Ouch Too - a place for and about disabled people.

Forum => Disability Talk => Topic started by: JLR2 on April 10, 2018, 07:28:59 AM

Title: Steroid injections?
Post by: JLR2 on April 10, 2018, 07:28:59 AM
Morning folks, yesterday I had to see my doc because of a severe pain in my right shoulder which is made worse if I turn my head to look left even slightly. My doc has arranged an appointment for me to have a steroid injection next week as he was doing so he was saying something to me about these types of injection being uncomfortable for many people. For me it's the first time I will ever have had one of these injections, so if I may ask, anyone know about these injections and what I should  >erm< expect?
Title: Re: Seroid injections?
Post by: Fiz on April 10, 2018, 08:35:28 AM
They're painful but the first injection should be local anaesthetic. Make the doctor wait 5 minute before you then have the steroid injection so the local anaesthetic has had time to take affect. I've had steroid injections but because my bursa was so inflamed and painful I insisted on IV sedation and in the end they sent me to a private hospital where I had the steroid injections done under general anaesthetic.  I needed 2 separate injections 6 weeks apart to reduce the inflammation and for the pain to go. I've been pain free in my hips ever since. I wish there was a solution for my back that could take that pain away!

Steroid injections are very effective but for actual bone joints the pain relief is often temporary and the pain returns gradually months later. My stepmother had steroid injections into her elbow joint every other year. She said it was "uncomfortable" but well worth it for the pain relief it provides. The good thing about the local anaesthetic is that you don't feel any discomfort caused by the actual injection for several hours. Of the several people who I know who've had steroid injections, one or two said it was painful, most said it was a bit sore or uncomfortable but all of them said it was worth I for the pain relief and they'd have another if needed. And a couple do have regular injections into the knee joint.

I don't know if that helps at all. Before I had my steroid injections I youtubed the procedure for steroid injections for trochanteric bursitis and I'm not sure how helpful it was but I like to know what will happen in advance and how other people react. I'm the only person I know who's had a general anaesthetic in order to have a steroid injection! But because I was in an operating theatre they used x-rays to guarantee 100% the injection would go to the exact place necessary which I wouldn't have had anywhere else.

I'm sure you'll be fine, I'm just a wuss.
Title: Re: Steroid injections?
Post by: JLR2 on April 10, 2018, 09:08:53 AM
Trust me Fiz I'm far away more of a wuss than yourself. I tend to get quite nervous of these things and like yourself I, where I can, like to get some kind of idea as to what I'm likely to experience. On this occasion I was just that little bit more concerned as my doc made mention of this injection being uncomfortable.

I'd really like to have had some idea as to what it was or is that's caused the pain in my shoulder, might help me avoid me seeing me doing the same thing again if it's down to something I've done. I'm like a strange bunch of bones in that though I'm left handed I use my right hand for just about everything else apart from writing and hauding my ciggies, I even use my right hand when I'm boning a ham. Talking of boning a ham I did a ham a few weeks back and honey roasted one of the big joints I made a couple of days back. With my Berkel slicer working fine I'm fair enjoying my salad sandwiches wi'lettuce, tomato cucumber and a wee bit of mayonnaise >biggrin<
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 10, 2018, 09:59:57 AM
I've had two steroid injections, one in a ligament in a leg, one in an arthritic shoulder joint.  Neither was agony, indeed, both were at very manageable pain levels.

However, I'm sure a lot of it depends on your individual response to pain.  I'm in no doubt whatsoever but that some people experience physical pain far more intensely than others.  For me, the level of sensation of physical pain is primarily a matter of my emotional reaction to it, so once I reassure myself that the pain isn't anything to worry about, e.g. when having an injection to ease pain, it damps down enormously.  That's not me being brave, it's just how my brain responds to pain.  (I drive doctors and paramedics potty by saying that the classic 1-10 scale is pretty much meaningless to me as my brain responds to types of pain far more than amount of pain.)

So I wouldn't be worried about steroid injections, but if, your body screams pain at your brain and things like reassurance don't reduce it, then mine isn't the best advice on this.
Title: Re: Steroid injections?
Post by: ally on April 10, 2018, 02:08:07 PM
 I've a few steroid injections, and, nerve root blocks done by a local.  On all occasions,  I haven't felt much at all.  I had my spinal cord stimulator trail done by local.  That involved a two and a half hour procedure having leads inserted into my spine, and, then attached to a battery in my stomach.  In April, I had revision surgery on my SCS.  That involved, a new lead, same as above, and, the electrodes removed and replaced.  In December. I had the SCS battery removed from my stomach, and a new one implanted in its place.  On all occasions I've been awake, and watched the surgeon do the procedures  Plus, the stitches afterwards.  During the SCS trial I watched it being done internally, on an overhead screen.

