Author Topic: Vitamin D defiency and Fibromyalgia too.  (Read 4362 times)

Sunshine

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Vitamin D defiency and Fibromyalgia too.
« on: November 02, 2014, 12:03:57 PM »
I had a blood test on Wednesday and got a phone call with the results on Thursday. Everything was okay but I have a Vitamin D deficiency and my GP has written me a prescription to correct this. I ask what my level was at and it is 13 on a scale which starts at 24  >yikes<. I Googled for more information and discovered low vitamin D is associated with Fibromyalgia and the deficiency itself can cause joint, bone and muscle pain, and also muscle weakness.

I mentioned the results of the test to a few people and they all said it is because I  don't go out in the sunshine enough (kind of ironic given my name here). I was somewhat baffled because while I dont go out and about as much I am in the garden a lot. The I realised I have been using sunscreen this year because I was getting sun damage on my forehead and chin.

Hmm I guess I will just have to see if high doses of Vitamin D make a difference. If the Fibro symptoms are much reduced I will definately be doing a happy dance.

ditchdwellers

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #1 on: November 02, 2014, 01:01:09 PM »
I'm vitamin d deficient too and have been taking prescription high dose supplements for a couple of years.  My rheumatologist mentioned that it is supposed to help pain levels but he is sceptical about it,  and I have to agree.  I have not noticed any improvements at all,  but that may be because my EDS has deteriorated and I'm unable to say whether the supplements have helped or not.

I'm mainly taking them to protect bone density as i went through a premature menopause and I don't want to end up with osteoporosis on top of everything else!

I hope they help you and you get some benefit from them.  It will take quite a long time before you notice any changes.

Dic Penderyn

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #2 on: November 02, 2014, 01:08:17 PM »
Actually to get sufficient Vitamin D in the normal way only requires a short time in direct sunlight and only slightly longer outside on cloudy days. If you are difficient in vitamin D its not likely due to not spending enough time outdoors it's more likely to be a physiological problem. Low vitamin D also is a factor in bone and also neuromuscular conditions such as MG I have been taking Adcal-D3 for quite some time now on prescription.

 

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neurochick

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #3 on: November 02, 2014, 01:44:39 PM »
To get enough sunshine in the UK so that your Vitamin D levels are in the normal range would require you to be in direct sunlight with your arms and legs exposed for around 20 minutes every day without sunscreen.  For most people it is practically quite difficult to achieve this.  It is impossible to get any Vit D from sunlight in the winter in the UK but where you live influences the number of months when you cannot get enough sunlight as does your skin tone.  The further north you are, the shorter the season where you can obtain Vit D from sunlight.

The prescription supplements are very good and provided you have been prescribed a high enough daily dose of International Units, all other things being equal your levels should increase to what is regarded as normal relatively quickly.  It is always worth getting Vit D on prescription because they contain compounds that are proven to be effectively metabolised and OTC supplements are a lottery.  Many of them don't contain enough vitamin D to make a difference, it can be hard to ascertain what the precise compound is and so they are too often a waste of money.  Athletes and people who are very sporty or physically active are often recommended to aim for a significantly higher level of Vit D than the normal population so if that applies to anyone here they need to get specialist advice.

ally

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #4 on: November 02, 2014, 02:20:23 PM »
On reading these posts I decided to look at one of the newly prescribed tablets I've been taking from the hospital.  On my own decision I decided to cut back on the pain killers.  I managed to reduce the oxynorm by 20 mg.  However,since my accident I'm back up again, and I've also had new drugs introduced to the mix.  One of them is colecalciferal which is a mixture of vitamin D3 and calcium.  This is to help my bones as I now have oestoporosis.  I take one tablet on a Monday Wednesday and a Friday.  I can't say I've noticed any difference nor have I had any side effects.  It would be a good idea for anyone wanting vitamin D or other supplements to ask for a prescription from your GP. It seems I've inherited everything my mum had such as exactly the same spinal problems now the hip fracture and the oestoporosis.  Its uncanny as everything I have wrong is identical to hers.

Dic Penderyn

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #5 on: November 02, 2014, 02:47:18 PM »
I have to take Calcium and vitamin D along with Alandronic Acid to protect my bones as am on Prednisolone long term it also helps with my MG it's self. Most of the women in my family have suffered with  oestoporosis. over several generations.

