Recent Posts

Pages: 1 ... 8 9 [10]
Welfare Rights / Re: PIP lower than expected (thread title changed)
« Last post by Fiz on November 10, 2017, 03:34:26 PM »
 >bighugs< I think you're amazing.

I can't leave my close without pain, getting to my nearest shop is excruciating. Taking my great nephew to school on a Friday leaves my incapacited for 24-72 hours where I'm bed bound and I'm not entitled to any mobility either.  A car would transform my life, I'd no longer be housebound, alone and I could go see people.

I think the system stinks so big fat raspberries to it and the government. 

Big hugs again, one hour at a time when distressed. Try and focus on doing/watching something you enjoy doing.

Lots of love X
Welfare Rights / Re: PIP lower than expected (thread title changed)
« Last post by Sunny Clouds on November 10, 2017, 12:52:07 PM »
Yes, I lost my mobility.

I have mixed feelings about that.

I think it's wrong they took away the mobility element for people like me, but the unfamiliar places thing under DLA was always weird, because it's the more familiar places that are the bigger problem for me.  So that was an example of a criterion that was 'wrongly' worded in the first place with a degree of specificity that wasn't appropriate, which made it an easy target to remove.

It's also the case that I spend money on physical mobility and have done for a long time but
I recognise that whilst it is unfair that I don't get it, and that it was daft that in order to get it for the physical mobility I need help with I had to be entitled for mental problems in unfamiliar places which in reality I rarely need help with because I avoid unfamiliar places like the plague, it's not like those people that can't get out of the door.  There's a difference between having to tighten my belt and stay home a bit more or whatever, and not having the money you need to get just about anywhere.

However,  I feel more strongly about the government doing the bit about the money being for people who are really ill/disabled than about the actual change.  I.e. the change in attitude bugs me more than the actual money, but I'm in a privileged position to be able to say that. 

I confess my initial reaction to receiving the letter was extreme distress.  I've just got to pick myself up and carry on.  But as I say, some of it is about reinforcing existing priorities, like weaning myself off the rest of my meds.
Talk / Re: Temporary accommodation
« Last post by Fiz on November 10, 2017, 12:24:26 PM »
Great surprise, what a blessing
Welfare Rights / Re: PIP lower than expected (thread title changed)
« Last post by Fiz on November 10, 2017, 12:20:32 PM »
Oh sunny what a faff. I've no doubt you'll get enhanced care in the end but so annoying to go through the whole rigmarole.  >hugs<

Eta did you lose your mobility? Only wondered because I did.
Welfare Rights / Re: PIP lower than expected (thread title changed)
« Last post by Sunny Clouds on November 10, 2017, 12:19:46 PM »
Given that I'm expecting to inherit a bit of money, and I'm cynical enough to suppose the government will cut back benefits further, I'm more upset on principal than on the money, although it is a lot of money.  (About two and a  half thousand a year.)

Apart from this adding to my general anxieties/fears over government policies, politics etc., I think what bothers me most is that they've turned me down on the bit about needing help to monitor my condition and my GP said he spoke to them.  I thought from what he says to me when he sees me that he knows I rely on others to monitor it.  I hate the sense of that miscommunication between us.

Having said that, I feel very insecure about the future and what I'll do and where I'll go.  I'd thought that my lovely GP was a factor in wanting to stay local, then this made me do a knee-jerk "If he's so good, how come he doesn't know that?"  Of course, it's not that straightforward and I never quite got the hang of expecting my doctor to be  perfect.  (Maybe if I read enough government and tabloid propaganda, I'll learn how to do it.)  But it did make me stop and think how he's probably going to retire soon anyway, so I shouldn't be psychologically clinging onto him.   Maybe that's a good outcome of this - making me think again about some things.

