Author Topic: Transcribing.  (Read 11027 times)

NeuralgicNeurotic

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 7045
Re: Transcribing.
« Reply #30 on: February 27, 2012, 08:48:20 PM »
Let me know who is doing minutes 5-10.

You ok, Dark Divinity?

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #31 on: February 27, 2012, 08:50:08 PM »
Sorry But I have completed the first five minutes, If you want to continue doing it you can and I won't submit what I have already done.

Yes?
« Last Edit: February 27, 2012, 08:51:55 PM by Dark_Divinity »
June 2012 -Hypothyroidism.

Mentally Wobbly.

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #32 on: February 27, 2012, 08:54:21 PM »
Let me know who is doing minutes 5-10.

You ok, Dark Divinity?

I am physically ok, which I suppose it okay...

Brain is being weird again... >lol<
June 2012 -Hypothyroidism.

Mentally Wobbly.

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #33 on: February 27, 2012, 08:55:18 PM »
Shall I post the transcribing I have already done or let the other person who is doing it post as they are 3 minutes into doing it?

I will post my transcribing at 20:58.
June 2012 -Hypothyroidism.

Mentally Wobbly.

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #34 on: February 27, 2012, 08:58:45 PM »
First five minutes of podcast.
Both people talking aren't clear enough for me to properly make out what is being said. If anyone wants to jump in and transcribe
after 5 minutes then feel free. Good luck.   

*Music intro*

Anne:

I have known people, a very ill person put in a garden centre to work 5 days a week, full-time.
Who has chronic pain like I do, be expected to do physical work and she's not incontinent. She's got to delibrately
soil herself, because they won't provide care for her at night because of Government cuts. That;s the reality of cuts
on us as disabled people.

And sadly now many people have taken their own lives and many people are considering it, if things actually go through as
what we have heard it's going to go through. And I have to admit that I have thought about that too.

Just recently I was out at the local post office with my personal assistant who was helping me and this man came in
(to the post office)and he stared at me in this most angry way and he spat in the face of my carer.

But unfortunately I do think we are going to need more direct action to get people's attention, it's what we had to do
20 years ago. My name is Anne Novis, I am a disabled person, a wheelchair user and I became a disabled person about 18 years
ago now. I am also a disability campaigner whenever I have the energy and the right time to do that I try to help other
disabled people and our organisations in what we are trying to change.

Male Speaker (Radio Guy):

And you've not been disabled all your life, no?

Anne:

No, No, I became disabled quite suddenly 18 years ago, developed a spine condition called Cauda Equina which is a very serious a rare
condition which damages the nerves from the base of the spine which obviously affects all the organs and mobility in the legs.
Leaves me with a lot of chronic pain and impairments that affect my whole life and also initatied arthritis throughout my spine.

Due to that there has been alot of knock-on issues like developing tremors and other things like asthma and heart condition all these
sort of things add more seems to be that one you get one injury to you body that the rest of your body starts to react in one way or
another.

I'd like to just say that before I became a disabled person that I was very active in my community, I was a youth worker, I had 4
children of my own and I fostered over 23 children for the local authority. So it was quite a sudden change for me to me to be that very
active mother, partner and in the community to then not being able to more from my bed for several years.

Male Speaker (Radio Guy?):

What do you rely on now?

What does life look like for you?

Anne:

The only thing that give me quality of life at the moment is having my personal assistants or carers as people call them. This is
funded by the local authority and the Independant Living Fund and they assist me in every aspect of my life. So that I can do the
normal things that other people do, like keeping the house nice, going out, having pets, socialising and trying to do some voluntary
activities as well and it's only because of that care and support that I do feel that I have any quality of life. This has been
hugely stressful time for me personally as a disabled person, all my friends and collegues are disabled people as well.

So much anxiety has grown because we haven't been given enough information, we are told certain things are going to happen like the
closure of the Independant Living Fund, like the Benefit Cap, the Bedroom Tax, cuts in care because Local Authority budgets have been
slashed.

And all these things seriously impact on every person in society, but because as disabled people we rely on these things to exist, to
live, it truely does affect every aspect of our lives. There have been many times when I have thought I am not going to survive this,
I fear eventually being in a care home or reliant on my family that they would have to be my carer's which I don't want, I want them to have
their own lives. They are adults, I want them to do their own thing. But it's a real real struggle, like it is for most people around
finances. I am on a very low income, I am on Income Support and Sickness Benefit.
« Last Edit: February 28, 2012, 04:04:43 PM by Dark_Divinity »
June 2012 -Hypothyroidism.

Mentally Wobbly.

seegee

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 5094
Re: Transcribing.
« Reply #35 on: February 27, 2012, 09:01:20 PM »
Thank you DD.   >hugs<
My bad for starting without saying; sorry.  >blush<

NeuralgicNeurotic

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 7045
Re: Transcribing.
« Reply #36 on: February 27, 2012, 09:06:00 PM »
If nobody minds, I'll start on 5-10.

Glad to hear you're not starting to go "screen happy", DD!

