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Forum => Welfare Rights => Topic started by: Fiz on 10 May 2016 01:06PM

Title: The dreaded DLA to PIP transfer
Post by: Fiz on 10 May 2016 01:06PM
Well that letter that I thought might arrive in June because my DLA award ends in September arrived today. I took 15mg diazepam before making the phone call leaving time for that to work but I was still shaking and stuttering, I really don't cope with phones well. I managed to answer all her questions and I should receive my PIP 2 form within two weeks. She said I don't need to gather evidence from my GP, my CPN or my Consultant Psychiatrist, that they do it, is that correct?

As soon as I got off the phone I was sick, just anxiety I think.
Title: Re: The dreaded DLA to PIP transfer
Post by: Hurtyback on 10 May 2016 05:59PM
Oh Fiz!  >hugs<


The assessors seldom contact the claimant's medics, so you should submit whatever you have in support. Don't forget to send copies and keep hold of the originals (prolly teaching my grandmother to suck eggs, but have recently spoken to someone whose form got lost, had not taken a copy of it and had sent all original documents in - also without keeping copies!  :-( ).
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 10 May 2016 06:07PM
Fiz >hugs< >hugs< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 10 May 2016 10:43PM
Hi Fiz
the DWP are meant to contact your doctors but often don't so if you have up to date information use it
Also you only get 2 weeks to return the form and it takes 6 working days for the returned form to make it through the mail room system so before the return date ask someone to phone and ask for an extension - they normally grant another 2 weeks, I often ask for an extension just when I am returning the form because of the situation with the post.
Good luck
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 18 May 2016 03:54PM
It arrived today and I'm not doing well at the moment so I'm not sure how I can fill the form in but I will do my best. My cpn is visiting me tomorrow so I will ask her to phone and request the extension which should relieve some of the pressure. She has no idea how to fill the form in itself. I have care and crisis plans to enclose, hospital discharge letters, letter saying I'm released from my section etc. all of which I must photocopy at the library at 40p per sheet!

I have looked through it, in stages because I couldn't concentrate long and I think my problem is going to be how frequently ...

I have recurrent depressive disorder and a low can last between a week and six months solid, and occasionally I will have a 2 month gap between lows when I am fairly stable. So if when I'm low I don't, undress, wash or eat more than once or twice a week if pushed, how frequently is that? It can be daily for months but also not at all for a couple of months. As I am honest to a T I know I'm going to stew over this and veer towards the more able than I really am just to be sure iykwim.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 18 May 2016 08:51PM
Hi Fiz
Can your cpn make a list of the periods when you were very bad and that would show when you were good, but isn't good relative - your version of good could be someone else's terrible or catastrophic

hugs
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Hurtyback on 18 May 2016 10:56PM
Fiz, would your CPN be able to get some of your documents copied?
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 19 May 2016 07:03AM
Hi Fiz
Can your cpn make a list of the periods when you were very bad and that would show when you were good, but isn't good relative - your version of good could be someone else's terrible or catastrophic

hugs
Monic

I had thought of asking my GP how many admissions to A&E or hospital I had within the last year, I'd hate to hazard a guess at the amount of attempts I made on my life in 2015, it was definitely my worst year. There would also be records of seeing the wound care nurse for various forms of SH.

I don't think they not my ups and downs at CMHT, I've had that conversation before. I've been keeping a mood/psych diary during 2016 and you can see an improvement on last year but still many many days and weeks which I've scored only 1 or 2 out of ten. I've also noted the times I've not been able to eat or wash etc. which has happened from time to time this year but again, not as bad as 2015 has been for me.

I'm not good at the moment, that was even before the ruddy PIP form arrived, so my GP is insisting on seeing me weekly and has asked me to request the same from my cpn. Gah, I just don't cope with any form of stress in any shape or form.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 19 May 2016 07:09AM
Fiz, would your CPN be able to get some of your documents copied?

That is actually a fantastic idea. She'd not even need to do it herself I'm sure. The admin ladies at the CMHT are all lovely, I'm sure one of them would copy stuff for me if my cpn primed them that I'd be asking at some stage. I will ask her that today. I'd be very surprised if she said that wasn't possible.

Thank you both, good plans. I'm at my best first thing in the morning so I'm going to try to do a page or so of this form each day if possible, it will help if I get this extension. If you ask for an extension do they confirm that in writing or by text? I'd hate for them to deny they'd ever given me one and for me to miss the original deadline.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 19 May 2016 07:42AM
Hi Fiz, the dwp don't confirm an extension I normally write the new date on the letter though.  >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 19 May 2016 09:02AM
Fiz, would your CPN be able to get some of your documents copied?

That is actually a fantastic idea. She'd not even need to do it herself I'm sure. The admin ladies at the CMHT are all lovely, I'm sure one of them would copy stuff for me if my cpn primed them that I'd be asking at some stage. I will ask her that today. I'd be very surprised if she said that wasn't possible.

Thank you both, good plans. I'm at my best first thing in the morning so I'm going to try to do a page or so of this form each day if possible, it will help if I get this extension. If you ask for an extension do they confirm that in writing or by text? I'd hate for them to deny they'd ever given me one and for me to miss the original deadline.


Sounds like a plan, Fiz. Best of luck >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 28 May 2016 09:04AM
Well I had diaried in completing the PIP form today but I'm in a bad bout at the moment generally and am in tears most of the time either because I'm low or because my anxiety is unbearably (to me) high. I don't think I can do it today but it needs doing.

I have got photocopies of all my evidence, and I did the self test on benefits and work writing down the questions and recording my answers which should help with wording it so they get a full answer to what they are wanting to know. I went through it all with my CPN and she's agreed with all my answers. It's not just the form, but it's giving me the hebejeebies and I can't face it. The anxiety is making me cry. I've taken a diazepam in the hope that will calm me enough so I can do the form. I know I will feel better when I have got it finished and in the post.

My CPN phoned and they've given me the 2 week extension.  >crying<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 28 May 2016 11:02AM
 >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Hurtyback on 28 May 2016 05:31PM
I've glad you have got the extension Fiz - although I know you will feel better when you have got this done and it is no longer hanging over you  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 29 May 2016 12:30PM
I've done it and it's all in the envelope ready to post on Tuesday. I know it's postage paid but I want to send it recorded so I can prove it got there so I need an open PO. I've copied it all for me to keep too. Even though I'd gone through the questions and answers on -B&W and taken notes before this, it was still incredibly difficult to do. I've reread it and there's a ton of grammatical errors caused by my lack of ability to concentrate and exhaustion but I don't give a monkeys, my answers are clear enough. I am totally and utterly ready to drop now. Half way through I was tearful and thinking I'm not well enough to fill this in, the irony!

I feel sick now and I'm shaky. I've said I'd need a home assessment and a female assessor. I take 13 different medications daily, I knew it was a lot, but not that much. I have wine in the fridge and badly want a glass but it's too early really. It would help me calm down though, I've had my daily diazepam quota.

I need somewhere to slump now.

Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 29 May 2016 04:20PM
Well done for getting the form completed. I hope that this evening and tomorrow are restful for you.  >star< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Jun 2016 06:52AM
It's posted. I worried all day yesterday whether I'd answered each question as fully as I could have but am trying now to put it out of my mind as worrying won't help me. How long will it be before I hear anything from them now? I had a text from them a couple of days back saying that they haven't yet received my form and if it doesn't arrive on time my DLA will stop immediately. I assume that text is sent out to everyone regardless of whether or not they've asked for the required extension. My original return date was June 10th and mine should meet that anyway.

Also how long does a symptom have to have affected you before you can claim for that? I'm thinking it's something like 3 months? Or is it 6? I've had extreme fatigue to the extend it's difficult to get out of bed, negotiate stairs and I go days without food due to fatigue preventing me from preparing in but I didn't mention this because this only seems to have been bad the last 3-4 weeks and I didn't think that length of time met their criteria.

Thanks.
Title: Re: The dreaded DLA to PIP transfer
Post by: Noisyworld on 01 Jun 2016 10:59PM
That is a very good question Fiz, I have no idea. Hopefully someone else knows more about this than me (or you could ask on B&W).
I suppose it depends on whether the fatigue part of your existing condition?

I know the feeling so I really hope you feel a little more with it soon >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 02 Jun 2016 01:04AM
My GP thinks it's malnutrition due to my bulimia, which as a condition was diagnosed January 2015 though I've only had this extreme fatigue a few weeks.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 02 Jun 2016 12:35PM
Quote
Also how long does a symptom have to have affected you before you can claim for that? I'm thinking it's something like 3 months? Or is it 6?

The GOV.uk site points to the Equality Act definition of 'substantial and long term', ie. lasting for more than 12 months.

https://www.gov.uk/pip/eligibility

https://www.gov.uk/definition-of-disability-under-equality-act-2010


Quote
My GP thinks it's malnutrition due to my bulimia, which as a condition was diagnosed January 2015 though I've only had this extreme fatigue a few weeks.

 >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 04 Jun 2016 07:50AM
I got a text yesterday saying they'd received my form and that they'd let me know if I need to have a face to face. I'm hoping not as I will find that so hard. Am I right in thinking almost all PIP applicants have to have a face to face though?

I like the text updates, I just hope they don't phone me!

I think my ESA is up for renewal shortly too.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 04 Jun 2016 08:40AM
If there is enough evidence to make a decision then they won't call you for a medical but you need to read the decision as sometimes it's a lower award because there was no medical.  Good luck
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 11 Jun 2016 09:33AM
Yesterday while looking in my barely used handbag for my PDSA agreement (poorly cat) I came across he forms from when I was inpatient. It states how high risk I am and remain high risk on discharge and am not suitable for discharge from services. It says little else that the other paperwork I've already sent it says. Is this important enough for me to send in at this late date? To be honest everyone is certain I should be awarded enhanced care so I don't think this will make any difference.

There is divided opinion about whether I will be awarded standard mobility due to my PTSD and anxiety. Professionals think I should get it but the DWP may think not, and I have to consider if it is worth appealing if they say not to that. I barely go out now. I no longer go to CMHT, they come to me.

I'm thinking these papers aren't really needed for the application already in progress?
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 11 Jun 2016 09:37AM
Fiz, if you've already sent written evidence that practically mirrors the above, I wouldn't bother for the time being - especially with the DWP's tendency to lose odd pieces of mail  ;-)

Sorry I hadn't got to this thread before - wanted to wish you every bit of luck for the right decision  >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 11 Jun 2016 09:41AM
Thank you. It's horrid waiting, and my ESA is due for review straight after as it's been 3 years this summer since my last review and I think I'm right in believing that 3 years is the longest ESA award given so that'll be next.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 11 Jun 2016 10:40AM
 >hugs< >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 11 Jun 2016 05:33PM
Fiz
ESA will probably use the PIP decision to make a decision on the ESA especially if its enhanced daily living and enhance mobility
best wishes
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 12 Jun 2016 08:39AM
With the mobility we think I qualify for standard mobility, the DWP may disagree but I've not had my current more severe mobility problems long enough for the enhanced rate to be considered. So it will be whether to appeal a no mobility DWP decision choice if that happens.

What's the usual average length of time for them to make a decision or write about a face to face?
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 12 Jun 2016 06:31PM
What's the usual average length of time for them to make a decision or write about a face to face?

It can depend on how quickly atos/capita take in your area but 13 + weeks is the norm
sorry
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 13 Jun 2016 07:01AM
That is useful to know Monic, thank you. That is at least before my DLA award end date of September this year but I would hope that the DLA would continue beyond that if there was any delay not caused by me.

 >tah<
Title: Re: The dreaded DLA to PIP transfer
Post by: Hurtyback on 13 Jun 2016 10:24AM
That is useful to know Monic, thank you. That is at least before my DLA award end date of September this year but I would hope that the DLA would continue beyond that if there was any delay not caused by me.

 >tah<


Yes, DWP will extend your DLA award until the PIP decision has been made (as long as you have conformed to the time scales set down by DWP). The PIP decision comes into effect 1 month after it is made, DLA continues until then.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 13 Jun 2016 06:21PM
Thank you Hurty.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 17 Jun 2016 12:50PM
The dreaded letter came today saying my f2f is 28th June at an address 33 miles away. In the bit of the PIP form that said what special arrangements do I need for my f2f I said that I would need a home visit and a female HCP so to be sent so far away to an area totally unknown to me, having no car now etc freaked me out like you wouldn't believe. After a cry I took 10mg diazepam and once that was working I phoned Atos (I thought Atos had been replaced by Maximus?) and said that I would find it impossible to get there as I have no transport and due to anxiety rarely ever leave my town and only keep to a small part of it. She asked if I was housebound ie never ever leave my house to which I said no and she said that was the only criteria for a home assessment so I couldn't have one. She has made a new appointment to their centre that's 5 miles away (why didn't I get offered there in the first place?) 3 days later. She's requested a female HCP and I've chosen the first appointment of the day as the longer I wait the worse I get.

I asked her if I needed to bring evidence from my GP and my psychiatric team or would they contact them directly. She said they won't be contacting them so if I want to get evidence to bring along that is fine.

I am so stressed and tearful it's untrue. Last time someone from a local charity dropped me off outside the building and I texted when ready to be collected so I'm hoping she can do that again. I suspect I may be a heap. I may have to take a large dose of diazepam to get there and deal with the situation and I'm worried I won't be 'all there' whereas a female coming to my house would have had a more realistic picture of how I am on a daily basis. This is so stressful. How do I manage if I have to take sedatives?
Title: Re: The dreaded DLA to PIP transfer
Post by: Minniehaha on 17 Jun 2016 02:37PM
Fiz, my heart goes out to you.  >hugs<  First of all you must get a supporting letter from your GP to explain why you need a home assessment. You are entitled to a home assessment and ATOS cannot say that, because you aren't totally housebound, they won't give you one. I'm in the very same boat as you and if ATOS had any awareness of anxiety disorders (which they clearly don't) they would know that, because anxiety is an unpredictable and fluctuating condition (which PIP is supposed to allow for) it's quite feasible for a sufferer to be able to attend a familiar location one day but not the next, to be able to travel within your 'comfort zone', such as your home town, but find it impossible to attend an unfamiliar location - especially with the added stress of undergoing an assessment by someone who may have no expertise in mental health issues. Throw into the mix difficulties with transport and/or finding someone who can accompany you and the situation becomes a complete nightmare! I have a letter sent to my MP in 2012 from Mark Hoban, then a minister in the DWP, which clearly states that assessments can be carried out at home and I'd be happy to send that to your ATOS office if you wish.

I once wrote a letter to ATOS regarding an assessment for ESA which they insisted I attend. I told them that, while I've never suffered from paranoia, I felt that they were persecuting me (I guess they consider people with mental health issues to be easy targets) and said wild horses wouldn't drag me to that assessment centre - that, combined with Mark Hoban's letter, did the trick and a decision was subsequently made without my having to be assessed at all.

ATOS carry out PIP assessments in various parts of the country, the rest are undertaken by CAPITA who will grant a home assessment request without quibble. I'm fortunate to live in an area covered by CAPITA. I believe that MAXIMUS are responsible for ESA only and they are the ones I'm taking on for a home assessment at the present time.