Also, bluntly, it's making me think again about other stuff.  I'm not getting anything on mobility, which is down to my meds; and I'm pretty sure the problems I'm now getting with making sense of sounds are mostly to do with the medication, so I'm now asking what my priorities are.  My mood's ghastly anyway, so my inclination is to keep up with the medication reduction with a view to coming off it, maybe even paying to see a psychiatrist that specialises in these things (some do), on the basis that if the government's not going to help with stuff like that, I'll take action myself.

Oh well, at least it's some of my DLA/PIP income I'm losing.  I feel really sorry for people in the UC trap.
Welfare Rights / Re: PIP turned down - odd reasons
« Last post by Sunny Clouds on November 10, 2017, 12:05:20 PM »
Sorry, I explained it wrong.  I did get some, I got standard care.  I'll edit the thread title.  There, you can tell what a state I'm in.
Welfare Rights / Re: PIP turned down - odd reasons
« Last post by KizzyKazaer on November 10, 2017, 11:50:40 AM »
Turned down altogether??  Total nil award?  I can't get my head round that.  As I'm sure you are struggling to understand also ... I had you lined up for enhanced 'daily living' as well  >confused< 

You seem to be taking it very well, at least on the surface.  Certainly there's nothing to lose by appealing now .. >doh<

So sorry you got such a shite result  >steam<  The system sucks  >thumbsdown<
Welfare Rights / PIP lower than expected (thread title changed)
« Last post by Sunny Clouds on November 10, 2017, 11:43:59 AM »
(I've edited this for clarity.) 

I got my letter.  I was on DLA HRC LRM.  I thought I'd probably lose the mobility, but expected enhanced care PIP and I've got standard rate care.  (Underlined bit added because what I wrote wasn't clear.)

I'm mystified on why they've turned it down.  Well, apart from the obvious targets thing.  But they  haven't picked what I'd have thought was the 'borderline' or 'easy to split hairs over' stuff, they've picked the stuff I thought was straightforward.  Maybe that means I didn't make enough effort to communicate it.

They say I can understand verbal information unaided.  I'm not sure why they say that since I sent evidence I wear hearing aids.  I asked AHL about info and they emailed an info sheet but my computer won't open it.  Has anyone got info on the verbal communication stuff?

I'm at a loss on the monitoring thing.  I thought I'd provided plenty of evidence that I rely on others in that respect.  I'm inclined to gather lots of statements from people that they  monitor my condition.

I suppose at least they're things I can evidence and I won't say it's a shock needing to appeal, but I was expecting it to be the mobility component not the care component and obviously in relation to that, I'd be taking into account Monic's advice as to thinking carefully about whether to risk losing the care component.

Quite frankly, with standard care, I might as well argue the toss over everything.

Meanwhile, given that they seem to think I have no trouble communicating, I've decided to kick up a fuss with the NHS trust that manages my hearing, because if the DWP thinks I can hear ok, then the NHS can jolly well provide me with hearing aids that actually enable me to hear ok. 
Welfare Rights / Re: First time esa form
« Last post by Sunny Clouds on November 10, 2017, 12:08:08 AM »
Just remember that whilst we each feel it differently, every one of us here has experienced the stress of form-filling and trying to get the money and/or equipment and/or help and/or services we need and are entitled to.

So you're not alone as you go through this.  It's not fair that it's stressful, but it is stressful, and so it's normal to feel stressed.   

So calm down, apply, and get it....and then you can reassure me when I go into panic mode when I get my PIP decision... >run<
Welfare Rights / Re: First time esa form
« Last post by pjd on November 09, 2017, 09:17:11 PM »
Haha, captain mainwaring is it.    I was starting to panic again then when I thought they would close the file so thanks for reassuring me.  It will only be a few days late as I don't think I could cope dealing with it any longer anyway.   Bloody hell, if I'm this stressed over form, god knows what I'll be like if I fail it.

Someone has given me some cannabis oil to try (legal),  maybe I'll get high and finish the form that way (should be interesting reading then ha).   Anyone tried it for anxiety?     :-)

Pages: 1 ... 8 9 [10]