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #37 on: February 27, 2012, 09:06:40 PM »
Thank you DD.   >hugs<
My bad for starting without saying; sorry.  >blush<

It;s okay, I hope you haven't been drained too much.  >hugs<
June 2012 -Hypothyroidism.

Mentally Wobbly.

Dark_Divinity

  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1339
Re: Transcribing.
« Reply #38 on: February 27, 2012, 09:07:34 PM »
If nobody minds, I'll start on 5-10.

Glad to hear you're not starting to go "screen happy", DD!

What's "screen happy" when it's at home, head first in the biscuit tin of doom?
June 2012 -Hypothyroidism.

Mentally Wobbly.

seegee

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 5094
Re: Transcribing.
« Reply #39 on: February 27, 2012, 09:27:30 PM »
No problem at all, Dark Divinity; it beats sticking labels on envelopes, which is what I was doing earlier today!  >lol<

I will listen to the next 5 minutes & start from about 10 minutes.  Thanks, NN.  >thumbsup<

It will certainly be tomorrow when minutes 10-15 go up (just because it's very nearly my bed-time).

NeuralgicNeurotic

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 7045
Re: Transcribing.
« Reply #40 on: February 27, 2012, 11:56:55 PM »
... these have not gone up in line with the price rises we have seen in the shops. For instance, my utility bills have gone up from £40 a month to £100 a month, and these are huge increases which we are not seeing in benefits we get, or the income. So I feel like I'm just on a downward spiral all the time, and I'm having to fight for every little thing. Like, I've had care reviews - every year you have reviews to see if you still need the same level of care - yet people having been coming with budgets on their mind, rather than your needs on their mind, so they want to cut the care packages because they want to save money, or the Independent Living Fund is going to close in 3 years, and none of us know what's going to happen then, and no-one's talked to us about it. We've just been left to worry. So there's that side of it.

There's the housing side, you know, I have a home that's been specially adapted for me. I have through-floor lifts, ramps, handrails, adapted toilets, electric door-openers,electric bed - a hospital bed, all sorts of things, all cost more to run than what you'd have in a non-disabled person's home. But because of the so-called Bedroom Tax, because I've had a couple of children move out, I need to downsize. But there's no smaller accessible homes been built for many, many years, so the Borough's told me, you know, they can't re-house me, and every scheme that's meant to help you move, perhaps move out of the Borough, is not accessible to disabled people. So I'm hitting brick walls at every side. So next year, when the this Bedroom Tax comes in, I've got to somehow find an extra £30 a week out of a very low income, and I won't be able to afford that, and that means that I will get in arrears of rent, and have to go through the eviction process, unless the government does actually put in place what it says it will put in place, a discretionary fund large enough to meet the needs of individuals like me, who are trapped in a situation, not of their own fault, where thousands, tens of thousands of pounds have been spent on this home to make it accessible for me, my family live nearby, my community's nearby that I'm involved with now, but I'm going to have to try and move.

So there's the care side of things, there's the housing, and then there's also welfare reform, and I think, you know, well all see that there needs to be a modernisation of the welfare system, but the reaction we've seen from the government has been about so-called scroungers, and misuse of benefits, and that is by a few - only 0.5% disability benefits have proved evidence fraud, and that's the DWP's own statistics, and yet because of that 0.5%, every single one of us is going to be put through a treadmill of reassessments every year, medical ... so-called medical assessments, yet they will take no notice of any medical evidence from the multitude of consultants and specialists I have. It will be a nurse, or a locum GP asking certain questions for the ESA test, in a 20 minute session, asking me to do things like pick up a coin, or a bag of sugar, raise my hand above my head, or ask about my incontinence and that'll be it. They'll have no idea of the medical issues I face - the operations I have coming up, the pain that I have medicated every day, the amount of drugs I'm on each and every day just to cope, to be able to speak now, to be able to communicate, to be able to get out and about occasionally - they'll have no idea about that. So I suspect I will fail that test, and then, like to many others, have to go through the appeal process, which so many then actually do get that initial decision overturned, because the appeal process does look at all the evidence, which is what they should do initially. And again, millions of pounds are being wasted on a system supposed to weed out the fraudsters, supposed to get us into work, when actually it's all about saving money, and it's not going to save money at all. It's going to cost more, and putting people like me under such stress and worry.

So I have it around ESA, but I also have it around the Disability Living Allowance ...

[Ends at 9.59]

I will tweak for anything I've missed or recorded incorrectly. I checked each minute over as I was scribbling, so it shouldn't be too bad!

[Edited for missed or inaccurate words]
« Last Edit: February 28, 2012, 12:19:58 AM by NeuralgicNeurotic »

NeuralgicNeurotic

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 7045
Re: Transcribing.
« Reply #41 on: February 28, 2012, 12:24:37 AM »
What's "screen happy" when it's at home, head first in the biscuit tin of doom?

No, just the state I'm in at the moment. Head fuzzy, vision burring, brain merging text incorrectly, babbling like a ninny etc.