Best of luck to you!
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 17 Jun 2016 04:34PM
I don't have any fight in me. Someone has offered to come with me but I know that I will hold myself together for the appointment then fall apart as soon as I leave the building, I don't deal with stress well. And I hate people seeing me crying especially when I'm very distressed. Only a tiny bit of me thinks I should accept because there's a bridge near there that I nearly jumped off once, it's infamous for it unfortunately. I don't think I'm at risk though, it will be very stressful and I am expecting to be in a state afterwards but I won't know the answer or result so I just need to hang on. I really don't know what to do.


edit to add triangle :-)
Title: Re: The dreaded DLA to PIP transfer
Post by: Minniehaha on 17 Jun 2016 05:14PM
Please don't let them bully you into giving up, Fiz. If we can persevere in challenging the unfairness of the ESA procedure we might eventually bring about some changes for the better.  If you can't bring yourself to take on ATOS why not ask your MP to get involved?

Take care. Xx
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 17 Jun 2016 07:16PM
Fiz >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 17 Jun 2016 08:58PM
Stay strong hun - Strength in Unity and No Surrender   >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 17 Jun 2016 10:22PM
Please don't take the diazepam if it calms you down enough to function because that's what they will see as normal. your distressed state may have to be seen _ I know you don't want folk to see you like that but if they wont provide a home assessment then you have to show the true picture of what you are like if you have to go out.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 18 Jun 2016 07:17AM
I did wonder that Monic but I can get so all I can do is cry and not talk at all, I wouldn't be able to answer any questions without diazepam. I take diazepam to leave the house normally. I'm glad I've got a lift to the door, one less thing to worry about. I also think I might have to take a sick bowl in a bag because without diazepam anxiety can make me sick, literally. I've got the grey cardboard nhs ones so could take one of those.

I'm definitely going to the assessment as I can't financially afford to live without PIP and that's half of what makes it so scary.  I'm also worried that although they've agreed I can have a female HCP that it won't be sorted and it will be a male and I will never go into a room alone with a male. I can't even see a male GP. Then they'll say I'm refusing the assessment.

I'm actually pleased it's happening soon, the worry and stress is awful. I just want it over with.
Title: Re: The dreaded DLA to PIP transfer
Post by: Minniehaha on 18 Jun 2016 08:56AM
I'm just so angry! Not with you, Fiz but ATOS, DWP and the whole damn procedure for claiming benefits ... that they can drive already vulnerable people to such worry, stress and anxiety is unforgivable. >angry<
Title: Re: The dreaded DLA to PIP transfer
Post by: Noisyworld on 20 Jun 2016 12:25AM
Fiz- do you have any paperwork to back this up?
Quote
Only a tiny bit of me thinks I should accept because there's a bridge near there that I nearly jumped off once,
I personally think (in absolutely no official capacity or with any inside knowledge) that this is a valid reason for you requesting a home visit, they should not put you at risk of harm if that bridge is nearby- i.e. for repeats of the incident or relapses of your PTSD.

Also you need to take with you a letter from a professional which SPECIFICALLY says it MUST be a woman, if a man is sent out into the waiting room to get you, you can wave it in the air (and under their nose) and refuse on medical advice. The same applies for a home visit.
I so, so hope you can make it through this without setbacks. The change from SDA to ESA messed with my head and I didn't have underlying mental health issues :(
 >bighugs< >bighugs< >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 20 Jun 2016 07:09AM
Yes I do have evidence, the discharge letter from hospital says I was brought in by ambulance from the bridge having taken a mixed overdose which I'd taken because I'm not a great fan of pain and I was expecting that I'd have a minute or two of it. I overdid the amount though because I have slight memory of a paramedic sitting me down on the bridge, a brief memory of the ambulance woman wrapping me in foil saying I was cold and then no further memory until 24-36 hours later when I was very wobbly and couldn't walk. That was 20 months ago but it was one of two occasions when I was close to succeeding. I'd not thought about that being a reason for a home visit but it's true that I worry about being so close to it when stressed. The woman on the phone said that because they've changed my appointment from one a county away to one in my nearby city, that I am only able to change the appointment once so can't change it again for any reason.

I'm dropping a letter in to my GP surgery today to ask for an evidence letter, she knows everything about how all my diagnoses affect me, mentally and physically but she only works Wed and Thurs so she'll need to get the letter done this week as my appointment is next week which will be tough for her because her surgery starts with appointments at 8.30 and the last appointment is officially 5.30 but she over runs in both her morning and afternoon surgeries so has no gaps. I think an appointment with such short notice is better for me stress wise but not fair on the professionals especially when the PIP claim form specifically says that they will request evidence from the professionals you name which turns out to be rubbish. Had the form told the truth that it was my job to get their evidence I'd have started the ball rolling from the start to reduce the pressure on the professionals.

I've spoken to two local people now who's first appointment offered was the centre a county away and they both had to change theirs to the local centre. I think ATOS deliberately offer you a place hard to get to because if you get there you've proved anxiety and/or mobility aren't a problem. It's too much of a coincidence for that to have happened to all 3 of us. Trouble is that means we use up our one and only allowed change of appointment changing the venue to an accessible place. So there's no leeway to be ill on the day or anything.

11 days to go.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 22 Jun 2016 07:31AM
I barely slept last night for worry ad with 9 days to go that's not good. At this rate I won't need diazepam I will be sat there like a zombie wondering what the heck is going on. I'm panicking because I can only find one of the 2 acceptable things needed for ID. I have a drivers license despite not driving at present but I can't find an HB letter for love nor money is this chaos. Though it's not listed, will a bank statement do?
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 22 Jun 2016 09:11PM
Yes the bank statement should do - it has your name and address on it
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: ATurtle on 23 Jun 2016 04:18PM
I now it's easier said than done, but it's finished, and you just have the easy(ish) part of getting it posted so you can relax a bit.  I can't remember if you have family, friends or a PA you can trust to send it for you, but you do not have to do that part in person. 

I don't think there's much point in registered post for DWP mail, it all goes to Preston (If I remember correctly) and then shunted to where it has to go.  All it proves is that you posted it and it got to the DWP's Mail Handling Centre, it doesn't mean it will get to the place it has to after that.  I have had a registered letter lost in the system myself.

When it has gone, do not worry about grammatical or spelling errors, you can't help brain fog when writing or during school days or since.  The DWP should be OK as they have had plenty of practice.

I just hope you do get a female f2f, if not, complain!
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 28 Jun 2016 10:16PM
Good luck for Thursday, Fiz. I'll be thinking of you. >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 29 Jun 2016 06:36AM
Thank you. It's first thing Friday morning. I am very nervous. I'm seeing my GP in a couple of hours time and she'll have written a supporting letter. Seeing my CPN this afternoon, hopefully she'll have remembered to do one too.

I'm already shaky and feeling really nauseous due to anxiety and it's 2 days away. Goodness knows what I'll be like on Friday. I've got a really bad painful UTI and I'm on a 7 day course of antibiotics but the pain should have gone by then hopefully and the 6 or so loo trips an hour will have finished. As I've changed the venue to my local one I'm not allowed to change the appointment again for any reason so I can't be ill on Friday.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 29 Jun 2016 07:19AM
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 29 Jun 2016 04:20PM
My GP letter is fantastic, really comprehensive and my CPN letter was much shorter but good too and backs up what the GP has said. I find myself feeling more hopeful now, but I know that if I'm hopeful and it comes to nothing I tend to crash so even the feeling hopeful is scaring me.

Does that make sense?
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 29 Jun 2016 07:50PM
Yes it makes perfect sense, Fiz >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Noisyworld on 30 Jun 2016 11:46PM
Fiz- I know that feeling well :-(

I hope you managed to get some sleep
Absolutely best of luck for the morning, imagine yourself wearing armour and that nothing can hurt you :)
Remember to stand your ground if they don't have a woman to see you.

Lots of luck >x-fingers< and here's a hug in case you need one  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Jul 2016 04:12AM
Thank you. I managed about an hour's sleep and have given up now. I have my GP and CPN letters to copy because I expect they will take them, and I'm taking medication with me to take if I have to before or during the appointment but if not then I will definitely need to afterwards because I tend to hold myself together and fall apart afterwards. I need to take water so I can swallow them. I'm going to note things down if I feel I need to during the appointment and on the paper I'm taking I have noted to remind myself to ask her what her name is and what qualification she has.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Jul 2016 07:00AM
I'm all ready now. I've taken an anti-emetic but still feel as if I'm going to throw up. I'm shaking too which will make me clumsy but I'm going to try not to take diazepam. I'm worried that the person giving me a lift to the door isn't leaving enough time because it's rush hour, I might be brave and ask her to come a bit earlier though I hate putting people out. I'm not sure how Atos take it if you're 5 or so minutes late but it's out of my hands really as I'm relying on someone else as I can't get there myself. I've had ESA assessments before ages ago but I don't remember being in this state then. Maybe memory fades. I'm trying to work out what I'm scared of and why I feel such panic, no one is going to hurt me. I'm worried about men in the waiting room but I'll just sit away from them and I should be okay if there's no anger or unpredictable behaviour there or I'm alone with a man.

I feel as if I should read through my PIP form but can't when this anxious and I'm telling myself that I was 100% truthful on the form and will be at the assessment so that won't matter. I just need to remember not to answer yes or no but explain my answer.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 01 Jul 2016 08:30AM
 >bighugs< >clover<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Jul 2016 01:13PM
Tis over. Nurse was nice but I know that doesn't mean anything. If I haven't heard the DWP decision in 6-8 weeks my cpn can phone for an update apparently but results are usually processed by then.

Am shattered now. Partly due to lack of sleep I'm sure, temazepam night tonight. I will update in a few weeks. Thank you everyone.
Title: Re: The dreaded DLA to PIP transfer
Post by: Hurtyback on 01 Jul 2016 04:55PM
I'm so glad that this assessment is now behind you. Hope you sleep well tonight  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 01 Jul 2016 05:17PM
Have a good rest, Fiz. You deserve it. >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Noisyworld on 03 Jul 2016 01:32AM
Well done Fiz for getting through it, I hope their decision goes the right way >thumbsup<
Best of Luck for lots of sleep >zzz<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 04 Jul 2016 07:07PM
One question.

When is the starting point for any PIP award when transferring from DLA?

I know if it's your first claim it's from the date you phone up for the form and any award is backdated until then but I assume it's different with a transfer from DLA because if your new award is lower or nil, you'd end up owing the DWP for the DLA you've received from that point. Logic tells me the date of any transfer to PIP award would be the date the DWP make their final decision on any PIP award. I'm just worried I'll have to pay money back that I don't have.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 04 Jul 2016 08:44PM
Fiz
any award is from one month in advance of the decision date, if they take it away from you then its from the decision date that your money stops.
you  would only owe them money if they decided that you were never entitled and want all the money paid to you back, if that every happens you fight it all the way.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 05 Jul 2016 04:30PM
Thanks Monic, I'm running behind with my rent so the thought of handing money back was giving me the hebejebies (sp? )

I had a text around lunchtime today from the DWP saying they now have all the information they need and I will receive a letter once they have made their decision so it sounds like things are moving quickly.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 05 Jul 2016 05:29PM
 >x-fingers< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: gorbut on 16 Jul 2016 12:20AM
My son had a letter saying the same thing but it still took weeks to hear anything else. We have just got back from a weeks holiday though to find a brown envelope that gave very good news as he has gone from HR mobility and LR care DLA to enhanced rate For both in PIP. This is what he should get as he has got worse since his last DLA assessment but nice to have it recognised without having to appeal. He has ME or Chronic fatigue syndrome as the Drs like to call it so something without tests that prove he is ill so we were not expecting things to go through so easily. So even if you don't hear anything for a while it doesn't mean bad news.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 16 Jul 2016 08:19AM
That's good to hear gorbut it's horrible waiting, we're entering the 3rd week waiting where she said results were usually 4-6 weeks but often can be sooner. So I'm watching for the post person daily.
Title: Re: The dreaded DLA to PIP transfer
Post by: gorbut on 16 Jul 2016 10:04AM
We were doing that before we went away. I had decided that if the letter came just before we went I was going to open it and hide it from him if it was bad news. Not really acceptable behaviour on my part as he is 27 but the fall out would have spoiled everybody's holiday. He now knows I was going to do this and said he would have forgiven me in the circumstances. I hope you get your letter soon.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 21 Jul 2016 12:49PM
A brown DWP envelope came through my letter box this morning. It was so thin it was obviously one slim piece of paper. I thought the only thing this could mean was a straight NO but felt even that ought to arrive with information on how to appeal any decision. I took some medication and lay on my bed until I was calm enough to open it and it was from the DWP. They said that although they had all the information needed to make their decision for my PIP application there was a delay in the decision making and they would write once a decision is made.

I'm still panicking though, why is my decision taking an unusually long time to make? I'm assuming my award if any isn't cut and dried and they are wavering between two things?

I wish they'd never sent this letter, I feel much worse. I was better off watching for the post person daily and finding it difficult doing anything else, now I'm doing that plus I'm extra worried.  >doh<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 21 Jul 2016 02:08PM
 >bighugs< >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 21 Jul 2016 05:26PM
Fiz - I know it's easy to say, but  >dontpanic< - knowing what I know from former colleagues about how it's been going at the DWP, my suspicions are that the delay is due to chronic staffing problems (not enough decision-makers) rather than anything to do with you personally...

All because our darling Government wanted to rush through the PIP transfers as soon as  >doh<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 21 Jul 2016 06:38PM
Hi Fiz,
Sorry to say that the letter you got today is a routine letter that only really lets you know that the dwp have the form but not enough staff to process the claims, it'll probably be another 4 - 6 weeks before you get a decision  >bighugs<

Sorry forgot to add that a refusal letter is at least 8 pages long as it explains why they made the decision on a points by points basis and has large paragraphs saying how they made the decision

Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 22 Jul 2016 05:06AM
That is really reassuring to hear Monic, I won't panic if another thin DWP letter arrives then. I was told that the decision takes 4-6 weeks from the face to face assessment and it's only 3 weeks ago today so I hadn't been expecting the result yet anyway so it seems weird them sending me a letter apologising for the delay when so far there hasn't been one! I am just so horrendously worried about money at the moment having stretched myself ridiculously trying to sort my garden out. I have for the first time ever used my credit card to the maximum and it will take me a few months to pay off so a drop in income would be disastrous. However having had a whole garden full of 10ft brambles since I moved here 6 years ago, it is now completely cleared, membrane laid and crushed concrete on top so no weeds will reappear before I can afford the sand and artificial grass so it won't go backwards because no weeds can reappear so it can sit and wait until I can afford the sand and artificial grass. It will be so nice to have the use of a garden and it will be totally maintenance free. But I shouldn't have pushed myself this much financially, but I'd have been so upset if we hadn't got to a stage where the weeds and brambles couldn't just regrow so get nowhere really. At least now it can happily wait for stage 3.
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 22 Jul 2016 11:17AM
I hope All goes well for you >x-fingers< I don't cope well with anything extra on top of my physical issues these days. Therefore, I think it's dreadful  that you have to suffer  more stress, anxiety, etc  heaped on top of what you have to contend with already.   >bighugs< For you, and anyone else that needs them
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 15 Aug 2016 06:14PM
I (diazepamed up) phoned the PIP helpline today as it's been 7 weeks almost since my f2f. Apparently no decision has been made as yet but the lady on the phone said she could see on the system that a decision would be sooner rather than later and it wouldn't be long until the case was closed.

