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Forum => Disability Q and A => Topic started by: Fiz on 26 Apr 2018 03:39PM

Title: incontinence wear
Post by: Fiz on 26 Apr 2018 03:39PM
This is kind of embarrassing. My neuropathic pain stems from nerves running alongside my bladder. When the nerves are triggered by certain movements that sends my bladder into a small spasm just because the nerves are right beside the bladder. The spine consultant said that anyone who has over sensitive nerves that fire off on movement will experience nearby muscles spasming (sp? ) and it's just unfortunate for me that the nearest muscle for me is my bladder. Apparently as this is caused by over sensitive nerves pelvic floor exercises won't prevent the incontinence. So when I walk a set distance or climb the stairs I end up with some urinary incontinence. I never feel the muscle spasming or feel the bladder working or leaking, the first I know about it is feeling wet. I've been using pads bought from the supermarket that I order with my online shop with but these are not proving to be enough protection. What's the next step up from the thickest panti-liners? I need something discreet and not seen through clothing like trousers. I actually hate this aspect of my neuropathic nerve problems as much as I hate the excruciating pain which to me doesn't make sense. I'm always worrying that if I feel wet then the pads haven't been enough and people can see.

I guess I need to place an online order with a different company or chemist as what I am buying from my supermarket isn't enough. Excuse the personal question, I'm pleased that this is an anonymous board I can ask such questions.
Title: Re: incontinence wear
Post by: Sunny Clouds on 26 Apr 2018 04:40PM
Since I reduced the meds that were causing my urinary incontinence, I don't use them much, but I was using the sort of pads that will take a bladder-full of urine, and I found that they weren't noticeable.

It rather depends what you wear.  If you wear leggings, then thick pads will show, but under jeans or slacks (am I showing my age calling them that?) they won't show unless your  trousers are very tight, perhaps if you've got a long below-waist trunk (and of course people vary in that).

I think it's rather like when a girl starts wearing sanitary towels and thinks the whole world will notice them and then after a while realises they don't.

The other option is all-in-one incontinence pants, either disposable or washable.  The disposable ones may be more obvious, though, if you've got thin material in your trousers, because they tend to be elasticated so they have a sort of ribbed surface.

Disabled equipment suppliers do washable incontinence pants.  If that seems icky, I don't think urine in the wash is any worse than sweat and snot and general dirt on clothes, but it's a question of personal feelings on it.  For example, I'd get twitchy over washable bowel incontinence products even though lots of people get them and wash them with no problems at all.

Incidentally, if people do notice a pad, they may think it's just a thick sanitary towel, and that carries different social connotations, as it were, but actually I don't think most people would think anything of it.  It just feels like they would. 
Title: Re: incontinence wear
Post by: Frances on 26 Apr 2018 05:21PM
You can get them supplied by your local nurse . Just ask to be assessed.
But I do buy some Pants and I also have a Stoma.
But if I am going out they do not privide enough protection.
So I buy terry nappies the same as I used for my Little ones.
Just fold them in half and roll them up.Used with the incontinence Pants they provide plenty of protection.
Hope that helps. Such a darn pain lack of control !!!
Title: Re: incontinence wear
Post by: Fiz on 27 Apr 2018 04:53AM
It is a pain, I absolutely hate this side effect of the condition. I also find it's going out that it is at its worst. Getting in or out of cars sets it off, climbing stairs. I've managed to find much thicker night time pads. If they prove not not be enough I will consider the next step.

Title: Re: incontinence wear
Post by: bub1 on 17 May 2018 09:24PM
Fiz I use Tena Lady knickers they are more comfortable than pads.
I buy mine in fact they are ordered on line. Much cheaper than in the shops
Title: Re: incontinence wear
Post by: Norrin Radd on 18 May 2018 01:05PM
Would a conveen be any help? I realise it's different for me because I'm a bloke, but I find that they're great for when I'm out and about.
Title: Re: incontinence wear
Post by: Fiz on 19 May 2018 09:09AM
Fiz I use Tena Lady knickers they are more comfortable than pads.
I buy mine in fact they are ordered on line. Much cheaper than in the shops