Something either you wrote, or I read incorrectly, over on the previous page of this thread, seemed to suggest that you were headed in that direction too.

(I have *no* idea what I'm on about)

seegee

  • Charter Member and Volunteer
  • Super Hero Member
  • ******
  • Posts: 5094
Re: Transcribing.
« Reply #42 on: February 28, 2012, 08:00:17 AM »
(I have put Int. because I don't know the interviewer's name...)

A.N. So we have that around ESA but I also have it around Disability Living Allowance which is going to be changed to Personal Independence Payments.  The decision has already been made that this will reduce by 20% regardless of need.  The government has set this target which is so unreal.  It should be needs-based not cost-based because DLA is about recognising that as a disabled person I have extra costs & it only contributes to some of those extra costs.  It no way meets the full cost.  But it’s also a passport benefit, so for instance I wouldn’t get access to the Independent Living Fund unless I maintained a high level of DLA (or PIP) – and the ILF funds 35 hours a week of care for me so I would lose that.

So each and every thing that is going on at the moment, apart from all the normal things like the increased cost of living is putting a huge amount of stress, anxiety on me.  Actually my doctors recommend that I have counselling; therapy because I’ve got so anxious about what is happening & they tell me – the doctors, you know, they see this happening to me & thousands of other sick and disabled people and they don’t agree with it but their opinion has not been asked.  Their valid judgement about whether we are fit to work is being dismissed; it’s like it’s not valid for some reason even thought they have years of training behind them.

The local authority provides half my care package, which is 35 hours a week, which they have done for many years for me.  Every year they do a review to see if your care needs have changed, whether they are less or more; but this year and last year they came on a budget-led agenda.
Instead of asking what my needs were & how they’d changed they were looking to lessen it in some way.
Actually I didn’t even realise until after the assessment when I got the written documents that they’d decided to cut my hours without telling me and for some silly reason ?childcare… 
Well, my youngest child is 30 years old, so I was able to challenge that. 

But it evidenced to me that this was about cuts; trying to save money rather than the reality of my life, needing as much care, if not more, but they were just trying to find some silly excuse to reduce the care package.
The reality is, if they reduce the care package so does the ILF because they match what the LA gives, so I was facing a cut from both fronts.  So I had to appeal even though there is no appeal process.
I had to get an advocate to support me.  I had to wait three months of not knowing whether I would get the hours back or not.  I did get them back but it was a fraught-full time for me and my employees because I get what is called a direct payment from social services.  They give me the money to employ my carers or personal assistants but if I lose that money that means the people I employ – four people - either have their hours cut or get made redundant.  So they were really fearful of that as well, so I had to deal with their anxiety as well as my own about how I would manage if I couldn’t overturn this decision.

Int. – What could it have possibly meant if your hours were cut?  How much would that change your life?

A.N. – Every minute that’s reduced in your care hours counts.  Say they wanted to reduce by about 6 hours a week; that would’ve meant something like I couldn’t go & see my elderly Mum in hospital because I need carers with me to do that; or I wouldn’t be able to go shopping; or take my animal to the vet; or a meeting with other disabled people; or just go to a park meeting. 
I’m a friend of my local park.  I love my local park; it’s accessible to me & I’m involved in looking after it – and there’s one meeting every two months to go to; but I need the extra care hours to go.
It just affects every thing.  The basic with me – I’d be on my own sat at home; probably may be able to get up but just be sitting her doing nothing.

Int. – And on the ESA, with the test which you’re fearful of [Anne; very fearful], of you being thrown off [Anne; yes].  What would you be then put on to, what would happen next?

A.N. – OK; I’ve seen many people who are more poorly than me & more disabled than me fail the ESA test, the fitness for work test.  They’ve had those decisions overturned on appeal but that takes about a year.
(15minutes 05seconds)
« Last Edit: February 28, 2012, 08:39:41 PM by seegee »

KizzyKazaer

  • Global Moderator and Welfare Rights
  • Super Hero Member
  • *****
  • Posts: 7828
Re: Transcribing.
« Reply #43 on: February 28, 2012, 09:45:31 AM »
This is absolutely brilliant, what you're all doing - thanks  >thumbsup<  >star<

Let me know when you're done and I'll move all the interview content posts to a separate new thread on 'Talk' -  >tah<

Hurtyback

  • Moderator 3am board
  • Super Hero Member
  • *
  • Posts: 5800
Re: Transcribing.
« Reply #44 on: February 28, 2012, 11:53:09 AM »
You are doing a great job, thanks guys  >thumbsup<
I have 2 (extra) problems at the moment. The first is that my internet connection keeps dropping out - it can be gone for minutes or hours  >angry< . We have bought a new router but that has not solved the problem, it looks as if the problem might be with my comp  >crying< . The second problem is that an attack of vertigo struck suddenly yesterday. I suspect that this is my 'overtired' response and I feel slightly better after 11 hours sleep. However, I am finding that computer use makes me feel a little  >pukey smilie< so I don't think I will be of much help today  :-( . I will pop in later, if I can, and see what needs doing.