The case being closed didn't give me an ounce of confidence.

And how can she see on the system that a decision would be soon?
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 15 Aug 2016 08:14PM

 how can she see on the system that a decision would be soon?
that just means the case is with the decision maker and has been for several weeks so should be near the top of their pile

deep breaths now - 13 weeks is average
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 18 Aug 2016 03:10PM
I've had a letter dated 16th August from my local authority, written by them the day after I phoned the PIP helpline telling me how much council tax I am being awarded due to "claimant being awarded personal independence payment"

So my LA knew the day after my phone call where the DWP didn't know. I've no idea if I've been awarded the right level. There's no way I can phone the helpline today, I'm so low I can't stop crying.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 18 Aug 2016 08:43PM
Fiz
please calm yourself or barring that find some chocolate / tea / wine - well maybe not that

what has happened is that your phone call has put your claim at the top of the pile, a decision has been made and an email sent to the local authority saying there is a decision to award PIP.  The council has logged into the DWP view only system and updated their accounts to make sure your getting the correct benefit.  PIP's computers will generate an 8 page letter and it gets posted to you second class so about 6 days to get to you.  The council will not tell you the award amount they need to wait on the paper decision arriving.
so probably Monday

take care
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: oldtone27 on 19 Aug 2016 05:42PM
Begs the question, why does it take the DWP eight or so days to issue the decision letter whereas Councils seem to be able to inform within two or three?
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 20 Aug 2016 06:20PM
Letter arrived explaining it all. They're certainly tight/mean on points! I can see so many people struggling to get it now at all. Filling in the online questionnaire on B&W answering all questions totally honestly I scored 36 for living. The DWP awarded me 16.

Mobility I got 6 so nothing and I think that truly reflects how I am, sometimes (a lot) not being able to travel but a few times I can. The DWP man was encouraging me to challenge the mobility score but it's something that fluctuates greatly for me so for the peace of mind of not thinking I should be notifying the DWP of any improvement, I'm okay with no mobility. So I'm not going to ask for a reconsideration although I think my GP would disagree.

Anyway, I'm happy with the decision on which part of PIP I should receive but the points they awarded were nothing like mine! This award is until June 2019. Overall, I'm happy and I have almost 3 years before needing to face this again. Unless I miraculously recover.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 20 Aug 2016 09:22PM
Three years is good - I don't know how long an average PIP award lasts compared with DLA, but it sounds like a decent breathing space.  Glad you got a decision you can live with  >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 20 Aug 2016 09:29PM
Hi Fiz
Enhanced daily living is the same as high rate care so you should get disability premium and enhanced disability premium on your ESA, a pip award gets you a disabled bus pass no matter what award,  as for the mobility if all we are looking for is another 2 points, it's a case of explaining that you cannot plan or follow an unfamiliar route without the assistance of another person, I know your reluctant to do this but a short letter saying you would like to know why they think you can travel to unfamiliar places alone when you are frequently unable to leave the house due to the trauma any social interaction causes you.

Obviously it's up to you but I would think it worth asking for an explanation
Best wishes
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 23 Aug 2016 12:50PM
 Fiz >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 02 Nov 2016 03:12PM
I had a lady from the council come to my house today to complete an application for DHP for me. We discussed my PIP award and she is certain that I should have been given the standard rate of mobility due to the pain I have in my back and how it affects acts of daily living even with the home. Even if you can walk at 'normal' pace to the local shops, if the whole of that walk is painful or you need strong painkillers to be able to make that journey, then the award should be made. She said she'd help me appeal but I think it's passed the time allowed and I simply don't have the mental strength.

Something to bear in mind when completing forms in the future though and I thought I'd mention it here because that info might help others.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 02 Nov 2016 09:57PM
Fiz, she is thinking of DLA criteria not pip criteria, go and read the criteria for 8 points and the see if you meet any of the criteria but if you are more than a month from the decision date then it's a late appeal and you'll need good grounds, but be sure as your risking the award you have.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 03 Nov 2016 04:40PM
Yes I was given 6 points for mobility in the PIP assessment and I'd no intention of questioning it. She's helped with PIP appeals though and has to date always been successful. She's in the process of switching from DLA to PIP herself. But when I did the online tests my results were either 6 or 8 so it's a close call and not one I will question.
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 23 Jan 2017 02:58PM
well just completed the wifes PIP form for the transfer fro DLA. It really is a depressing experience plus is it just me or are some of the question / answer sections skewed to get you to go for lower points scoring answer
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 23 Jan 2017 04:14PM
Best of luck, Big Muff. Hope you and your wife get the right decision.  >hugs< >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 23 Jan 2017 09:15PM
Cheers NN

should be HR for both components but who knows what the result will be. The big problem is that she has no contact with any health professionals except approx. once per year with her GP so not much independent evidence.
Not helped by the fact she will go "oh yes I can do that" when actually she can't .Though to be fair had this worry when filled in her last WCA (if still called that) yet that came back as straight in support group with no face to face assesment
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Jan 2017 02:16PM
I don't know if it works for PIP, but for DLA & ESA, I included evidence other than from health professionals treating/assessing/helping me.  Examples include:- local 'community leaders', spiritual leaders, retired professionals, former employers etc.

Let me give a random example of the sort of thing I might consider.  (Not an actual one I've used but very similar.)  Let's say I want to establish that I fall over a lot.   I could exchange a few words with various people who have seen me having lots of falls but who aren't friends to see whether any (a) would look impressive on paper, and (b) would be willing to write something.  It's amazing how many people, particularly retired people, you can bump into that look credible.  I don't mean by themselves, I mean collectively.  One might have fancy notepaper, one might have a string of letters after their name. 

I remember for one thing contacting someone I'd known when younger who'd been a witness to something and his writing a statement and pointing out that since he's now a notary public (which I hadn't realised until then), as a matter of law, what he says in a formal statement has to be accepted as true unless a  judge rules otherwise.  I daresay there are ifs and buts, but you get the idea. 

So it's not just whether you've got medical evidence, it's whether can find credible witnesses, like you might when suing someone or defending yourself. 

They don't prove the cause of it, but then you may have separate, even if old, evidence of that.

I say that without prejudice to the sheer madness of the assessment process.
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 01 Feb 2017 09:45PM
the wife has little contact with other people but really the face to face assesment should make the decision obvious = but I know that ain't necessarily the case.

I still remember being in a jobcentre and you could hear a Personal Adviser ranting about an ATOS decision on one of her clients the only repeatable comment being "where the hell  do they find these idiots"
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 13 Feb 2017 06:31PM
I had a bulky brown envelope arrive today and thought 'Oh here it is, my transfer invite'  ... but it wasn't. It was a letter informing me I would be getting 75p a week extra from April.

Mentioning this here as anyone else awaiting transfer may have the same sinking feeling unnecessarily if they get the same letter, and then take a minute or two to re-adjust, when they realise.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 14 Feb 2017 09:38AM
I had that brown envelope but I felt it was too thin to be assessment forms so I only worried a bit.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 14 Feb 2017 07:35PM
I had a bulky brown envelope arrive today and thought 'Oh here it is, my transfer invite'  ... but it wasn't. It was a letter informing me I would be getting 75p a week extra from April.

Mentioning this here as anyone else awaiting transfer may have the same sinking feeling unnecessarily if they get the same letter, and then take a minute or two to re-adjust, when they realise.

Thanks, AndMac!  It's benefit uprating time so these letters might be quite commonplace over the next few weeks...

Fiz  >biggergrin<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 20 Feb 2017 05:34PM
Yes I received one for dd as her letters get sent to me. My heart sank as it was thick and I thought it must be the PIP transfer but it wasn't.  Her award was indefinite so I'm hoping she'll have it through Uni to help her manage. But a good friend's severely disabled dh is up for a PIP assessment this week having previously been on indefinite DLA. My friend couldn't understand how an indefinite can be reassessed; I said, different benefit, different questions and answers. They're panicking understandably. So they are changing the indefinites over to PIP already.
Title: Re: The dreaded DLA to PIP transfer
Post by: james-1989 on 21 Feb 2017 09:52PM
It's a month since my last DLA payment (was usually a Tues) and not had first PIP payment. Looks like I'll need phone and listen to that music for half an hour  >steam<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 21 Feb 2017 11:55PM
I've had a thin brown letter - gulp - but it was only from the Tax Man telling me what my code is this year.  phew.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 22 Feb 2017 10:07AM
James,

Given we live in a world where data is at our fingertips the DWP should have to pay fixed fines when payments are late. I hope that the money has arrived since you posted.

 :-)
Title: Re: The dreaded DLA to PIP transfer
Post by: james-1989 on 22 Feb 2017 10:11PM
It's not arrived yet. I checked the letter and it say it's on the 7th March which will 6 weeks after my last DLA payment. I can't think of any good reason why. Will contact DWP anyway in case its a mistake.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 12 May 2017 05:53PM
My 'Your DLA is ending' letter arrived today, and having had so many 'scares' in the past, it was actually OK, as I'd worked through all those emotions previously. I was more worried about it being something to do with my Disabled Person's Working Tax Credit claim!

I made the initial call this afternoon and had about 10 minutes waiting to be answered which wasn't too bad. I'd made sure I had all the required details to hand, as requested.

I'm going to send the forms off 'signed for' when they are completed, as the owner of the residential home next door had some go missing and the DLA/PIP payments were lost between the old claim ending and the new claim finally being re-instated.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 12 May 2017 09:22PM
All the best with the process, AndMac (and the decision, of course....)   >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 12 May 2017 09:59PM
AndMac >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 12 May 2017 10:27PM
Good Luck AndMac   >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 13 May 2017 08:08AM
 >bighugs< best wishes for things being straightforward.

Mr Sunshine got 'the letter' a few weeks ago and I filled it in for him. His claim is based on having Bipolar Disorder so I wrote a lot about how I help him be organised and safe. On the day the completed form got posted I mentioned him getting Proof of posting several times. Later when he came back from posting the letter I asked for the Proof of Posting and his reply was What? He had posted the envelope straight in the post box.I wonder if his claim does get delayed if I can use that as an example of Mr Sunshine not doing ordinary sensible things.

I am holding onto the idea that the PIP transfers being done last are the ones where people are expected to keep their benefit. Which makes sense if you think about it because the DWP wanted to show savings as quickly as possible so they transferred the people on shorter renewals first. Probably wishful thinking give it has been a postcode lottery.


Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 13 May 2017 01:54PM
Thanks for the good wishes. I had a slew of good wishes on FB too.
I thought the same thing as well,  re being amongst the last to be assessed because I was expected to keep mobility and in all probability, possibly get the care element as well as the mobility one. 

Mine was an indefinite DLA higher level mobility award. I have deteriorated significantly since that award and had wondered about making a claim before I was asked in order to get a care element as well as mobility.

A local friend who lost hers (totally different health issues) got her letter about a year ago. I did wonder then if they had gone for her as a quick win, as she was unlikely to get it.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 13 May 2017 01:59PM
Funnily enough a job was advertised this week for PIP home assessors locally, those applying have to have a robust and experienced medical background. Let's hope I get one of them and a home visit, I haven't much hope of getting to the assessment centre easily.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 14 May 2017 12:45AM
I got my letter yesterday morning.  As I've mentioned elsethread, I'd done some preliminary work on it, but even so, I feel stressed out.

I don't think I'm an obvious case with a bit of this and a bit of that.  For example, managing meds & therapy etc.  Ok, so I can get the one for needing help with meds, but I reckon I should be getting more on the basis that I'm getting physio, but I've no idea whether a physio can recommend her own treatment, as it were, and whilst people do remind me, including friends and my brother, one thing I can be very sure of with my brother is that he's totally unreliable.  He was supposed to sign a document for me that my solicitor sent him and after about 6 months we gave up on it because he just wasn't getting round to it.

So I think gathering the evidence is going to be a bit here, a bit there.  With my last ESA application, I sent lots of letters and statements from various former employers, clients etc. showing a pattern of worsening coping with work over the decades.  I suppose in theory for all the bits of the PIP where I'd like to have evidence, I could get emails from people who prompt and monitor me online or on the phone or even in the street.  Yes, I do mean the street - neighbours who keep an eye on me and ask if I'm ok.  It's not that one person does it, it's that a community does it.  Heaven knows what they'll do with such chaotic evidence, though.  My ESA application ran, I think, to around 70 pages with all the appendices I sent.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 14 May 2017 11:23AM
 >bighugs< >bighugs<

I just checked the additional information pages I wrote for Mr Sunshine and I wrote DLA Additional Information Mr Sunshine May 2017 NI ******** when it should have said PIP Additional Information Mr Sunshine May 2017 NI ********

 >doh< I guess it is an example of how scatter brained we are.

One interesting thing I noticed is that on the page telling me about the form it says dont send information downloaded from the internet. That implied to me that some people research much more than I do. I wonder how it affects the claims.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 14 May 2017 07:13PM
Re the "don't send stuff from the internet" that's because the dwp can say that they have to assess how your health is affected not how the illness is reported on line.   Some people think they are being helpful when they download information sheets on fibromyalgia or epilepsy (and I am not picking on anyone with either illness) but its just additional information that I (as a welfare rights worker) don't have time to read.  I want to know how you are affected not what the online community report. 

Some people with Fibromyalgia  get an award when they go to tribunal and present their case but I know a few who have been repeatedly refused DLA & not PIP - one person was explaining to the panel how badly they were affected when they knocked over the cup of water, ok so not great special awareness but they jumped to their feet, grabbed the box of tissues, started mopping up the mess, apologising all the time.  They moved quicker than me - so maybe they were having a good day - but the panel took from it that they had less pain than the person reported as their was no obvious discomfort when they jumped to their feet.

Generic internet information can be easily accessed by the DWP but unless its your own online blog I wouldn't use it.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 24 May 2017 01:15AM
I had my DLA to PIP transfer letter through in March.  I previously had an indefinite DLA award which I got following an 'at home' assessment by a DWP appointed doctor (a GP).  I'd had most of my treatment privately so the DWP were unable to assess my DLA claim. They offered to send out a doctor to do an assessment and I jumped at the chance!! How naive I was back then!! In fact I'd only applied for the mobility element and he awarded me both high rate mobility and low rate care so it worked out well.  When I had my PIP initial call they asked if there were any other benefit claims I wanted them to take into account when doing my PIP one.  I asked them to use that DLA claim specifically because I'd been assessed by a GP appointed by the DWP. 

Imagine how gutted I was when only a week after the PIP form arriving for me to fill in, I got yet another ESA50 to complete!!! The horror.  Its my 4th ESA50 I think in 7 years. The first ones came 12 - 18 months apart so they'd left me alone for a few years this time. I called and asked for an extension for my PIP form which was no problem - they immediately offered me an extra 2 weeks.  Both forms had to be returned in the first couple of days of April and I'm still waiting to hear anything about either claim.  I don't have a lot of evidence that I could submit as I don't have copies of much of my medical paperwork so who knows how it'll all go.  I'm not sure how long it'll take before I hear anything back on either claim so I'm just trying not to think about it.         
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 May 2017 10:39AM
 >yikes<

I hope that doesn't happen to me.

