Author Topic: Advice about Butrans patches  (Read 2317 times)

Marinab43

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Advice about Butrans patches
« on: April 23, 2014, 10:42:02 AM »
Hi all
I'm new to this forum and have joined to see if anybody could give me some advice about my painrelief.  Brief medical history, diagnosed with degenerative spine and disc disease in 2003 which was discovered during surgery for prolapsed discs. Since then, I've had four further ops and after my last one, was finished from work due to me not being fit enough to work (I'm 43, married, no kids, 2 cats & used to work as an occupational health administrator)
Anyway, over the last three years I have been in constant, chronic pain on a daily basis. I've also developed piriformis syndrome which adds to my pain. I've tried Zapain, tramadol, sevredol, oxycodone, oramorph (when I couldn't walk for 3 months before last op) and most recently Butrans 10mcg patches.  The patches were wonderful for 3 months. Then I developed a severe case of contact dermatitis due to the glue. I really thought I was getting somewhere so was really upset when I couldn't use them. Tried oxycodone but they didn't really help.  I went back to GP & asked to try patches again as id read taking an antihistamine with them may help. It didn't so GP tried me on Buprenophine tablets. Within 2 days, under my tongue became swollen so now I think I'm allergic to those! While I wait to get in with GP I've gone back to using oxycodone to keep me going. I'm not depressed but I can't see a way of managing my pain.  Physios have discharged me, I've tried acupuncture, hydrotherapy, exercise and feel like I've been 'given up' on but I'm determined to get my medication right so I can achieve a better quality of life than I have at the moment. I was offered a place on pain management course but didn't think it was for me as I'm not depressed or need motivation - I just need some pain relief that will help me have a better quality of life. My main goal is to get back working part time but as time goes on, my goal is becoming more difficult to achieve.  Sorry for the long post - I wondered if any of you can suggest different pain relief that has helped managed your pain.
Thanks Marina  >star<

JLR2

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Re: Advice about Butrans patches
« Reply #1 on: April 23, 2014, 10:55:50 AM »
Hi Marina, welcome to Ouch Too, sadly I can't actually offer much advice about pain management as I've pretty much just put up with the pain I go through using the various painkillers I get on prescription. One thought that has occurred to me regarding the patches you mentioned that caused a problem due to the glue used to attach them, would it help to cut off the glued parts of these patches and then use such as a bandage roll to hold it in place?

AccessOfficer

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Re: Advice about Butrans patches
« Reply #2 on: April 23, 2014, 11:26:01 AM »
Hi Marinab43,

Welcome. I use Fentanyl patches and have done so for over twenty years now.
When I was first prescribed the patches I too experienced an allergic reaction to the glue.

I went back to my GP and she advised me to try different brands of Fentanyl patches and hope I found a brand that used a glue my skin would tolerate.

At the third attempt I found a brand that my skin would tolerate. Needless to say I was delighted and I have used this brand ever since. Over twenty years I have had to up the patch strength from 25mcg? to the 75mcg I am now using.

Best wishes
AO

NeuralgicNeurotic

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Re: Advice about Butrans patches
« Reply #3 on: April 23, 2014, 11:50:26 AM »
Hi there Marina

I have a neuralgic condition which affects some of the nerves in my pelvis, and take a combination of Pregabalin and Oxycodone for it. Neither drug was particularly effective in isolation. They doesn't alleviate the pain completely, but it do help to give me some quality of life.

I can sympathise with your experience of piriformis syndrome, as it's often part and parcel of the condition I have as well. I have found my tens machine reasonably useful for this - it'll not make a dent in your overall pain levels, but at least one less nerve is squealing for a couple of hours each day!

If you like, I can post the positions the electrodes need to be in for piriformis syndrome, if you fancy giving it a go.

Sorry I can't be of more help, and welcome to Ouch Too  >welcome<

ditchdwellers

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Re: Advice about Butrans patches
« Reply #4 on: April 23, 2014, 01:49:59 PM »
Hi Marina,

I use fentanyl patches and sometimes they irritate my skin.  I find the irritation can be worse depending on where I place them.  I can't put them on my torso, but find my arms to be not too bad.

Finding the best form of pain relief can be frustrating and hope you find something that helps soon. 

Don't write off the pain management programme.  I went on one and I don't have depression and found some of the content very informative and helpful.