Unfortunately, I suffer from asthma.  Every time I have a general anaesthetic I need to be kept in overnight, and I'm on oxygen.  That's why I always opt to have all procedure done by local.  The steroid injections in my spine didn't work well for me.  I also found it painful for a few days  afterwards.  The nerve root blocks worked best,  Fiz could you not ask for nerve root blocks?  They really helped me.  JLR2 My advice would be to try the steroid injections.  They may work well for shoulder pain.  No one enjoys any procedures.  However, if they help with the pain, it's worth it.
Title: Re: Steroid injections?
Post by: huhn on April 10, 2018, 02:40:05 PM
yes it hurts, accept for my boys, they feel no pain. but pain goes away and  you are better then
Title: Re: Steroid injections?
Post by: ally on April 10, 2018, 07:54:23 PM
After I posted what I did.  I hope no one thinks I want a medal for bravery.  I'm certainly not brave.  My husband thinks I'm an idiot.  I only opt to have everything done by local due to my asthma,, as I've already explained.  It's no fun staying in overnight,  hooked up to oxygen, and, having my blood pressure and heart monitored due to having a general anaesthetic.  I hate staying in hospital, and, want out ASAP.  It's made worse by being unable to communicate with the staff.  One picked an argument during the night, as she thought I was being obstructive,  or whatever,  as I couldn't understand in the dim light what she was saying.  After my accident, I vowed I'd never be admitted again,  unless absolutely necessary. 

I still think steroid injections are mostly good for those who have them.  It's afterwards that could be uncomfortable for a short while at least.  If it were me. I'd go ahead.  If the shoulder is painful, then, anything that could help, can only be a good thing.
Title: Re: Steroid injections?
Post by: Fiz on April 12, 2018, 08:06:29 AM
Yes everyone I know who has had steroid injections have felt massive benefit from them and as I say my 2 injections have left me completely pain free which was total bliss after limping around at snails pace for months. I was fully expecting to be awake for mine. The bursa on the outside of the hip joint was twice the size it should be as it was inflamed. It was so painful that if a piece of clothing merely brushed past it momentarily I was in agony. My logic was if the pain is that bad for the lightest of touches then an injection right into the centre of the inflamed bursa would be too much for me so I requested diazepam via an IV. That would need an anaesthetist to be present so when they referred me to the hospital to get it done I thought I was going there to have diazepam and was surprised to find I was listed for a general anaesthetics. I've had an epidural and a spinal and a lumber puncture under local anaesthetics and been awake for 2 of my cesareans one of which was done under a failed epidural, I'd probably be banned from the board if I tried to explain how painful a cesarean was without any effective pain relief!

I've had stitches put in without even a local anaesthetic, I don't see the point of a local when a needle holding the anaesthetic is stuck in you all around where I'm about to be stitched in order for a different needle to be stuck in the same place without pain a couple of minutes later to do the stitching so I just say don't bother with an anaesthetic. The only time I've accepted the local anaesthetic was when I was having a large mole removed and the wound was going to be cauterised which I felt it was worth having a local for.

It's interesting your doctor has ordered the steroid injection for your shoulder JLR that implies the doctor has made a diagnosis of what's causing the pain and he's saying this is the treatment for it. Have you actually asked the doctor what is causing your shoulder pain? If the doctor doesn't actually know but is thinking a steroid injection might help, he's literally just taking a stab in the dark! But I really hope it helps. When is it?
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 12, 2018, 11:29:28 AM
For me personally, the benefit of a steroid injection in my shoulder was to give me enough respite to start using the shoulder more and not to be too upset about pain in it.  Addressing the pain aspect first, as I sit here, when I think of it, there's pain.  I know it's not a trick of the mind that I feel about it when I think of it, it's more like when you do a mental inventory of your body and become aware which bits are hot or cold, or which bits are comfy or not.  I don't say it would be like that if the pain were severe.  But for me, the respite changed how I perceived it and felt about it.

However, there's also the thing whereby if a shoulder (or other joint) hurts, you use it differently.  Shoulders can get horribly stiff, so a temporary reduction in pain can make an enormous difference to how much stretching and strengthening you do, so that even if the pain returns badly, it might still not be as bad as before because you haven't got so much stiffness and weakness.