Having said that, I've kept all my old DLA & ESA forms, and whilst the DLA stuff is now not much use, with the ESA, some of it can be repetitive so I'm hoping I can copy and paste a bit into my replies (which I do by means of copious word-processed appendices).  It's still terribly stressful, though.  I admit that you've scared me saying a PIP form can be followed by an ESA form, but I've long had a horror that if they review one benefit, they review another.  It occurs to me to offer one little consolation, though...

At least it's an  ESA50 not a form to migrate to UC, which, as I understand it, pays less for disabled people because there's a disability element you can't get.  (Monic will, hopefully, be along soon to say whether I'm right.)

So not a lot of consolation, but maybe a little bit?  And fingers crossed that you get your ESA and PIP.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 24 May 2017 08:21PM
Hi Sunny Clouds

The reason a PIP form is often followed by an ESA50 appears to be that the DWP can use the ESA medical information to make a decision on the PIP, this appears to flag to the DWP that a person has been on that level of ESA for a while and if the PIP form shows new stuff maybe they need to review the ESA - why - its not like many folk get better but that's a different logic.

As for the ESA to UC transfer - I cannot see that happening in widespread areas unless you live in a Live Service area.  Even in live service areas the dwp are having so many problems with UC that they try not to transfer any existing claimants onto UC, so please leave that nightmare for another year.

Neurochick - DLA to PIP transfers take 4 - 8 months and ESA are not much quicker,  its a case of if I'm still getting paid just ignore it.  I'm sorry I know that's not very helpful but its the unfortunate reality.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 May 2017 10:59PM
"so please leave that nightmare for another year."

Whew!  Monic to the rescue with reassurance! 

The whole benefits thing is so oppressive, so I'm grateful we can share here so that at least it's a less lonely experience.
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 25 May 2017 01:16AM
Yep - I'm not concerned about the universal credit stuff.

I too have kept copies of all of my previous ESA50s so that makes it much easier and faster - I just rewrite the same stuff every time unless they have subtly changed the questions in which case I tweak it accordingly.  Where there has been a deterioration or I have another, new diagnosis I add that in. So far there have been no improvements on my various incurable conditions!! Much of my documentation and the answers to the ESA50 questions can easily be attached as appendices because they're in electronic documents so I can easily just amend them and print off updated copies each time.  I was able to use some of the ESA50 documentation and answers as a start point for the PIP form which made it slightly less difficult. 

I wasn't too bothered about having to do both forms at the same time - it gets it done and out of the way with all the stress coming at once. One advantage of having to do both forms together was that its much easier to ensure that everything is current and consistent across both claims.  The ESA50 wasn't a big job because I had most of it in electronic documents but the PIP form did take me quite a long time to complete - I'd say that people who've not been transferred over yet really do need to bear that in mind.  I hadn't kept a copy of my original DLA form which was submitted about 9/9.5 years ago but I'm not sure how much it would have helped anyway.   

None of my ESA50 claims have taken very long to get a decision.  I've always had the responses very quickly - within 6 weeks or so from memory. Perhaps this one will be slower if its being considered along with the PIP form.  It will be interesting to see the DWP trying to justify arriving at a totally different decision on my current ESA claim since they have already made identical decisions on virtually identical information and virtually identical criteria at least 3 times in the relatively recent past. 

I'm not too bothered if it takes ages because the cash keeps coming while they are making their decisions!  I don't have a time limited DLA award so it doesn't really matter how long it all takes.  The only awkward issue is that I rely on the Motability scheme for my car so the transfer to PIP could screw that up. A bridge I will cross if and when I have to but there's no point in worrying about it before I need to.     
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 25 May 2017 09:44AM
Sunny and neurochick  >hugs< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 25 May 2017 10:34AM
Thanks, NN!

[Having made a suitable response, Sunny starts agitatedly wondering which page of her extra evidence she's going to attach to her PIP2 to put the hugs on.  She's sure they must be relevant to something.  After all, that Christmas card list and photo of her granny are going to help the assessor to work out what her problems are coping with everyday activities and...oh dear, she's forgotten to include her school swimming certificate...]
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 27 May 2017 05:19PM
I got The Letter today  :-( so I'll have to make The Call on Tuesday...

I'll read through this thread, though  >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 27 May 2017 05:47PM
Good luck with the process and the outcome, Sasha  >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 27 May 2017 05:57PM
Good luck, Sasha Q >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 27 May 2017 09:59PM
Gosh, they are getting us fast now.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 27 May 2017 10:04PM
Sasha  >hugs< >hugs<

Do read what Gorbut said about evidence elsethread as well.
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 28 May 2017 05:42AM
Thinking of you Sasha
Title: Re: The dreaded DLA to PIP transfer
Post by: gorbut on 29 May 2017 11:47PM
Good luck  SashaQ. 

DLA to PIP transfer can go smoothly. My son's did last year and my daughter's this year. We still found it stressful as we are worriers but the relief once it is sorted for a while is wonderful.

I do their forms, after discussion with them, as they run out of energy and that's what Mums are for 😀 I write lots of detail and send as much medical and other support stuff as I can. DWP definitely don't interpret it all correctly though. There are things in my daughter's latest decision report that I think are wrong, she got no points for problems with planning a route for example which she can only do once in a blue moon. However she got enough points on the walking part to get enhanced rate mobility so I will let them off this time 😀
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 30 May 2017 09:03AM
 >bighugs< >bighugs< >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 30 May 2017 06:18PM
Thanks everyone  >hugs< especially Fiz for starting this thread and sharing the challenging experiences  >rainbow2<

Luckily they have given me until 20 June to ring up, as I tried today and didn't get through.  Nowhere on the letter did it say that the opening hours are 8am to 6pm Monday to Friday only...   >angry<  I rushed home from work, gathered all the addresses I needed, then made the call at 5.55pm, but they just left me on hold until 6.05pm telling me they close at 6pm but I could call back later...  I gave up at 6.05pm - I wasn't convinced anyone would answer as the call was to take 15 minutes after that... 

I'll try again tomorrow early and hope to get it over with this time...
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 31 May 2017 10:38AM
Phew - step one complete...

Unfortunately, I'm not sure I was given the name of the OT who did my wheelchair assessment, but that didn't count on the phone anyway because 'OTs aren't health professionals'... 

Anyway, now the next step is to wait for the form  >tea<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 31 May 2017 07:45PM
I called today as well.

I've drafted a high proportion of my replies, but I haven't finished the monitoring etc. one.

I don't know what to ask people to write. 

If we get 4 weeks to send it back, knock off a week for the 6 days Monic says it takes to get through the system, then that's 3 weeks, but I'll allow another half a week, so say about 18 days.

I keep telling myself it's manageable, but I've got other things happening in my life right now and I feel close to meltdown, so I think for me the answer is to get some support.  I don't mean support to say the right things, just someone who can sit with me and calm me and maybe proof-read my stuff so if, for example, I say "Can you just skim this section of my appendix and see whether I've addressed all the legal criteria I've typed at the bottom and if so, I'll delete those criteria, add in the headings and footers and add it to the rest."
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Jun 2017 02:50PM
 >bighugs<  >chocolate<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 01 Jun 2017 03:13PM
Quote
I keep telling myself it's manageable, but I've got other things happening in my life right now and I feel close to meltdown, so I think for me the answer is to get some support.  I don't mean support to say the right things, just someone who can sit with me and calm me and maybe proof-read my stuff so if, for example, I say "Can you just skim this section of my appendix and see whether I've addressed all the legal criteria I've typed at the bottom and if so, I'll delete those criteria, add in the headings and footers and add it to the rest."

Sunny, I think that's a good way forward. I've made extensive use of the local advice centre during ESA renewals, generally because I need someone to prevent me from spiralling off into panicky thought cycles, so that I can give an accurate and coherent account of my needs. It definitely helps.  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 03 Jun 2017 09:11AM
Aargh!  Now the PIP team wants to see proof of my date of birth.  They say birth certificate or passport.   I assume that the call centre assistant misheard me.  I tend to say it in the format of "the first of the first, eleven"  Maybe most people would say "the first of january, nineteen eleven" or whatever. 

[Yes, I know it's not my real date of birth, but I like to sound younger than my 300 years...]
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 03 Jun 2017 11:05AM
Sunny
try ringing them as they must have confirmed your ID previously so your DOB  will be coming up on the system. So by ringing them and answering the standard security questions they might allow that rather than you risking your birth cert in the post opening units .

reminds me I must chase up my wifes since I haven't hears anything since I sent the form off in january
Title: Re: The dreaded DLA to PIP transfer
Post by: wheelydad on 03 Jun 2017 01:21PM
I never send my Birth Certificate to any government department, as they will accept a decent photo copy.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 03 Jun 2017 05:27PM
Sunny - what Big Muff said.  It's not as if you haven't been 'on their system' for some years now!

Sound words from Wheelydad there, too  >thumbsup<  Actually, the DWP seem to not only accept, but ask for copies these days.  Everything I sent for my PIP claim was photocopied ...

PS - does your local CAB still offer appointments for help with PIP forms?  They would go through what you've already written and check it (as our CAB did for me last December)  The DWP also allowed me an extension on the form return date as the CAB appointment was after the original date.  If you're going to call them about your 'proof of DOB', you can ask for an extension at the same time, for any other reason (eg your health is making it difficult to complete the form in time...)
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 03 Jun 2017 06:07PM
Sorry, I didn't explain - my local Jobcentre always lets me take original documents in there for them to scan and send, so they'll do that with my DOB ID.  (I'll take my passport but also my birth certificate and statutory declaration of change of name a few years back.)  It's just that sense of "Not something else!"
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 09 Jun 2017 07:08PM
My form has arrived and I've had a look at it. 

Not easy to fill in, especially the questions that say "do you need help from a person, whether you get help or not?" but at least the free text boxes ask you to include information about the time things take...

My 'favourite' question is about mobility - "Do you use aids and appliances to walk? Yes/No"  If you don't walk at all, is it yes or no? 

The next question mentions wheelchairs, but sort of gives the implication that people only choose to use wheelchairs because they are handy, not because they are necessary...

FAscinating...  >erm< >tea<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 10 Jun 2017 10:52AM
I've gone into calendar arithmetic meltdown as regards my PIP2.

I made my telephone call on Wed 31 May, so if you get 4 weeks from then to submit your PIP2, they need to get it by Tuesday 27 June. 

IIRC, Monic said the form takes about 6 days to get through the system, so if that is postal days,I need to get the completed PIP in the post by Tuesday 20 June. 

But first they sent me a form requesting evidence of my DoB.  The jobcentre certified a copy of my passport,  on Thursday 8 June, and I dropped it in the post the same day.

Presumably  the DWP will get my DoB proof Wed 15 June. 

But given that it took a week for the DoB letter to reach me after my original phone call, then if the PIP2 is sent out on Wed 15 June, I will not actually receive it before Tuesday 21 June, so even if I have all the replies typed out in appendices, tick all the boxes at the speed of light and get it in the post the next day, I am likely to miss the deadline unless the clock starts running from when they put the PIP2 in the post, not when I telephoned and they put the DoB form in the post.

DWP, I hate you.
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 10 Jun 2017 12:17PM
I made the call on 31 May as well, and I've been given until 30 June to complete the PIP2, which is 3 weeks from the day I received it. 

It gives you the option to ask for extra time, too.

I hope that helps with your arithmetic  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 10 Jun 2017 05:26PM
Option to ask for extra time?  Sasha, I love you!  You've given me hope!   >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 10 Jun 2017 06:02PM
 >hugs<

I'm so glad we have this thread so we all know we're not alone with this >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 10 Jun 2017 07:00PM
Hi
when you get the PIP2 there will a date on the first page, wait until the day before the date and phone them and say I haven't completed the form yet and can I have an extension,  if it takes you another 10 days to post the form phone again on the day you post it and ask the person (make sure you get their name) to note on the system that you have posted the form first class (need to put a stamp on it)  and ask them if they know how long it takes to process in their system.   Normally if I'm polite, patient, sympathetic the worker tells me more than they should but I wont drop them in it cos its not fair how the staff are treated either.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 10 Jun 2017 10:25PM
Thanks.  That's reassuring.

Mind you, since I posted, it occurred to me I can also play the bereavement card.  It works with a lot of official bodies.  (Lost someone very close to me recently and the coroner only released the death cert a few days ago.)  (No need to do the hugs for the grieving woman bit here - I'm genuinely grieving, but it's hugs for the PIP-terrified woman I keep coming back for.  Thank heavens I'm not alone dealing with this.)
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 11 Jun 2017 01:24AM
 >bighugs< >bighugs< >bighugs<

These hugs are interchangable, and can be used for either bereavement or PIP-terror.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Jun 2017 01:42AM
Multipurpose hugs?  Perfect!
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 11 Jun 2017 05:00PM
Option to ask for extra time?  Sasha, I love you!  You've given me hope!   >hugs<

*cough* I told you that in post 130  ;-)

Never mind, have another  >hugs< for the collection anyway ..
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 11 Jun 2017 06:48PM
Ahem, I mentioned it too!! I asked for more time and they just gave me 2 weeks without any bother and they didn't ask why I wanted it.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 12 Jun 2017 12:37AM
Oops, guess who's not taking on board what's being said?  I just looked at post 130.  I'd completely misread it and thought it meant extra time to get the DoB stuff in.  And I thought Neurochick got extra time because it was two forms at once.  Sorry.

I was going to make a pathetic excuse like 'my  brain's not in gear', but when was it ever in gear?

 >blush<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 12 Jun 2017 08:56AM
The wretched PIP process is enough to scramble anyone's brains even if they started out as reasonably 'in gear'  >doh<

From memory, the DWP can allow you 2 (or possibly 3?) weeks' extension on a telephone request, but any more than that and it has to go (like mine did) to a 'case management' person.  Or some title like that...  Anyway, I was granted an extra 4 weeks in the end!
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 12 Jun 2017 01:42PM
Thanks to you folk, I phoned the DWP to 'prime them' with the 'I'm terribly anxious because I'm bereaved and everything and I've got manic depression and...' thing, which will show up on  their computer when I next call.

They say they won't actually count the days until they send out the PIP2 in response to the evidence of DoB they asked for, and they haven't issued it yet, but the evidence has been received in the system somewhere and it'll take days before they issue the PIP2.

So now I know I've got over a month from today plus you lovely Ouchers have reassured me I can get more time if I need it.

 >thumbsup< >chocolate<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 16 Jun 2017 07:56AM
 >bighugs< >bighugs< >bighugs<

Mr Sunshine had his face to face assessment yesterday. it went okay but because of what I have read online and knowing that the Government is wanting to save money I am worried about the outcome. One good thing was that although Mr Sunshine has mental health issues and would have been okay going to an assessment because I mentioned needing a wheelchair accessible location the assessment was at home. The lady was pleasant enough and did seem to be listening and typing what we said into her laptop. It was not as stressful as I thought it might be and so as a extra thing I have a better idea of what to expect when my PIP assessment comes around.