For more info on vitamin D  http://www.nlm.nih.gov/medlineplus/ency/article/002405.htm
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ditchdwellers

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #6 on: November 02, 2014, 04:30:38 PM »
Ally, it's the cholecalciferol that I take too.

My rheumatologist said that a lot of people in the UK have some sort of deficiency for vit D and recommends that everyone should take a supplement during winter months.

Otter

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #7 on: November 02, 2014, 08:58:30 PM »
Sunshine, my GP has put me on massive doses once a month for 3 months at the moment and you are right it helps hugely with any joint pain. Otter

auntieCtheM

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #8 on: November 02, 2014, 10:07:56 PM »
Wonderful.  My GP has just changed my calcium prescription to include Vit D. 

Osteoporosis is a dreadful thing to have.  My stepmother has this and they keep finding bones that were broken months before.  Please do take care of yourselves if you have this. 

Dic Penderyn

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #9 on: November 02, 2014, 10:33:08 PM »
As I said above most of the women in my family get Osteoporosis at some point non of us men folk have so far mind you that could be because non of them have lived long enough to show signs of it me being the oldest living now at 64.

My daughter has been diagnosed with Hyper Joint Mobility, Fibro Myalgia, Pernicious Anemia and now Nodular Prurigo.

Her consultants have recommended calcium and vitamin D  supplements but so far her GP has not been willing to prescribe them God knows why in fact her doctor suggested she buy some over the counter. Though that doctor is no longer with the practice so have told her to try again.
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Sunshine

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #10 on: November 02, 2014, 11:05:30 PM »
Thank you for the replies so far it is helping me get my head around the test results and what they could mean. It sounds really molly but I have been ill, debilitated and and in pain for so long the idea that a simple solution such as taking Vitamin D could help is bringing me close to tears...

I am going to have to make an appointment with my GP and ask what my Vitamin D level was over the last few annual blood tests, but I will give it a few weeks of me taking the medication first. I am also going to be taking in Mondays, Wednesdays and Fridays for 7 weeks.

The amounts of sunlight people posted about being a minimum should have easily been met with me outside throwing a ball for Megs throughout the summer and I mostly forgot to wear sunscreen on my arms and got a bit of a tan on my pale skin.

The possibility that I could get Osteoporosis terrifies me because having CP means I have jerky movements and clomp about so I have always been hard on my bones and joints. Hopefully having a GP who is interested and reads up on Fibromyalgia, specialises in women's health is going to keep me as well as I can be.

My aunt has Pernicious Anemia and ME and one cousin has Menieres Disease another ME so I do wonder about what more my Mum had given she was in so much pain all the time and got so she was in bed most of the time.

 >bighugs< to all including Dic's daughter.

Dic Penderyn

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« Last Edit: November 04, 2014, 06:43:22 AM by Dic Penderyn »
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NeuralgicNeurotic

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #12 on: November 04, 2014, 09:20:25 AM »
It sounds really molly but I have been ill, debilitated and and in pain for so long the idea that a simple solution such as taking Vitamin D could help is bringing me close to tears...

That sounds like a perfectly normal reaction, and not molly in the least.   >bighugs<


 

Sunshine

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #13 on: November 04, 2014, 09:48:33 AM »
Dic,

Good link  >thumbsup<

The key question is going to be working out if the people with vitamin D deficiency have a malfunction in the patient's bodys ability to absorb and maintain levels of vitamin D. It would be wonderful if increase vitamin D intake was found to improve the symptoms of people with neuro muscular disease.

NN,

 >spoonarmy<   >bighugs< I think blood test result is the first time I had a black and white medical diagnosis since I broke my leg.

Dic Penderyn

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Re: Vitamin D defiency and Fibromyalgia too.
« Reply #14 on: November 04, 2014, 01:20:30 PM »
Melody went back to doctor's surgery today they still won't prescribe Calcium and Vitamin D supplements as they say over the counter supplements are as good as the prescription ones  >doh<

I am on prescription Adcal -D3 from the same docors.  >confused<
« Last Edit: November 04, 2014, 01:26:47 PM by Dic Penderyn »
Be careful in what you wish for, God has a sense of humour