Title: Re: Steroid injections?
Post by: Fiz on April 13, 2018, 05:56:03 PM
That's why I was told off by the physio way back in 2001 when my degenerative disc disease was diagnosed. She said that I needed to take stronger painkillers and take them more regularly or else the muscles around the painful area will respond by tightening in response to the pain, ramping up the pain tenfold. I have to say I can feel a difference in the lack of tension in my back since being on strong analgesia. 
Title: Re: Steroid injections?
Post by: JLR2 on April 14, 2018, 08:54:31 PM
I'm feeling  bit more relaxed about Monday's doc appointment now I've a better idea of what's in store for me. With the best will in the world I hope the injection I get will be the only one I'll need and my shoulder pain will become but a distant niggle. Thanks for everyone's advice :-)
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 14, 2018, 10:45:58 PM
I just realised I forgot to mention something important - after you have the injection, don't worry about your arm falling off.  It can take up to 48 hours for it to happen, but one injection should suffice.

 >run<
Title: Re: Steroid injections?
Post by: JLR2 on April 15, 2018, 07:32:03 AM
Nae wurries Sunny, ah've plenty o'super glue >biggrin<
Title: Re: Steroid injections?
Post by: KizzyKazaer on April 15, 2018, 04:58:19 PM
Super glue?  I swear by gaffer tape myself...
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 15, 2018, 07:01:44 PM
Gaffer tape?  I told you all that Kizzy's mad and here's the proof.  You don't re-attach arms with gaffer tape - you only use it to re-attach heads. 

Still, if you want to experiment, I suppose it's cheaper than surgical tape. 

Title: Re: Steroid injections?
Post by: KizzyKazaer on April 15, 2018, 09:14:22 PM
Quote
.. I told you all that Kizzy's mad and here's the proof.

 >lol< >raspberry<

- and all the very best for tomorrow's jab, JLR  >x-fingers<
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 15, 2018, 09:59:19 PM
Quote
and all the very best for tomorrow's jab, JLR

From me, too.

Title: Re: Steroid injections?
Post by: auntieCtheM on April 16, 2018, 03:33:36 AM
and me three
Title: Re: Steroid injections?
Post by: Fiz on April 16, 2018, 07:39:32 AM
 >thumbsup<
Title: Re: Steroid injections?
Post by: ally on April 16, 2018, 08:46:01 AM
Good luck.  Hope the injections work for you
Title: Re: Steroid injections?
Post by: JLR2 on April 18, 2018, 08:33:08 AM
 >erm< It didn't happen  :-(  One of those things I guess but on Saturday I had a visit from the guy who does the chimney sweeping in my area and he explained the only time he'd have for doing my chimney was at 3.30pm, just the time of my doc appointment. First thing on Monday morning I called the surgery and having explained my problem was given another appointment for the 23rd of April.  :-)
Title: Re: Steroid injections?
Post by: Fiz on April 18, 2018, 09:27:25 AM
Oh and I've been wondering how you got on. Let's hope it happens next week then.
Title: Re: Steroid injections?
Post by: bub1 on April 18, 2018, 09:55:01 AM
I have had two nit painful but only works for me for 2 weeks
I am due to have an injection through neck on Monday to go through to the spine
Title: Re: Steroid injections?
Post by: JLR2 on April 20, 2018, 02:21:40 PM
Bub1, I hope everything goes well on Monday, me I doubt I could handle the injection you're facing. I have had a couple of hours or so without being aware of the pain in my shoulder though it is there just now. I can just see me at the doctor's surgery and it'd be like when at the dentist for a painful tooth, the pain always takes a walk and I find myself trying to guess which tooth it was that was so painful I felt the need to make the appointment in the first place.

Re my shoulder problem, I have become aware of an issue in my right hand which I'm unsure if it is connected with the shoulder problem, my hand is going, this is going to sound like a contradiction in terms, painfully numb with pins and needles in my forearm.