One slightly curious thing was she would not accept any of the extra paperwork i had put together and said it has to be sent to the DWP When I as could she note there was more information coming on her paperwork she said yes but I dont know whether she meant yes it is technically possible or yes she would do it. My assumption would be that there are timescale targets and waiting for more information slows things down. Mr Sunshine has a job and I realised we probably need to show some evidence of his sickness recorded so they decision maker can see Bipolar causes lost work weeks and months.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 16 Jun 2017 08:06AM
Sunny, Sunshine and Mr Sunshine >bighugs< >bighugs< >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 24 Jun 2017 07:41PM
Can I ask a quick question. If someone rarely or never leaves their house due to anxiety (even into the back garden) would/should they be eligible for any element of PIP mobility or is it all down to physical ability now?
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Jun 2017 08:59PM
The relevant criteria for points, which you can add to points for physical mobility problems, are:

"b. Needs prompting to be able to undertake any journey to avoid overwhelming psychological distress to the claimant. 4 points."

"e. Cannot undertake any journey because it would cause overwhelming psychological distress to the claimant. 10 points."

Benefits and Work said on 27/2/17:

"The effect will be that people who are too anxious to ever undertake journeys unless they have someone with them, for example because they have panic attacks or similar, will be unlikely to be awarded more than 4 points by the DWP. This means they will not be able to get an award of the mobility component on the basis of this activity alone.
Even claimants who are too anxious to ever go on journeys, even if they have someone with them, will only score 10 points and thus not be eligible for the enhanced rate of the mobility component on the basis of this activity alone."
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 24 Jun 2017 09:06PM
Thanks sunny. I'd wondered if they'd be eligible for the standard rate of mobility but I'm very unsure. I'm well aware that the changes from DLA to PIP were to discount many people with mental health issues so it doesn't surprise me.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Jun 2017 09:51PM
I copied this from B&W when the changes came in and pasted it into a document:-

B&W
The new descriptors will read (changes in bold by us):
a. Can plan and follow the route of a journey unaided. 0 points.
b. Needs prompting to be able to undertake any journey to avoid overwhelming psychological distress to the claimant. 4 points.
c. For reasons other than psychological distress, cannot plan the route of a journey. 8 points.
d. For reasons other than psychological distress, cannot follow the route of an unfamiliar journey without another person, assistance dog or orientation aid. 10 points.
e. Cannot undertake any journey because it would cause overwhelming psychological distress to the claimant. 10 points.
f. For reasons other than psychological distress, cannot follow the route of a familiar journey without another person, an assistance dog or an orientation aid. 12 points.

2. Moving around.
a. Can stand and then move more than 200 metres, either aided or unaided.  0 points.
b. Can stand and then move more than 50 metres but no more than 200 metres, either aided or unaided.  4 points.
c. Can stand and then move unaided more than 20 metres but no more than 50 metres.  8 points.
d. Can stand and then move using an aid or appliance more than 20 metres but no more than 50 metres.  10 points.
e. Can stand and then move more than 1 metre but no more than 20 metres, either aided or unaided.  12 points.
f. Cannot, either aided or unaided,
(i) stand; or
(ii) move more than 1 metre.  12 points.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 25 Jun 2017 11:14AM
Quote
Benefits and Work said on 27/2/17:

"The effect will be that people who are too anxious to ever undertake journeys unless they have someone with them, for example because they have panic attacks or similar, will be unlikely to be awarded more than 4 points by the DWP. This means they will not be able to get an award of the mobility component on the basis of this activity alone.

Yep, those measly 4 points were what I was granted for the (nil award) mobility component back in January this year, so it does seem hard to qualify if one "only" has mental health issues on that front..  I used to get the lower rate mobility from DLA  >doh<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 25 Jun 2017 12:44PM
What I find absurd is this...

Leaving aside the statistical probability - but not certainty -  that I shall be turned down for PIP and have to appeal, and looking just at what criteria I think I can (if fairly assessed in accordance with the law not politics and profit) comfortably prove I meet (as opposed to what I should meet if I'd got enough evidence)...

It seems to me that what I'd get the most points for is problems with what the health and social care professionals seem to refer to collectively as 'activities of daily living'.  I.e. I tick the boxes for needing help with things like washing, dressing, cooking, eating, monitoring my condition etc.

But actually, a lot of that is irrelevant, because with support group ESA (until the politicians do with it what they've done to WRAG ESA, which I cynically think is probable), I can buy ready-prepared food and junk food, and since I don't work, who cares if I don't wash for days or if I wander round with not much on?  The neighbours don't freak if I take my rubbish up the drive in nightwear, or if when they say hello over the fence, I'm wearing the shorts I wear to bed that don't cover much and I've no bra on or whatever.  (I'm not a floozie, I just don't always get it together that way when I'm round the house.) 

And the difference between a microwave and a conventional oven is arbitrary twaddle, not least because the controls, functionality, safety etc. vary massively.  I believe that there are some people for whom cooking in a microwave would be more difficult or even dangerous because they can't get their head round issues to do with what will explode in a microwave and how things can be very much hotter than they seem.

Likewise, if you thought in terms of prompting, the actual cost of that is the internet connection but these days most people would say that's a normal thing to have anyway.

By contrast, taxis to get around when I'm not coping are a big part of what my DLA goes on and will doubtless be a big part of what my PIP goes on if I get it. 

I look at the physical mobility criteria and think well, yes, I can walk.  I can walk and walk and walk.  My problem is falls.  But my recent mild traumatic brain injury was the first for years and my recent fracture was the first for years.  So I doubt I'd pick up points for it.  Strangers tell me I should stay home.  You what??!  It doesn't matter where I fall, people tell me I shouldn't go there.  The place I have most falls is on the bus.  There are days when I have falls on more than one bus.  Just yesterday, I went flying forwards off a sideways-facing seat. 

But it's not actually the physical risk that's the problem, it's the psychological distress that's attached to it that's the problem.  Just to  mention what a some of you here may not know - for two decades I was a part-time soldier, part-time being anything from about one day in twelve to more than one day in two over the course of a year.  There were few things I did as a soldier that were scarier than going ou is for me now.  But is it the fear of being injured?  No, it's the fear of people's reactions.   And that's something that, realistically, the politicians we have in power aren't going to understand or accept.

So there you go, I fall through the cracks, but if I keep eating my junk food, and keep getting help from lots of kind (unpaid) people, I've got money for my taxis, and also for my neurophysiotherapy.  Oh yes, I didn't mention that, did I?  Like, I expect, most, maybe all of us here, I use benefits to pay for things that your typical man in the street assumes I'm simply provided with.  But of course.  Why should I ever have had to pay for any therapy or any mobility aids or whatever?   As for all those questions relating to things like washing and cooking or whatever that refer to using aids and appliances.  Who's supposed to pay for those or provide them? 

I've got enough money at the moment, although quite frankly my current fear-led taxi habit is eating into my savings as well as my benefits, but the mismatch between criteria and needs is something I think my own case illustrates perfectly.

They might as well offer benefits to pay for help cooking curries, but only if you can establish that you're frightened of cats.
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 25 Jun 2017 07:39PM
Sunny, have you looked into the possibility of getting a taxi-card?
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 26 Jun 2017 12:15AM
Like the London scheme?  So far as I know, there isn't anything like that round here.  It's a good suggestion, though.

Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 26 Jun 2017 05:57PM
Oh, I did not realise that it only covered London.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 27 Jun 2017 01:35AM
It occurs to me to wonder whether there are things I get here that others don't get.  My bus pass covers the local trains, which is very useful.  I don't know whether other parts of the country do that.  It would be good, though, if successive governments wouldn't keep localising these things.  I've just been reading on a news site about the BMA annual reps meeting, at which doctors have spoken out about appalling NHS wheelchairs, including delays getting them, inappropriate and inadequate chairs etc.  And to think I'm grumbly about my PIP.   But then that's what the government wants, isn't it?  With each cut, we're supposed to feel grateful because we're better off than anyone that's suffering more.   >steam<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 30 Jun 2017 01:58PM
What is a taxi card?
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 02 Jul 2017 06:54PM
It's a London thing.

Extracts from info on Transport for London website:-

***

If you have mobility impairments and have trouble using public transport, you may be able to get subsidised taxi and minicab travel in London. The two schemes are called Taxicard and Capital Call.

You can use Taxicard wherever you live in London.

You can use Capital Call if you are already a member and live in Bexley, Ealing, Enfield, Haringey, Hillingdon, Hounslow, Lambeth, Lewisham, Merton and Southwark. Capital Call is now no longer open to new members.

You may be eligible for Taxicard if you:

Receive the higher rate mobility component of the Disability Living Allowance or the higher rate Attendance Allowance
Are registered blindReceive the War Pension Mobility Component
If none of these apply to you, you may still be eligible if your GP endorses your application. You may have to have a mobility assessment.

Taxicard costs

You generally pay a flat fare of 2.50 per trip, plus anything above the subsidised amount. In most boroughs, Taxicard trips are subsidised up to:

    10.30 for trips during the day
    11.30 for trips at weekends
    12.80 for trips at night

For example if you make a journey on a weekday that costs 14.00 on the meter, 10.30 of it would be subsidised.

***

More info here:-

https://tfl.gov.uk/modes/taxis-and-minicabs/taxicard-and-capital-call
Title: Re: The dreaded DLA to PIP transfer
Post by: huhn on 02 Jul 2017 07:06PM
I got the blue badge for my girl,  some people did not understand it, she can walk, just gets to fast tired, but the biggest problem is  sometimes she does not want to walk and a 12 year old to carry is to much >angry< >angry<.  and  I think the blue badge is  also  important for people  who needs somebody to get  around even when walking is  ok. trying to get a person to a place who needs  guiding is  very difficult and time consuming.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 06 Jul 2017 12:42PM
I've got my assessment this Tuesday, at home. I didn't ask for a doctor's letter,  as I haven't seen him in a while. I'm on higher rate DLA atm, but no care.  I have hemiplegic cerebral palsy and arthritis, I need two sticks to walk, takes me about 5 minutes to do 20m, stopping to get balance. Not reliable, repeated or safe, then.

I looked at the care descriptors and I can tick boxes for dressing (need a sock aid), toileting (downstairs commode, grab handle installed by OT upstairs), bathing (grab/safety handles, OT installed), cooking (don't use main oven now, use microwave from perching stool, OT supplied).

I was given an assessment centre appointment, but don't have access to a car and taxis would have been impossible at that time of day (all on school runs). I managed to get a home appointment. Bus stops locally are too far for me to walk to now. The last time I did it, in 2015, a 400m walk took 25 minutes. I couldn't manage the walk at the other end, either. 

If I don't get PIP, I'm stuffed. I can't earn enough working from home at the moment  to cover my bills.
I shouldn't even be thinking that I won't get it, but I am. My home isn't wheelchair accessible,  but will they say I could cover the 20m distance in a wheelchair easily, so no PIP? Is that how they think?
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 06 Jul 2017 01:43PM
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 06 Jul 2017 04:45PM
Ta for the hug.
Trying to think of positive stories.
I know of someone locally who was expecting to lose the lot,  and got standard mobility, having been on enhanced. Crucially for him, he kept his blue badge.
A friend who has CP and a speech impediment got her top rate mobility and  care after the chat on the phone, which was cheering.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 06 Jul 2017 08:32PM
AndMac

you should probably get standard daily living but if you don't get enhanced mobility as for a mandatory reconsideration, good luck and remember no extra effort for the visitor
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 07 Jul 2017 06:22AM
 >bighugs<

Quote
but will they say I could cover the 20m distance in a wheelchair easily, so no PIP? Is that how they think?

I thought this type of thing was a ESA criteria not PIP.

https://www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf

On page 7 the table refers to standing then moving around. Can you always stand safely? My version of CP means that there are paarts of the day I cant stand and I get around on my hands and knees. If you find that using your sticks is not enough and you have to furniture walk that counts for something. If I am in someone elses house my mobility decreasess because I dont have routes of leaning points mapped out and cant be sure other people's furnoture is not going to move.
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 07 Jul 2017 05:34PM
I think wheelchair use counts for more points rather than less in PIP.  That section of the form is very challenging to fill in, though, as the questions are not clear...

Good luck for the assessment - I sent my form off on 26 June, so I've still got that to look forward to...
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 07 Jul 2017 07:53PM
The mobility is PIP is that you get 10 points is you need guidance in an unfamiliar area from an assistance dog and the distance is 20m,  I think wheelchair users have to show that for the majority of the time you need to use a wheelchair, although you may crawl around the house it would not be safe for you to do this out of doors. but I think it only gets you 10 points and you need 12 so need some points from getting around
 Can stand and then move using an aid or appliance more than 20 metres but no more than 50 metres. 10 points
mind you it says Can Stand - so crawling doesn't count
Cannot, either aided or unaided,  
(i) stand; or 
(ii) move more than 1 metre.  12



planning and following journeys
b. Needs prompting to be able to undertake any journey to avoid overwhelming psychological distress to the claimant.


I would say that as a wheelchair user for more than 50% of the time you should challenge a decision that doesn't get you enhanced mobility.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 09 Jul 2017 08:54PM
AndMac - may I also say the obvious?  Repeatedly.  Not can you do it, can  you do it as often as you need to?  It's all very well being able to cover a certain distance, but that's no good if you can't get back again without resting for hours or whatever.  Belt and braces, don't just tell them what you can just about do, make sure they know if that's a struggle to do it and then you're seriously wiped out sort of thing. 

Ok, why am I saying that when you already know it?  Because I don't trust anyone here not to understate their difficulties.  You included.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 10 Jul 2017 05:47PM
Mwah, thanks for the reminder. As I said to my sister, it's contrary to everything.  We make out we cope "just fine", when we don't, not really, and then we suddenly have to say, "Actually, I don't cope that well."
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 10 Jul 2017 07:54PM
AndMac
Getting people to say "Actually, I don't cope that well." is the harder part of my job filling out these forms because the person doesn't want to admit to a stranger that they struggle with any of the tasks, clients get very depressed during the interview so I have to find ways to make them laugh, 
In everything you fill in for PIP remember that its repeatedly and reliably and safely, and it has to be 50%+ of the time so always 4 days a week rather than 3.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 11 Jul 2017 12:39PM
Well, it's been done, and dusted. I answered the door to the assessor,( who was very pleasant,) so that she could see me moving.
All as expected.
I had a friend with me who got tearful halfway through, and said 'I didn't realise you struggled so much.' (This was in reference to bathing and dressing, which she hasn't seen.)

At which point I explained that, well, no, I wouldn't say it to her, but it was important that I let the assessor know. The assessor agreed (!)

I wasn't asked to do the full range of tests for the lower body, and the assessor said she would make a note that she didn't feel it was safe for me to do them.
I had my sock dressing aid with me, mentioned I only use the microwave, mentioned my toilet grab rail and downstairs commode, and the grab rails by the bath.

When asked about moving around outside, I said that I only really felt safe within the house, which is true, my balance is very poor, and my 4 inch shoe raise doesn't help. The assessor actually said, 'So you only really walk around  in the house, then?' I explained how I have to be very careful outside to make sure I didn't fall, as if a stick slips, I can't save myself.

This means I walk very slowly and carefully. I was asked about good and bad days, well, no day is a 'good' day.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 12 Jul 2017 08:17AM
 >bighugs< thank you for posting because you description of wht happened is going to help me be honest when the time comes. Honest in that I will have to say how bad things are.