Marinab43

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Re: Advice about Butrans patches
« Reply #5 on: April 23, 2014, 03:36:45 PM »
Dear all
Thank you for taking the time to reply to me. I really appreciate it as I don't know anyone in this position who I can talk to.  My husband and mum are great and support me but they too are at a loss of what I can do. My GP is also good but it's difficult to get in to see him. But you've all given me pointers to suggest to my GP when I next see him. The last time I saw a GP (not my own) I had to go through the whole history (even though my notes were in front of him!) and he said 'well, what do you suggest I prescribe?'....  >doh<
I can't believe manufacturers haven't been able to come up with an alternative to the glue - I'm not actually allergic to normal plaster but my GP says he sees this all the time and it's just a shame as it us a really good method of pain relief.
NeuralgicNeurotic thanks for your advice re: TENS. I've also tried with to no avail. The Physio had me sitting on the sofa with a tennis ball under my bum cheek! Hurt like mad but felt good if you know what I mean?! I'm currently taking Pregablin, oxycodone and amitriptyline. I have  good and bad days like everyone else - just want to try and manage my pain better rather than treat it as I am at the minute
Cheers and thanks again
Marina xx   ;-)

auntieCtheM

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Re: Advice about Butrans patches
« Reply #6 on: April 23, 2014, 06:22:57 PM »
Dear Marina, hello.

Do not dismiss the pain management course.  I went on one of those and there were some really interesting parts and some irrelevant parts.  Take what you need and ignore the rest, I say.

One thing,  can I ask you please to edit your posts so that there are small paragraphs with a blank line inbetween.  Some of us find it hard to concentrate on or even read large areas of writing.  Thanks.

Marinab43

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Re: Advice about Butrans patches
« Reply #7 on: April 23, 2014, 10:55:10 PM »
Ok sorry. Some forums complain posts are too long because of gaps. Didn't realise. Will space properly next time. And hopefully my posts won't be that long!  >doh<  >biggrin< >biggrin<

auntieCtheM

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Re: Advice about Butrans patches
« Reply #8 on: April 23, 2014, 11:28:04 PM »
 >hugs<

devine63

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Re: Advice about Butrans patches
« Reply #9 on: April 24, 2014, 12:19:20 AM »
Hi Marina

I don't have personal experience with pain but i wonder if your GP has referred you to a pain management clinic or a pain management specialist?  If not, that could be something to suggest.
regards, Deb

Marinab43

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Re: Advice about Butrans patches
« Reply #10 on: April 24, 2014, 10:57:14 AM »
Hi Deb
I did attend an assessment to see if I was eligible to get a place at a pain clinic. The dr I saw focused completely on my state of mind. I told him I wasn't in any way depressed just experiencing chronic, long term pain which I wanted help managing.

At the end of the assessment, he said he didn't think I was a suitable candidate but would offer me a place on a 'how to get better sleep' clinic which was along the lines of meditation.

I didn't want to take up the place as it didn't appeal to me (attended lots of these workshops through work) so declined so that someone else could have the place.

His parting shot was 'have you tried taking a paracetamol for your pain'.....  >erm<
My GP said the clinics usually just try to get you off all meds except paracetamol.  So the referral left me a little underwhelmed and back to the drawing board I sloped...

Thanks anyway
Marina x

NeuralgicNeurotic

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Re: Advice about Butrans patches
« Reply #11 on: April 24, 2014, 12:00:18 PM »
NeuralgicNeurotic thanks for your advice re: TENS. I've also tried with to no avail.

You're welcome, Marina, and I'm sorry to hear that you've had no relief using TENS.

In case it would be of benefit to anyone else reading the thread, I'll post the electrode positions I use for piriformis syndrome:

The TENS machine I have has 2 leads, and a total of 4 pads.

1 electrode is placed next to the greater trochanter of the femur, and the matching electrode next to the lower side of the sacrum.

1 electrode more or less in the middle of the upper buttock and the matching electrode next to the upper side of the sacrum.

I like to use a continuous setting at 100hz and an interval of 200ms, as strong as I can stand it, for at least 2 hours. Lower frequency settings make my muscles twitch - not good!

Quote
His parting shot was 'have you tried taking a paracetamol for your pain'..... 
>doh<   

Fizzbw

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Re: Advice about Butrans patches
« Reply #12 on: April 24, 2014, 05:39:09 PM »
I was also very allergic to a butrans patch, and very intolerant of the drug in general. I use fentanyl patches and have no issues with them other than they tend to come off, so I put a Oposite dressing over them and that's fine. With the duragesic the fent is in the glue itself.

I also have been on a residential pain management course and it was fantastic even though I wasn't a great "fit" for the course. As they are only 5 miles away I continue he to work with them over the years, all very helpful stuff but not a cure and not always easy.

Best of luck with it all, and get a better GP.....

Fxxx


devine63

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Re: Advice about Butrans patches
« Reply #13 on: April 24, 2014, 08:36:39 PM »
that sounds like poor service Marina, sorry to hear it!
regards, Deb

Dic Penderyn

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Re: Advice about Butrans patches
« Reply #14 on: April 24, 2014, 09:55:15 PM »
Quote
His parting shot was 'have you tried taking a paracetamol for your pain'

I think the proper response to that is no doctor have you ever tried emptying a swimming pool with a teaspoon?
Be careful in what you wish for, God has a sense of humour