On the bright side, my left arm and hand are working fine and I'm still able to lift my mug of coffee, here I'll show you.......slurp >biggrin<
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 20, 2018, 03:20:41 PM
JLR - unless you're any good at typing one-handed, please be so kind as to get that hand seen to.  I need people who keep me informed of the stuff that's being thrown at us by the powers-that-be, and I particularly value your willingness to address disagreements or queries so that I can learn.  So forgive me if I show more concern for my needs than yours, but one has to have one's priorities and mine include reading what you post.
Title: Re: Steroid injections?
Post by: JLR2 on April 20, 2018, 04:16:54 PM
Thanks Sunny, I will tell my doctor when I see him on Monday. The feelings I'm having in my right hand come on quite quickly when my arms is at roughly the 8 numeral on a clock face.  As I'm sitting here just now my notebook is below my elbow level, it's on my wee coffee table, and I can feel something, sort of tingling, along my thumb, the knuckle of my index finger and the heel of my palm. I have to constantly sit back from the notebook and move my arm till the feeling subsides but again it returns within moments of me going back to typing or moving the mouse on its mat. Maybe I'm just experiencing the same thing that many folk who spend a lot of time at computers or in desk jobs, repetitive strain injury perhaps.
Title: Re: Steroid injections?
Post by: Fiz on April 20, 2018, 05:52:53 PM
 >bleep< there needs to be an "ouch" smilie on the forum and I felt this the next best thing.
Title: Re: Steroid injections?
Post by: JLR2 on April 23, 2018, 12:56:24 PM
 >doh<  Yup complete muck up of my appointment. My original appointment was for 15.30 last Monday and I had put the wee sticker with the details of that appointment on my notebook's keyboard so as not to forget it. When I had to make the cancellation I amended the wee sticker's details including the time of the rearranged appointment 10.10am and then a week passes with me thinking as was said to me by my Doc, back at the time of the original booking, that he prefers to do these injections at the end of the day's surgery so for some reason I've been thinking of 15.30hrs end of day's surgery. It was only a few moments ago I noticed the 10.10 on the wee note.

So following frantic and embarrassed phone call to surgery I've had it rearranged again for Thursday third of May at 10.10. I hope the surgery doesn't announce my arrival for the new appointment with bells and whistles, bunting and balloons >whistle<
Title: Re: Steroid injections?
Post by: Sunny Clouds on April 23, 2018, 01:14:28 PM
Tsk, tsk.

I hope you're in agony between now and then as penance for missing your appointment.  (Well, actually I don't, but it was more fun to say that.)
Title: Re: Steroid injections?
Post by: KizzyKazaer on April 23, 2018, 05:27:14 PM
This is all turning into a bit of a saga ... Next instalment eagerly awaited!
Title: Re: Steroid injections?
Post by: JLR2 on April 23, 2018, 09:19:53 PM
Awe nae need tae be needling me, ah get the point, 'am hoping noo that ma doctor disnae go thinking aboot giein'me awe ma jabs in the wan visit, jist incase ah might miss future appointments >biggrin<
Title: Re: Steroid injections?
Post by: JLR2 on May 03, 2018, 11:53:21 AM
After all that I remember the appointment get to the surgery on time and......I don't have the injection as my doctor feels it will not be of much benefit as my pain though still there has subsided over the last few days and may be due to something else. :-)
Title: Re: Steroid injections?
Post by: Sunny Clouds on May 03, 2018, 01:28:46 PM
What?! I've a mind to write to the GMC to report your doctor for wasting Ouchers' valuable support efforts.  I think the least he could have done is to pretend he was going to inject your shoulder and just jab a big needle in it.

Well all I can say is that that shoulder of yours had better stop hurting completely to save me the effort of copying and pasting my previous 'don't worry' type comments again.

 ;-)
Title: Re: Steroid injections?
Post by: JLR2 on May 03, 2018, 04:10:27 PM
Och, whaur's ma hammer, ah'll gie masell a right sore arm and huv ma doc cut the flippin' thing aff >biggrin<

I do find myself wondering just what it hs been that's caused me my problem to start with,  if it's in my neck heck knows what I'll be able to do about that.


Thanks for everybody's help and advice in regards to my recent problem :-)
Title: Re: Steroid injections?
Post by: Fiz on May 03, 2018, 09:17:26 PM
What?! I've a mind to write to the GMC to report your doctor for wasting Ouchers' valuable support efforts.  I think the least he could have done is to pretend he was going to inject your shoulder and just jab a big needle in it.

Well all I can say is that that shoulder of yours had better stop hurting completely to save me the effort of copying and pasting my previous 'don't worry' type comments again.

 ;-)

 >biggergrin<

jlr2 how do you feel about that decision?

Title: Re: Steroid injections?
Post by: JLR2 on May 04, 2018, 01:27:27 AM
I can fair understand it. No doubt when the pain returns to the level that saw me making my appointment(s) with my doctor I'll be cracking up again. It is not a nice feeling knowing there is something wrong but not what it is. The wee worry in my mind is there might be something to do with my neck/spinal that's behind things, I did explain to my doctor that I, at times, had problems turning my head to the left like to look over my shoulder. When I tried to do that when the pain in my right shoulder and arm was at its worse I would find myself turning my head sharply back to the right. If I don't try to look too far to the left I tend not to have the problem so I'll just avoid the pain knowing how to, doesn't really explain things to me but there's not lot else I can do.
Title: Re: Steroid injections?
Post by: Sunny Clouds on May 04, 2018, 01:30:39 PM
I personally find that if I don't know why something's hurting, it seems to hurt more.  To me, that's part of the nature of pain.  Some people find it worse when it won't go away, but for me, it's like a fire alarm, and how annoying and intrusive it is depends on whether I know it's the weekly fire drill aka chronic pain, or either a new fire or a malfunction aka unfamiliar pain.