 >chocolate<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 12 Jul 2017 05:08PM
It is hard to be straight about the bad days (or bad hours or whatever) and I think this is for at least two reasons:

- We are often 'conditioned' (by parents, various institutions, our society's stated values) to 'emphasise the positive' - so we don't like to appear as if we're 'feeling sorry for ourselves' or 'not trying hard enough' and similar self-flagellating thoughts

- To admit how shite things are sometimes can be something we don't always want to acknowledge even to ourselves...

AndMac, may you get the decision you deserve  >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 14 Jul 2017 05:46PM
AndMac >bighugs< >chocolate< >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 17 Jul 2017 08:37AM
 >bighugs<  AndMac I hope you get the good result that you deserve
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 17 Jul 2017 10:03PM
Thanks all, hugs, good wishes and chocolate are much appreciated. It's just 'wait and see' for me now.
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 21 Jul 2017 12:17AM
So 4 months after submitting my PIP form (I was a transfer from a lifetime DLA HRM & LRC award) I had my face to face assessment. Its impossible to tell how it went. I had provided extensive details in response to all of the questions and consequently the chap more or less said although he still had to run through all of his questions, he didn't need a huge amount of info from me because I'd already provided so much detail. He said at the end that he wasn't going to put me through any kind of physical examination or get me to do any movements - he seemed to be saying that he had enough and didn't need to do anything else. I reckon that I'm either in a position where the assessment was a mere formality because I stand no chance of an award or because there is no doubt that I will get my award. I think if I was in the middle somewhere he would have been probing for more information in certain areas where there was doubt and/or would have wanted to see me move.  Now I have to wait 1-2 months for the outcome.

Interestingly, I've still heard nothing at all about the ESA form that I was sent and had to submit at the same time as my PIP form.  Its my 4th in 7 years and each time before I've been put in the ESA SG based on my form without ever being asked to a face to face assessment.  I've had a response within just a few weeks each time and the info and answers I've given have been the same each time - I pretty much copy over the same text word for word and refer them back to my previous applications.  Its patently obvious that even though these are 2 separate claims for 2 separate benefits, they are awaiting the outcome of the PIP assessment before they make a decision on the ESA claim this time round. Given the fact that I have had 3 previous SG awards all based on exactly the same information, there has been zero improvement and the only change is an additional chronic medical condition to add to the mix, I can't see how they could make a completely different decision this time round.   

More waiting...!!!

         
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 21 Jul 2017 09:09AM
Neurochick
It's not the change or no change in your conditions that's the hold up, it's the changes in the descriptors and their interpretation that causes delays, along with the lack of staff and backlogs of work.
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 21 Jul 2017 10:56AM
Hi Monic - are you talking about my ESA claim or my PIP one or both? 

Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 21 Jul 2017 02:53PM
Hi,
It's both really as there have been decisions since pip that changed the interpretation of some criteria. Government made some and some changes are due to commissioner decisions.  >doh< >steam<
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 27 Jul 2017 07:08PM
I've received a letter to say they've received my information, which is good, so I'm just waiting for the next step...  >sheep<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 27 Jul 2017 07:32PM
 >x-fingers< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 27 Jul 2017 07:39PM
Good.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 28 Jul 2017 09:14AM
Quote
It's both really as there have been decisions since pip that changed the interpretation of some criteria. Government made some and some changes are due to commissioner decisions.  >doh< >steam<

Some great news, Mr Sunshine got enhanced care and enhanced mobility  >biggrin< I hope it means there has been changes to the interpretation of some criteria and they are changes for the better. It is worth mentioning that I did not send much supporting information because we did not have much but after the assessment at home I did send prove of home much Mr Sunshine had been off work in the past year because of the affects of Bipolar disorder.

Currently he gets more PIP than I get in DLA and it has made me feel a bit weird. The money will help pay for the higher cost we have because of disability (so if my sister is reading this  >bleep<off with your assumptions and judgements)

 >x-fingers< >thumbsup< >hugs< everyone
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 28 Jul 2017 09:31AM
Quote
Some great news, Mr Sunshine got enhanced care and enhanced mobility  >biggrin< I hope it means there has been changes to the interpretation of some criteria and they are changes for the better.

Brilliant news!  >star< >bubbly<


Quote
Currently he gets more PIP than I get in DLA and it has made me feel a bit weird. The money will help pay for the higher cost we have because of disability (so if my sister is reading this  >bleep<off with your assumptions and judgements)

 >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 28 Jul 2017 09:41AM
Woo-hoo, fantastic result  >bubbly<   >magic<  I confess to being curious as to the enhanced mobility though - did he receive this purely on mental health grounds (if you don't mind the ask) because I didn't even qualify for standard mobility.  My understanding was that - well, at the time of my PIP transfer claim, this was, last December - it was near impossible to get an award of any mobility element if one 'only' had mental illness... unless the criteria have been re-written to be less restrictive in this area, of course!
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 28 Jul 2017 11:49AM
NN.

 >hugs<

Kizzy,

The Mobility award included points for physical limitations because of the motorcycle accident he had. They must have got in touch with the hospital physio he has been going to because on the last DLA claim he only got lower rate mobility. It is weird how I worry about saying this in public is going to somehow mean his claim is reviewed but I know we were honest on the forms and so it is important people know how he got enhanced mobility.

Looking through the points he got a lot of 1 and 2 points which added up to just enough to get him both enhanced. It goes to show it is worth putting everything on the form and adding written descriptions of what happens. If he lived alone he would more than likely go down hill quickly, off his meds and in huge debt as people took advantage of his generosity. A lodger we had years ago once convinced him to lend him the money to buy a car and it morphed into Mr Sunshine getting the car on a credit card  >doh<. I found out the lodger did not keep paying the payments and went  >angry< >steam< >yikes< sorted it out and gave the lodger the boot.

Any person claiming on mental health grounds who lives alone is put at a disadvantage when describing their situation because it seems there is an assumption that living alone = coping.

 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: SashaQ on 28 Jul 2017 05:00PM
More good news from me - I got my results letter today, what a surprise at the speed!  Standard Care and Enhanced Mobility, and a points breakdown so I can see it is as I had hoped it would be  >thumbsup<

Phew... 

Here's hoping other Ouchers have similarly good experiences  >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 28 Jul 2017 06:29PM
Hey Sasha - so pleased for you, and an ultra-quick decision too.... Sweet  >cool<

Sunshine -  >tah< for the info re Mr S's mobility award, obviously the accident was an important factor...

Quote
Looking through the points he got a lot of 1 and 2 points which added up to just enough to get him both enhanced. It goes to show it is worth putting everything on the form and adding written descriptions of what happens

I'd second that - the more the DWP have, even if it's 'self-provided' evidence, the better!

(As for that lodger, how evil to prey on someone vulnerable for financial gain  >angry<  Let's hope that karma bites him really hard in the arse for that contemptible action.)

Quote
Any person claiming on mental health grounds who lives alone is put at a disadvantage when describing their situation because it seems there is an assumption that living alone = coping.

Ah - now that might not always be the case, because I've lived on me tod for over thirty years now and I received an award of DLA higher rate care in 2007.  This was effectively continued for my PIP award - enhanced daily living rate, which is the equivalent.  Better than I anticipated, so I wasn't going to make a fuss about losing the mobility component  ;-)
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 29 Jul 2017 07:43AM
Sasha,

Thank you for sharing the good news  >star< I hope it was a longer term award.

Mr Sunshine;s award is for four years and we are fine with that after all his level of disbility level could reduce if treatment improves his situation.

Kizzy,

I was a bit worried about maybe being too gloomy about people living alone so it is good you posted about your experience. I do have a online friend who gets help from the charity RETHINK and it makes a difference to his benefit awards
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 29 Jul 2017 03:18PM
More good news from me - I got my results letter today, what a surprise at the speed!  Standard Care and Enhanced Mobility, and a points breakdown so I can see it is as I had hoped it would be  >thumbsup<

Phew... 

Here's hoping other Ouchers have similarly good experiences  >x-fingers<

 >star< >magic< >bubbly<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 29 Jul 2017 05:42PM
 >biggrin<
Title: Re: The dreaded DLA to PIP transfer
Post by: seegee on 29 Jul 2017 08:25PM
Hi everyone - I haven't been online much in recent months so have no idea how anyone is or what's been happening; hope all's as well as possible for all of you.   >bighugs<

I have been through the PIPs thing since I last posted, it was all a bit weird.  >erm<
The "Your DLA is ending" letter came early last November I think; I've been getting LRC DLA for a few years, "indefinitely". 
When I'd finished howling & bashing my head I phoned someone I know who works for a charity not far away.  He said he would help & as I go there most weeks, he'd make the call for me... as it turned out, another person there made the phone call, which went OK as I didn't have to say much, most was done for me (I don't do well on phone to strangers, confusion & anxiety). 

I made an appointment with the first person for a couple of weeks later, took the form & copies of stuff from hospitals, social services, an ex-employer, etc.... spent the afternoon sitting on the office floor crying while he copied my papers & went through the form, asking me questions & filling it in.  It took so long that it was past time to lock up the building, so he put everything in the envelope, sealed it & gave it to me to post before locking up; that meant I had copies of everything that was sent apart from the form itself, which I had signed without reading (no time)!  That caused me some worry over the next few weeks, as I'd signed the form but had little idea what was on it.  That was mid-November

In early January I got a letter telling me I had an appointment for a HOME assessment, which was a complete shock & caused more anxiety.  I asked my brother to come & sit in on the interview, as I knew I wouldn't be likely to remember any of it, would feel easier if someone I know was there - and he wouldn't try to talk for me if I forgot things. 

Mid-January was the interview, woman from Atos in my chaotic-looking flat (normal) asking me whatever-it-was...

Early February I got a decision letter, stating that from 1st March 2017 I'm entitled to Enhanced Rate Daily Living (15 points) and Standard Rate Mobility (10 points) for 3 years. 
That was another shock & difficult emotionally reading through the things that are hard/ painful/ tiring/ confusing but which mostly I just do (not aiming to be pain-free, my brain's slow enough without strong sedatives).  I'm sure most of you who have been through this have had the "is this really me?".  I almost felt as if I should contest the idea that I need help with planning/ following a journey...   

Total time from first letter to getting the decision was about 3 months, with another 3-4 weeks before my PIP entitlement started.  DLA was paid for the time up to PIP beginning.  The whole process was peculiar & I still have no clue why I was interviewed at home. 
I'm not far from Manchester, I don't know if the process is running similarly in other areas.  I live alone too. 


Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 29 Jul 2017 08:39PM
Seegee

The person who filled in your form did a good job and must have asked for home visit, by way has with your ESA gone up as your now entitled to a premium (SDP) to be added - its 62.15 per week so ask some one to check your ESA is being paid the correct rate.

Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 29 Jul 2017 09:04PM
Seegee,

 >bighugs<

Quote
I'm sure most of you who have been through this have had the "is this really me?".  I almost felt as if I should contest the idea that I need help with planning/ following a journey...   

The same thing happened to me when I read Mr Sunshine's letter - as in OMG he is really that ill and he is. Care for ourselves or our loved ones who are sick and disabled is about managing situations. Managing is not the same as being cured.  I also felt worried about posting the wonderful news online, people getting upset or even angry because after all the cuts and people being denied benefits it could seem unfair. It has been so nice to share good news though.

Kizzy, you asking about it was okay, I am talking about people who are unlikely to post here.

Quote
DLA was paid for the time up to PIP beginning

Yes no back money for the difference between PIP and DLA from start of a successful claim and almost a month wait for PIP payment to go in bank.
Title: Re: The dreaded DLA to PIP transfer
Post by: seegee on 30 Jul 2017 12:16AM
Seegee

The person who filled in your form did a good job and must have asked for home visit, by way has with your ESA gone up as your now entitled to a premium (SDP) to be added - its 62.15 per week so ask some one to check your ESA is being paid the correct rate.

Monic

Monic, my last ESA payment was 219:30, I suppose that's 108:15/week?

Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 30 Jul 2017 08:47AM
Seeger that is just esa support group, you need to complete an ESA3 form asap . Phone dwp if you can cos your missing out on disability premium and severe disability premium. I know you struggle with the phone but you need to check why they are not paying you the right amounts.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 30 Jul 2017 11:36AM
Seegee (good to see you here again, by the way) - sorry to read you found the PIP process so distressing.  Good result though  >thumbsup<  As Monic said, don't miss out on the extra premiums.. 

Like Sunshine, I also identify with the 'is it really that bad' feeling after having both a PIP and an ESA decision in my favour, as it were (now in Support Group, and awarded enhanced daily living PIP).  I think we spend a lot of time trying to convince ourselves we can cope more than we actually do!

Quote
Managing is not the same as being cured.

How right you are, I'm sure a lot of us here do a fair bit of 'managing' - it's a case of having to  >erm<

>edited to add
Title: Re: The dreaded DLA to PIP transfer
Post by: seegee on 30 Jul 2017 11:56AM
 ESA is 109:65 according to the last rating letter I have; can I get the form ESA3 by asking at the JC+ to have one sent to me?  I can probably do that as long as the security guard will let me wait to speak to someone - otherwise I can ask someone to phone for me in the next few weeks, or I can write...  Really, It's stupid that the departments don't give each other information. 
If I do get more money, will it be swallowed up by the council reducing the Direct Payments they give me to employ a PA (though they don't give help to find one anymore, so I don't currently have one :-(), or mean I have to pay some rent/CT?   

Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 30 Jul 2017 05:36PM
Quote
...can I get the form ESA3 by asking at the JC+ to have one sent to me?

You absolutely can!

Not sure about the Direct Payments side of it right now, but you won't pay more rent/CT as PIP, like DLA, is fully disregarded as income for that purpose, just as it is for other income-based benefits..
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 30 Jul 2017 05:39PM
..also, the premiums you might get would themselves be a part of an income-based ESA award, so again not relevant to a Housing Benefit or Council Tax Benefit claim. 
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 30 Jul 2017 06:41PM
Hi Seegee

As you have a PIP award of Enhanced Daily Living and Standard mob and are on ESA Support group your award should be like this

ESA                                       73.10
Support Group                        36.55
Enhanced Disability Premium   15.90 (payable due to the enhanced rate PIP DL)
Severe Disability Premium       62.45
which means you need a total 188.00 per week

subtract the 109.65 (and any other income) from that as I believe you are on contribution based ESA and you should be paid ESA income related 78.35.
As the benefit is income related you should then be entitled to full housing benefit and full council tax reduction.
Care costs often depend on the council so not sure how much they will ask for but if they are any decent they will help you maximise your income.

The DWP will say that they were not aware you were now related to income related ESA and that the obligation is on you to make a claim.  Some Jobcentre's have ESA3 forms
this is an old one and shows you the information you would be asked for https://www.whatdotheyknow.com/request/136119/response/331800/attach/3/ESA3%201012.pdf

As for phone calls, as long as you pass the security questions you can get someone else to do all the talking to get an ESA3 form sent to you.
Title: Re: The dreaded DLA to PIP transfer
Post by: seegee on 30 Jul 2017 08:16PM
Is there too much in my ISA? 
I have still got over 9500 as I'm rubbish at making decisions & getting stuff sorted out.  I could have had the whole flat organised, new carpet in this room, new furniture if only I could... well, you know how that goes. 
I really should get a PA.  >erm<

Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 30 Jul 2017 09:29PM
Hi
The capital limit is 6000' so you have 3500 over and for every 250 they take 1.00 off your award, they call it tariff income so it's 14 for your amount so instead of being paid 78.35 you should get 64.35, remember to tell them as your savings reduce.  >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: seegee on 31 Jul 2017 02:03PM
Thank you Monic.   >thankyou<
I'll get onto it when I can (I've mentioned it to my sister & I know she won't let it rest for long, so it'll have to be done soon). 

Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 31 Jul 2017 07:41PM
Am I right in thinking if I was to apply for PIP again at some point because my mobility has worsened (currently awarded enhanced care. I and my CPN believed at the time I was entitled to standard mobility but I didn't have the fight. Since then my mobility has worsened considerably. When walking, almost every time,  I get an electric shock type feeling in my ddd lumbar region. It feels like I've been tazered. It sends my body into shock and it takes me 2-4 days to recover by resting horizontally with strong opioids.

My questions are

1) How long do you have had to have had the condition for in order to claim for it? Well I've had the ddd years and it's always restricted my mobility so it's been declared on my previous PIP form but this electric shock sensation and the recovery time needed afterwards has only been the last 2-3 months, so it's upped the anti. Because of this and having no car I am basically housebound because if I walk anywhere I'm getting the shock plus recovery time afterwards.

But

2) if I were to claim again due to a change in my health would this be the change of circumstance that would transfer me onto universal credit as that's in my area for new claimants and people with a change of circumstance.

3) If it does mean I'm transferring to UC will that leave my income the same or lower it? I really don't know whether to reapply but a car could transform my life. I'd need enhanced mobility for a car though.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 31 Jul 2017 08:52PM
Fiz
the qualifying period is nine months, 3 back and 6 forward so you think you meet that because you already have it and declared it last time around, well playing devils advocate, you would need to be a lot worse to meet the criteria for enhanced -  Can stand and then move more than 1 metre but no more than 20 metres, either aided or unaided. 12 points,  you will need to have this for another six months before you even consider requesting a review.

The other thing you have to consider is that they will look at everything again.

The PIP renewal form is not the same as the PIP application form, 
the form asks - is you condition the same worse or better & you tend to lose points.
you will then be called for another medical and might get a decision stopping your award immediately despite you being awarded enhanced daily living until 2019.   Standard mobility is 22.00 and the government keeps changing the interpretation of the criteria,

one claimant had enhanced and enhanced yet got only 4 points on renewal, after a mandatory reconsideration this was knocked down to 2 points and at tribunal the claimant got nil.  the judge told me the original award was wrong.

As for UC IF you are in a FULL SERVICE are not a live service area getting mobility would not make any change but if you lost your enhanced daily living and reverted to ESA SG contributions based benefit and then got an element of daily living PIP back you would normally get an element of income related ESA paid (SDP)  - This does not exist in full service area as there are no disability premiums in UC.

I can't really answer questions about a FULL service are cos DWP are still writing the rules.  One thing I do remember is that if your ESA award is above what a new claimant to UC ESA would get, you will stay on the same amount for several years, there would be no annual uprating.

Our advice to folk like you is wait till you get sent a renewal as its very risky unless you have a definite that you meet the criteria.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Aug 2017 07:16AM
Yup I think I'll leave it be! Thanks Monic.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 01 Aug 2017 02:29PM
Useful information as always, thank you Monic and Fiz, I feel less worried about not having declared a deterioration in my condition now.

I've just had a very thin brown envelope land through the door from Wolverhampton, dated a week ago, sent first class, saying that DWP now have all the information necessary to make a judgement on my claim. My assessment was on the 11th July. 

A friend who went from enhanced to standard mobility had the decision in a couple of weeks. I'm wondering if my delay is good or bad news, or just not a delay really, as the time varies.

If I keep enhanced mobility and get standard care (the best result I can hope for), the delay will save the DWP some cash, as I currently get zero care.

I'm not an anxious person generally, but seeing the brown envelope raised my heart rate somewhat...!
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 01 Aug 2017 02:52PM
I know 3 people who can walk the same distance as me who have motorbility cars, 2 of those people I guess must have represented themselves differently. One friend I know would exaggerate nothing I assume has hers because she has breast cancer secondaries in her shoulder and lumbar area of the spine. Her main problem I think is fatigue, she can never get anywhere before midday at the earliest.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 04 Aug 2017 02:26PM
A joy shared, is a joy doubled.
I GOT MY PIP AWARD!  >biggergrin< >biggergrin< >biggergrin< >thumbsup< >thumbsup< >cancan< >cancan< >bliss< >bliss<
THE BEST RESULT I COULD HAVE HOPED FOR!
 Standard rate care, (9 points, got 3 on bathing as realistically I need help, but struggle on without it).

Enhanced mobility, which is what I have now, I had zero care previously.

They will contact me again after 2027, apparently, well, that's what they are saying now.

 I'm aware that my result, i.e. more money following re-assessment, doesn't generally reflect most person's experiences, but I had deteriorated significantly, since my original assessment in 2009.

My daughter was here visiting when I opened the letter.
We shared a very happy moment, (and the bottle of wine I won in a raffle, earlier in the week) over lunch.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 04 Aug 2017 02:43PM
Congratulations AndMac, what a brilliant, brilliant result!  >star< >bubbly< >magic< >magicfairy<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 04 Aug 2017 07:39PM
 >biggrin<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 04 Aug 2017 08:22PM
AndMac

remember that standard daily living means that you qualify for the severe disability premium or someone can now claim carers allowance for looking after you, have a look at the calculation I did earlier in the post and contact DWP as soon as you can,
congratulations on the award
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 04 Aug 2017 08:42PM
 >thumbsup< >star< >cheers< >cancan<

I am so pleased for you  >bighugs< thank you for posting the good news here.
Title: Re: The dreaded DLA to PIP transfer
Post by: AndMac on 05 Aug 2017 03:38AM
Thanks all.
Thanks Monic, alas, I can't have more cash, I work from home, so I don't get ESA.
  I've never claimed it, I've not been out of work for many years, luckily.  Though it nearly happened recently, and would have done, if I hadn't got  an online job working as an English instructor, back in May.

 I do get Disabled Person's Working Tax Credit, but I need enhanced living for extra money with that. It's not a biggie.
I'm a 'self-carer', but it's useful information. 
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 05 Aug 2017 10:43AM
AndMac,

Quote
I do get Disabled Person's Working Tax Credit, but I need enhanced living for extra money with that. It's not a biggie.

I am so glad you mentioned this because I had not thought of it myself and it should mean we get a higher Tax Credit award thank you,

I had got caught up in trying to figure out what carer's allowance was supposed to be for when someone on Contributions based ESA cant get it when they care for someone who has been awarded enchanced PIP care. It turned out it had to do with income replacement and getting the ESA I do counts as income replacement  >doh< I keep hoping I got this wrong  :-(
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 05 Aug 2017 07:42PM
Sunshine Meadows

Your talking about underlying entitlement to carers allowance, where you cant get paid carers because another benefit pays more than carers does.  What happens is the amount you need to live off increases (applicable amount)  If you and Mr Sunshine both get standard rate daily living then you should both claim carers allowance and then you would be entitled to 2 x carers premiums and 2 x SDP added to your applicable amount.  Then if your income from con based benefits is less than this new figure you'd be due income related benefits, 10p of income related benefits gets you full rent rebate or council tax reduction in most places.

AndMac - at least you got the decent award and I'm glad your getting the disability element of working tax credits.

Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 05 Aug 2017 09:32PM
Thank you Monic  >thumbsup<Mr Sunshine works so we dont get any of the income based stuff. I count myself as better off than a lot of sick or disabled partners because I was moved into the Support Group ESA not long before my time limited WRAG ESA, so do bring some money into the house. I do also get DLA. He is a good man and does not make anything of who brings what to the house.
 :-)
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 11 Aug 2017 02:57PM
Well, I got my PIP result today - I was on DLA HRM and LRC before.  I've been awarded Enhanced Rate Mobility and Enhanced Rate Care!!!!  Even more astonishing, I won't be reviewed until after July 2027!!!!!

I can't believe it - I'm so relieved that I don't have to deal with losing my adapted car.  I'm a bit stunned about the enhanced care - like others have said, its sobering to realise that I have been assessed as having that level of difficulty in caring for myself.  I'm clearly not likely to get that cure I was waiting for either given the lengthy period of the award!!

I've not has the letter about my ESA re-assessment yet.  I did get a random text the other day saying the recent medical I'd told them about wouldn't be affecting my ESA award. I now wonder if the ESA award letter continuing my existing support group award has actually gotten lost in the post some time back. Obviously I didn't tell them about my PIP medical - they sent both claim forms at the same time.

So, its a huge relief and I don't need to worry about PIP for the next 10 years. I know its good news but somehow it doesn't really feel like it given the reinforcement of my increased inability to cope with my own care and the permanence of my disability.  I knew these things but somehow being officially processed and formally told is different - more real.     
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Aug 2017 03:16PM
Am I the only one here that still hasn't heard about my PIP?  The whole process of my transfer was delayed for a while because out of the blue they demanded to see evidence of my date of birth.   You'd think they might have worked it out (1) from my application and (2) from the umpteen various benefits I've been claiming for decades galore.   >doh<

Then I asked for extra time as well, so I didn't send off my application until 20/7/17, 3 weeks ago.   

I'm minded to buy a secondhand police-style interview dual tape recorder for the assessment, but they're expensive, so I don't want to buy one unless I have to and I'm hoping I won't need to have an assessment.

I know the info is online, maybe linked on this thread, but my brain's in a whirr, so does anyone have the info to hand on whether there's a minimum period between being notified of whether you have to attend an assessment and the appointment date?  What I mean is, is it at least a couple of weeks so I can buy a tape deck and pick it up at a click-and-collect point? 

Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 11 Aug 2017 03:52PM
It was almost 4 months from me returning my completed form until I was sent a letter with an assessment appointment date.  The letter with the notice of the assessment appointment date gave me a couple of weeks notice of the appointment itself.  I had to call and change the first assessment date due to a funeral so that delayed the appointment 3 weeks in total.  Its taken about 4 weeks from the assessment date to get the award letter but at the assessment they said it could take up to 7 weeks.   

I don't want to be Debbie Downer but I think you are wasting your money buying that recording device for the assessment.  Even if it makes 2 simultaneous identical recordings, I would be 99.9% certain that the DWP won't let you use your own recording equipment.  Before you spend any money, you should contact them and ask whether they will permit it. I am pretty certain, however, you will find that they will only permit the use of their own authorised recording equipment.  It is impossible for the DWP to physically check and vet the suitability, functionality and electrical safety of any device that they have not supplied so they will simply refuse to let you use it.  You can't guarantee that it'll work perfectly either particularly given that you are buying it second hand.  It won't have been PAT tested by them so they will be entitled to refuse to let you plug the device into their premises as it could then constitute a Health & Safety at Work Act liability for them if it were to cause a fire.  If you are insisting on having the interview recorded then you need to tell them that on your PIP form or now, well in advance of the appointment, and also check what rights you have - I don't know whether applicants still have an absolute right to insist on having DWP supplied recording equipment made available at an appointment.     

The person doing your assessment is entitled to refuse to allow you to record them using your device if you turn up with it - they have legal rights as their voice is personal data under the Data Protection legislation.  Its different with DWP supplied equipment as that is equipment provided by their employer and their employment relationship governs what the employer can require them to do, the procedures and the security etc of the subsequent recording.

You only get one opportunity to re-arrange the given appointment time/date.  If you need to re-arrange it a second time then you have to justify that with a good enough reason or they can cancel your whole claim.  Just be aware of that if you do want to try and go ahead with taking your own recording equipment. If that causes a hold up or delay you may not get another chance to rearrange your appointment a second time.     
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 11 Aug 2017 03:57PM
Neurochick,

That is wonderful news thank you for sharing it with us  >bighugs<

Quote
I knew these things but somehow being officially processed and formally told is different - more real.     

In my opinion this is the toughest part of the process. It has taken me weeks to get used to the fact Mr Sunshine has been assessed as being as disabled as he is. It is even harder when it is a person's own claim. I hope you get the ESA outcome soon  >rainbow2<

Sunny,

Did you add in a lot of additional information if so it could be the powers that be decided to give you a paper assessment and no medical. It will take time for a person to sit down and read it through I think it took more than 3 weeks for Mr Sunshine to get his appointment for assessment.

 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 11 Aug 2017 04:52PM
Neurochick - congratulations  >star< and  >bighugs<

Sunny - please have a  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Aug 2017 05:12PM
On the recording device thing - I know others who've recorded assessments, and you can do it so long as it's all arranged in advance.  The alternative would be to take a palantypist (which they cannot refuse under EU law) which would probably actually be more stressful for the assessor than a recording.

As to which equipment, I'm only going on the basis of what they've agreed to others using.  By using a particular brand and model of equipment, it saves them researching whether it meets their requirements, and they're rechargeable.

But obviously, the alternative is to insist that they provide the equipment.

I'm also planning to take a friend with me.  It's currently a choice between two lawyers and a judge.  It just depends which friend can fit me in.

As regards additional info, it ran to about 120 pages, including both evidence and explanation.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 11 Aug 2017 07:50PM
Sunny, 3 weeks isn't really that long in relation to PIP claims - DLA used to take about 7 - 12 weeks, if I recall right.  It is the horrible part though, waiting and wondering, as if completing the wretched form ain't bad enough  >hugs<

Neurochick, your award sounds fantabulous, especially not having to be reassessed for ten years - the 'reinforcement of how disabled you are' effect does pass off quite quickly as the relief (of not having to tussle with the DWP) sets in, I assure you  >thumbsup<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Aug 2017 08:30PM
I don't mind the wait too much if it also puts off any assessment.  I'm just stressed out so finding it difficult to get things in perspective.  Anyway, a whole load of successes on here is encouraging me, so that even if I don't get it, I shall feel it's worth appealing.

Time-wise it's difficult, because I'm sorting out certain practicalities following a bereavement and also waiting on an oncology referral (possible oral cancer).  It says how life feels for me at the moment that when I realised I might have cancer, my thought wasn't "Oh no, I might die!" but "Oh no, how will I fit in all those investigative and treatment appointments, and I haven't made a new will yet!"

Oh you lovely, lovely Ouchers with all the encouraging positive feedback about your benefits results to encourage the rest of us!
Title: Re: The dreaded DLA to PIP transfer
Post by: Fiz on 11 Aug 2017 09:06PM
Really pleased for you Neuro!   >bubbly< >bubbly<  (that's a glass each, I'm toasting your success)

Sunny, I'm a bit awe inspired by your high up friends. I have 2 friends and they're both unqualified care assistants. I need to mix in different circles. Or any circle would help. As would leaving the house! Hugs to you though, such a stressful time  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 11 Aug 2017 09:11PM
Hi Sunny
if you sent 120 pages of evidence I would put your application to the back of the pile cos I'd need a clear head to even consider looking at it. And I'm not an assessor, I only have to read appeal papers and the thicker the papers the more often I put off looking at them, I just cant face them along with the 10 other things I have to do at the same time.

It will take them 6 - 12 weeks to look at your case, decided if you need an assessment before they pass the info to the dwp who can take another 18 weeks to make a decision so 3 weeks will only have got your papers added to a workers in tray.

