow out of Crohn's and I hope she's one of them.

I hope your procedure goes smoothly ally,  literally even. If you have midazolam and either a benzodiazipine or fentnyl you won't know a thing about it. My dd had midazolam and diazepam IV. 

Disability Talk / Re: Low iron in blood
« Last post by lankou on June 16, 2018, 06:19:14 PM »
Disability Talk / Re: Low iron in blood
« Last post by Sunny Clouds on June 16, 2018, 05:13:25 PM »
My endoscopy was just to check out whether I might have coeliac disease.  I don't.  The symptoms were down to other things, including food intolerance.

The colonoscopy was simply part of a routine bowel screening programme.  "Hello, this is your local NHS scare-you-witless unit.  We know we've just checked your breasts but let's worry you about something else."
Disability Talk / Re: Low iron in blood
« Last post by Frances on June 16, 2018, 04:59:08 PM »
 I know this is a silly thing to say. >erm<
 But I did find by concentrating on my breathing it seemed to help me relax a bit, Which did seem to help quite a bit.
I also got the results the same day.
Oh By the way I just worked out I'd had it done 4 times in 3 years, Before my bowel perfurated Feb 2 2017, I was in Hossy until a couple of Days before Rys Birthday 10 July.   Not in a hurry to go back.
Although the Consultant was'nt expecting me to survive.
I saw her a couple of months ago and she is so pleased , She has sighned me off, Just got to see GP if needed now.
Hope all goes well for you. >hugs<
Disability Talk / Re: Low iron in blood
« Last post by ally on June 16, 2018, 04:36:26 PM »
Frances,, I did think of you when posting.  I could remember you having a bad time with your bowel problems.  I'm really glad you're  doing ok now, that's  brilliant.  >hugs<  I know it's necessary to go through this.  I need to be brave. Take care X
Disability Talk / Re: Low iron in blood
« Last post by Frances on June 16, 2018, 02:52:34 PM »
I have had both. I even got to watch it all on a small screen >whistle<, it a bit uncomfortable
The worst bit is the living in the LOO the night before.
 I had diverticlitis. Which after a year or so I got one of my many infections.
That then burst through my bowel into my bladder.
So I spent most of last year in Hossy. Where they removed large part of bowel and Bladder. Now I am doing pretty well.
Much to the surprise of the Consultant.
 >x-fingers< all goes well.
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