I recently had a scary new pain that I found was called an ice pick headache, but for a week or so before that, my  neck had been 'cracking' a lot when rocked from side to side, as you might if stretching a stiff neck.

I prodded around and found a tender bit on the neck that triggered the pain higher up on my head, and massaged it, whilst also changing how I was sleeping and making more of an effort to sit upright at my desk.  That helped and now the headache has stopped and the neck isn't cracking much.  I think I probably jolted the neck badly when I stumbled one day and fell into a bus seat instead of sitting neatly.

Anyway, what I'm clumsily saying is that I think not knowing what's causing pain can make it worse, so I hope yours gets better, and also I hope you can find something that eases it more.
Title: Re: Steroid injections?
Post by: bub1 on May 15, 2018, 05:42:34 PM
I have just had 2nd steroid injection through neck for c5.
Hasnít worked yet again.
Back to consultant tomorrow to tell him.
Title: Re: Steroid injections?
Post by: Fiz on May 15, 2018, 06:07:02 PM
It takes up to 3 weeks for full effect. When was it done Huhn? 
Title: Re: Steroid injections?
Post by: bub1 on May 15, 2018, 08:51:02 PM
4 weeks ago. Consultant didnít think it would work but wanted to try anyway
Title: Re: Steroid injections?
Post by: bub1 on May 17, 2018, 09:22:49 PM
Well I am now on the list for surgery on my c5.
Told it will be a few months.
Title: Re: Steroid injections?
Post by: Fiz on May 18, 2018, 08:29:20 AM
I really hope that's successful bub. Has the doctor mention success rates?
Title: Re: Steroid injections?
Post by: bub1 on May 26, 2018, 03:35:16 PM
Sorry for late reply.
No he didnít mention success rates. But I have another appointment on the 11 th June to discuss surgery. I am worried about having it. So will see if there is anything else I can try.
I saw rheumatologist on Thursday and he has diagnosed me with Fibromyalgia. Fun and games. Another illness on the list.
Title: Re: Steroid injections?
Post by: bub1 on June 11, 2018, 02:11:27 PM
Well saw consultant he is going to try a different injection but through back of neck. This one is different and has to get funding for it through local authority ( good luck with that one then).
He has upped all medication and prescribed tramadol.
If that doesnít work then it may be surgery but success rate is only 75 percent.
Will see what happens
Title: Re: Steroid injections?
Post by: Fiz on June 12, 2018, 08:56:07 AM
75% is quite a high percentage, definitely worth a go I would say. Tramadol is my most mild pain killer, I'm absolutely sure that they can find a level of analgesia that can help relieve the pain. Pain is the pits though  >hugs<
Title: Re: Steroid injections?
Post by: ally on June 12, 2018, 09:07:23 AM
All operations carry a risk.  Some have procedures done , and, it's a success.  Others like me, it's not so simple.  I regret having my first two spinal operations on three levels.  Not only were they not a succes, I've been left with extensive nerve damage and failed back syndrome.  However, two friends has similar operations, and, were fine.  I'd think very carefully of the pros and cons before going ahead with any surgery.  At the end of the day, it's your decision. Good luck
Title: Re: Steroid injections?
Post by: bub1 on June 21, 2018, 09:11:36 AM
I probably wonít have surgery and try everything else.
Because of the way my spine is it wouldnít be the last operation I would have on it.
Will see what happens
Title: Re: Steroid injections?
Post by: Fiz on June 24, 2018, 07:06:26 AM
 >bighugs<

At the time I had my MRI spine scan I'd decided I'd undergo anything to ease the pain as it was at the time unbearable. I was gutted when I was told no operations or injections would help me. But I'm on really strong analgesics now, and have a couple more strong opioids to top up with and I find if I do the minimal mobility although the pain increases as I mobilise if kept to a minimal distance the pain is now at a bearable level and I don't feel as desperate or disappointed anymore. I am forever thankful that I was born in the age of effective medication though. So I can understand your decision.
Title: Re: Steroid injections?
Post by: bub1 on June 24, 2018, 08:42:45 AM
Thanks Fiz.
I received letter yesterday for another mri spine cervical
So see what that now shows.