I saw those advertised on TV yesterday and wondered about them. They said they are leak proof and I'm always terrified of noticeable leakage when I'm out. This may seem like a silly question but do they feel wet? Apparently there are some pads that feel dry when they're wet if you know what I mean and that would be so much more comfortable. I can't believe I'm discussing such a personal thing! But I find the discomfort physically and emotionally of the leakage as bad as I find the pain and that sounds stupid even as I say it. I don't feel I'm very resilient.
Title: Re: incontinence wear
Post by: Frances on 19 May 2018 12:23PM
I use Tena Pants all the time .
They are great as they hold my Stoma bag in place as well.
The only problem I find is I do sweat and get sore in my groin area.                              But by folding something small and cotton eg. A cut up towel that helps a lot,
I use baby nappies cut in about 4 pieces and rolled up.
I stitch around them which works .
 well as I can wash them.
Title: Re: incontinence wear
Post by: Fiz on 19 May 2018 05:29PM
Where online are the cheapest tena pants? I ask as I don't do shops, so online it is.
Title: Re: incontinence wear
Post by: bub1 on 20 May 2018 11:02AM
Fiz I donít feel wet with mine. So you feel dry all the time.
I order from eBay. Look around on there as they are the cheapest
Title: Re: incontinence wear
Post by: Frances on 20 May 2018 12:15PM
I buy mine from Amazon. The price varies as they have several suppliers I just check each time I order which is cheapest. If you do amazon prime you can get an extra 15% off when you order with some suppliers.
Title: Re: incontinence wear
Post by: Fiz on 20 May 2018 06:27PM
Thanks I will definitely look for some, they seem ideal.
Title: Re: incontinence wear
Post by: AndMac on 02 Nov 2018 02:54PM
Iíve found that high-street products arenít suitable for overnight, as my swollen legs ďdeflateď during the night when I am lying down, and I pass vast quantities of urine.
I get my supermarket equivalent pads  supplied by the NHS, but I have been able to get extra large non sticky pads on Amazon for overnight.
They have saved me a small fortune, as Iím not having to wash a soaked bed pad, night clothing and bedding every morning. They pay for themselves. Iím sure that the stick on pads that I wear during the day donít show. If anyone is staring that closely at my backside, they must have some serious problems. Iím quite tall so I like to wear dresses as tops , and these tend to hide my backside anyway.
Title: Re: incontinence wear
Post by: Sunshine Meadows on 02 Nov 2018 08:48PM
AndMac,
Quote
I have been able to get extra large non sticky pads on Amazon for overnight.

Could you post a link please ?
I dont use pads but I do have a commode near the bed which during the night. Emptying the lidded bucket down the loo the next day can be problematic as I cant walk as I carry it without running the obvious risk of dropping or spilling it.

Quote
If anyone is staring that closely at my backside, they must have some serious problems.

I remember my mother law talking about how as we women get older they become 'invisible' to others. Thing is as people with CP we are noticeable  :-)
Title: Re: incontinence wear
Post by: AndMac on 02 Nov 2018 11:38PM
https://www.amazon.co.uk/Expert-Form-Disposable-Maxi-Incontinence/dp/B00D6EFFU2/ref=redir_mobile_desktop?_encoding=UTF8&psc=1&ref=yo_pop_d_pd_title (https://www.amazon.co.uk/Expert-Form-Disposable-Maxi-Incontinence/dp/B00D6EFFU2/ref=redir_mobile_desktop?_encoding=UTF8&psc=1&ref=yo_pop_d_pd_title)
Iím posting this from my smartphone, so apologies if it doesnít work as a direct link;
https://www.amazon.co.uk/Expert-Form-Disposable-Maxi-Incontinence/dp/B00D6EFFU2/ref=redir_mobile_desktop?_encoding=UTF8&psc=1&ref=yo_pop_d_pd_title
Title: Re: incontinence wear
Post by: AndMac on 02 Nov 2018 11:41PM
The link worked for me. They are massive pads, and I mean massive. They took a little bit of getting used to, at first you think ďHow  am I going to get that  in my pants?Ē But you do, and then life gets much easier.
Title: Re: incontinence wear
Post by: Sunshine Meadows on 03 Nov 2018 08:49AM
Yep the link works thank you.

Right now I am not getting out and about on the trike like I used to but if I do get back to the cycle way dog walk I will try these because I can no longer wee behind a tree without getting wet. Maybe for long car journeys too.

edit to add - I know they will be bulky but it wont show much in the wheelchair especially in winter time when I have baggy waterproof trousers on.
Title: Re: incontinence wear
Post by: AndMac on 03 Nov 2018 09:26AM
Happy to help! It took me quite a bit of effort to find this product online. Whatís available on the High Street and in supermarkets is so inadequate for my night time needs, and I suspect Iím not the only one. They would be great for a long car journey. Iíve just ordered a slightly smaller size of this particular brand. Iíd bought some from Age Uk, but they arenít much better than my standard Extra Plus pads, that I get for free.
I normally put one of the NHS pads  in with the Age UK pads if I am just at home. With the NHS pads, I have to use the loo/commode every 90 minutes or so to stay dry.
Title: Re: incontinence wear
Post by: huhn on 04 Nov 2018 04:24PM
I just done a big  clean out  and all  the  cotton nappies from my 5 children went to the vet for  dogs and cats with incontinence problems.