As for recording, the others are correct that you need to notify them in advance that you want the assessment recorded to allow them to set it up,  I would just take your pal with you and introduce them as "retired Judge/QC whomever, who is here to make sure I know what happens today as I have a very poor memory"

Easy for me but try not to stress about PIP when you have lots of other things to be concerned about.
Monic
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Aug 2017 09:54PM
Thank you for the reassurance.
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 11 Aug 2017 10:00PM
Thank you all for the congratulations. It is somewhat bizarre that we are all so pleased about being found to be more disabled than we thought we were!!  Its a huge relief. 

On the upside Sunny, when I went to my appointment the assessor was at pains to ensure that I could see his screen the whole time to make sure that I could see the wording of all of the questions and could see everything that he typed into the boxes on the screen as we went along.  The questions on the on-screen form are pretty much the same as the ones you have answered on the form.  As I had provided a clear printed document with my detailed answers to each question, he told me that he already had my answers to the questions but we still had to go through the formality of the process.  As it turned out, he typed very little into the form because he would just have been repeating everything I had already provided in my document - we'd have been there for hours for no additional information!   In reality all he was doing was going through the motions and I suspect checking that what I said on the day was consistent with what I'd written.  If I had been unhappy with anything he wrote down I was able to raise that there and then.  My document with my answers and explanations was a mere 8 or so printed pages.  The assessor had read all of document immediately before the assessment.  In my case he told me at the end that he didn't need to see me physically move or demonstrate what I could/couldn't do.   

I suspect the efforts to try and show people what is being written as the interview goes along is a policy decision as a reaction to the countless claims that assessors were lying about what people said and were writing down all manner of things that people didn't know about or didn't say.  The assessor still has to write up the full report which you don't see them do so I guess that's where your witness is helpful if you later have to challenge anything.  I've no idea how the full, final report compares to what I saw typed on screen.  I guess I should ask for a copy of mine.  Again, I was very much encouraged by the assessor to ask the DWP for a copy of his report.       

The official information leaflet sent to you before the appointment positively encourages applicants to bring someone to the appointment so there is no need to explain why you have someone with you.  Its expected that you will take someone into the assessment with you.  I did that as its their recommendation. I took a friend.  I'd have done that anyway to ensure that I had a witness to what happened and what was said.  They only ask for the name of the person and their relationship to you, such as 'friend' or 'spouse', not their occupation. I can't recall if they even asked for his address.

If you are certain that you will want to record your face to face assessment, I recommend you agree all of that with the DWP now so that you aren't trying to do it at the last minute once you get the appointment date through - you will almost certainly only get 2-3 weeks notice of the date and I've already mentioned the issues about asking to change the date more then once.  If you have agreed everything up front you don't then actually need to buy the equipment unless and until you are called for the face to face assessment.  If you later change your mind and decide not to record it, then it shouldn't matter.       
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Aug 2017 10:27PM
Yes, that makes sense to get in touch with them and discuss recording the assessment rather than waiting to be called for interview before I get in touch.  Thank you.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 12 Aug 2017 08:47AM
Neurochick,

Quote
It is somewhat bizarre that we are all so pleased about being found to be more disabled than we thought we were!!

Yes maybe it is because for a long time some people expected to be assessed ass less disaabled than they thought they were.
I have not had my own PIP assessment yet and even with all this good news of people getting assessed properly with the right outcome I am still a bit scared.

Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 12 Aug 2017 07:55PM
Yes, I think about it a lot.  I have heard nothing but think of answers in my head.
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 13 Aug 2017 09:55PM
Well there is absolutely no doubt in my mind that the DWP have been waiting for the outcome of my PIP face to face assessment in order to use that to determine my ESA claim.  Even though these are entirely different benefits with different criteria I'm sure they are using the PIP process to determine the outcome of the ESA one.  I got no fewer than 3 identical letters yesterday confirming that my ESA Support Group claim will continue as before - 2 dated the same day and the other dated the following day!!   I submitted the same answers and the same medical information as I had on each of the 3 previous occasions.  Every single time I've been confirmed straight into the Support Group within 2 or 3 weeks without a face to face assessment.  This time its taken 5.5 months.  None of the descriptors or tribunal decisions out there would actually make difference to my claim so that hasn't held it up and nothing else has changed.

All I'd say is be aware of this kind of thing happening and make sure that there is nothing inconsistent on your forms for different benefits.     
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 14 Aug 2017 07:34AM
Neurochick, the delay is due to staff shortages and the roll out of uc
There are backlogs everywhere and esa reassessment is one where as long as your money is paid you just leave it alone.
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 14 Aug 2017 01:41PM
Trust me, I was leaving it well alone!!! Its the sodding DWP who won't leave my ESA alone!
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 14 Aug 2017 01:50PM
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 15 Aug 2017 12:56AM
Just in case I wasn't sure, I received another two identical letters in the post from the DWP confirming my ESA award!!!  For those who aren't following this thread, I've now had 5 absolutely identical copies (except for the dates - 3 on one date, 2 dated the previous day) of the same letter confirming my my ESA re-assessment outcome!!! 

5 copies of the same letter - is this a record do you think?!!  I wonder if more will come tomorrow in case I wasn't clear what the decision was!! 
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 15 Aug 2017 11:39AM
Some DWP processor's finger must have slipped on their keyboard...
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 15 Aug 2017 02:37PM
I can't compete as regards numbers of letters but I still reckon I hold the Ouch prize for the weirdest letter from the social - the one replying to my PIP application demanding that I provide proof of my date of birth.  Don't you think they should have checked that before demanding NI payments from me in the seventies, eighties, nineties...

Or before giving me unemployment benefit in the days when you went down the dole office with your UB40 and got a giro.  That was in the eighties. 

So they've been taking NI off me for decades and paying me benefits on and off for decades and only now they ask for proof of my date of  birth?

Title: Re: The dreaded DLA to PIP transfer
Post by: ATurtle on 15 Aug 2017 09:29PM
So, at 56p for postage, 3p for the envelope and paper, 1p for the ink, and 40p for the overpaid people stuffing the envelope and pressing the button to produce the letter.  That's 1 per letter!  What a waste!
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 15 Aug 2017 11:26PM
You weren't suggesting that after all the cutbacks, the time and effort of the staff plus the stationery etc. the DWP uses its budget for should be used wisely?  Have you had your sanity checked recently?  Or have we got a new Minister for Work and Pensions whilst I wasn't looking?  >run<
Title: Re: The dreaded DLA to PIP transfer
Post by: neurochick on 16 Aug 2017 01:47AM
It is crazy!! 5 is madness - oh, plus a text from them too confirming my ESA wouldn't be affected by my recent medical!!
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 16 Aug 2017 02:51PM
Won't be affected? Good, that means they won't call you in for another re-assessment for at least 10 days.   >devil<

Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 22 Aug 2017 06:32PM
I just saw my GP about something else and he said the DWP had contacted him about my PIP.  He said he'd told them I should get it and that he was confident that I would.

I found it difficult, though.  I told him how I'd felt over what he'd written and given me to send to them, how my initial reaction was that it was great, it would really help, and that when I got home and looked at it again, I felt awful when I stopped to think that it was true.  He seemed to understand.

I wonder whether they told him how long my application was.  My additional info plus enclosures added up to about a hundred pages.  The thought the DWP might have told him some of what was in them was humiliating.  Nothing wasn't true, but it was all rather openly expressed.  Page after page after page of how much is wrong with me, how much difficulty I have.  Excruciating.

I suppose if they'd expressed concerns about how bonkers I am, he'd have got in touch with  me, not waited for me to get in touch with him. 

It was very, very kind of him to be so helpful.  He's a very kind man.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 22 Aug 2017 09:11PM
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 22 Aug 2017 09:41PM
A helpful GP (or any other professional) who supports benefit applications is worth their weight in gold...

Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 22 Aug 2017 10:17PM
I have a wonderful GP.  I hope he knows how good he is.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 22 Aug 2017 11:31PM
Sunny all the dwp tell the GP is that they are looking again at your claim and ask him to complete and return the GL7 form, at least that's what the form was called in the past. It's rare they tell the Gl anything.
Take care
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 23 Aug 2017 12:02AM
Do they pay much attention to the form?  I mean, is it a good thing or a bad thing or a random thing that they ask a GP to fill it in?

One thing that's been worrying me this evening is that he seemed a little surprised when I told him how many falls I'm having.  Not surprised as in its being an odd thing, more surprised, I suppose, that I hadn't been telling him how much of a problem it is.

Oh well, he did seem very confident.

I'm as certain as I can be that I won't get the mobility element but I'm still hoping I might get enhanced care.

It's times like this I wish my ataxia support group met every week not every couple of months.
Title: Re: The dreaded DLA to PIP transfer
Post by: Monic1511 on 23 Aug 2017 08:19PM
They do read the form and the form asks what your daily care needs are so that depends on the way your GP interprets "care needs"

You might be surprised in a good way.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 23 Aug 2017 09:04PM
Well, my GP did seem very confident.

Having said that, I did think again and again as I was doing my PIP paperwork how much there is I never tell my GP about.  Not hiding things from him, just not seeing him simply for the sake of it, as it were.  But on the other hand, he's experienced and wise and can probably observe my scattiness etc. just during an ordinary appointment and correctly infer its impact on things like cooking.  Likewise, even though engaging with him isn't the same as engaging with others, he can still pick up on things like my general communication and interaction problems. 

I'm so close to meltdown right now that everything that doesn't go wrong is a wonderful blessing.
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 24 Aug 2017 12:35PM
 >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Aug 2017 09:19PM
Thank you.

Today, I spent some time reminding myself how much I've actually been doing.  Even as I type this, I think "Wow, I did that PIP application with all those appendices, evidence etc!"

But it's hard to see it, isn't it?

All I can do now is to focus on what I'm doing positively.

And eat chocolate.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 24 Aug 2017 09:27PM
Chocolate is good therapy  >thumbsup< >chocolate<

Sunny, for what it's worth, I don't actually think you'll have any trouble qualifying for PIP - I mean, I managed to get it without a face-to-face assessment and we're both a pair of mentalists of the highest order... Not only that, but you also have some physical issues thrown into the mix, so I would be extremely amazed if you weren't given the Standard rate at the very least!!

Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Aug 2017 10:11PM
I feel a bit niggly over losing my DLA, which is over a hundred quid a week, and I'm definitely not going to be getting that much PIP.  But there you go.  We'll see what I do get.
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 24 Aug 2017 10:30PM
Exactly.  there is nothing that you can do about it except wait.  Is there anything you can do to take your mind off the whole subject?
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 24 Aug 2017 10:36PM
I've been doing family financial paperwork, but I need a break from that, so maybe a day out somewhere.  I'm not very good at days out these days but I bet it would do me the world of good.

Meanwhile, I'm a late-to-bed person and I'm going to see if I can head bedwards in a short while.  Maybe if I can change my patterns to more sensible times, I can feel more positive. 

Oh, positive's not good unless I'm manic.  It means I'm well enough to go back to work, doesn't it?  I can trust Freud, IDS and Green on such matters, can't I?   >whistle<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 25 Aug 2017 07:49PM
I was thinking that I would look up google and see if there are any local gardens open to the public on bank holiday Monday.  That is always good for the soul.
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 09 Sep 2017 10:44AM
Cheers NN

should be HR for both components but who knows what the result will be. The big problem is that she has no contact with any health professionals except approx. once per year with her GP so not much independent evidence.
Not helped by the fact she will go "oh yes I can do that" when actually she can't .Though to be fair had this worry when filled in her last WCA (if still called that) yet that came back as straight in support group with no face to face assesment
latest update
had a face to face in August with someone who appeared to have no medical knowledge at all (asked me what Hemiplaegic meant ! ) and seemed to be jumping to strange conclusions. After this I was very suspicious and today the decision letter arrived & Mrs asked me what it meant. Turns out she got 31 points for living & 24 for mobility so both Enhanced rates and the award runs to Aug 2027.
So party round ours & you're all invited <pretend a drinks gif is here>

Hope for any of you going thru this draining process it turns out as well for you as for the Mrs.

PS the scores per category seemed  bit random but in the circumstances don't think I will raise that issue with the DWP <whistles>
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 09 Sep 2017 02:58PM
Fantastic news Big Muff! Congrats to Mrs and you, and I hope you'll both enjoy a well earned rest after all the stress.  >bubbly< >magic< >star<
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 09 Sep 2017 05:18PM
Fantastic news Big Muff! Congrats to Mrs and you, and I hope you'll both enjoy a well earned rest after all the stress.  >bubbly< >magic< >star<
Cheers NN
yeah has been stressful made worse by me breaking my shoulder when I fell out my chair at start of May.
Best thing is I recently found a physio near us who specialises in neuro physio and at 75 per session the extra care money will come in handy particularly as it is clearly improving the wifes confidence when walking so will be an ongoing cost.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 09 Sep 2017 05:23PM
Thanks for posting the Mrs's result, Big Muff - delighted for you both at the outcome  >thumbsup<

Hope your shoulder continues to improve, too!
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 09 Sep 2017 05:33PM
Well done Big Muff  >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 09 Sep 2017 09:15PM
 >bighugs< >bubbly< >party< >tea< >mug-beer< >mug-tea<

Great news thank you it helps me feel hopeful about when my PIP time comes up.

Title: Re: The dreaded DLA to PIP transfer
Post by: gorbut on 11 Sep 2017 09:36AM
Good news always nice to hear. My son and daughter also got 10 year awards so the system does seem to be working correctly some of the time.
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 11 Sep 2017 05:00PM
I'm also going through the dla to pip scenario.  I couldn't get through to them on NGT lite.  I then discovered that it's not compatible with 0800 numbers, which the Dwp use.  My husband had to ring them on my behalf.  They've just rang.  They're coming out to my house on Wednesday morning.  Not for a f to f as I haven't had the forms to fill out yet.  It's sign the forms so my husband can ring them on my behalf.  I'm not best pleased  over that at all. It looks as though I'm going to go through a lot of stress between now, and up until it's over.   >crying<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 11 Sep 2017 06:18PM
 >hugs<  chin up ally.  There are plenty of people on here who have been through it who will be able to support you.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 11 Sep 2017 09:17PM
Congratulations to Big Muff and hugs for Ally.

I'm still waiting for a date for my assessment.  I sent my forms in nearly two months ago.  My GP seems certain that what he's told them will do the trick, but I never though to ask him what rate he thought I'd get.  But what others are saying here is keeping my hopes up.

I get frustrated over communication problems on the phone to call centres with my poor sound discrimination and I'm dreading the assessment, but I realise that by comparison with Ally, I'm lucky.  I think it's disgusting their system isn't compatible with NGT lite. 
Title: Re: The dreaded DLA to PIP transfer
Post by: NeuralgicNeurotic on 11 Sep 2017 10:38PM
Ally and Sunny  >hugs< >hugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 12 Sep 2017 08:44AM
Thank you.  I'll let everyone know how it goes tomorrow.  My husband says its for POA over me so he can answer the phones on my behalf.  Why havent the Dwp thought about this before now?  The pip forms are not on line due to the bar code procedure, as far as I know?  I'm not the only profoundly deaf person this will affect.  Due to the cuts in cab, social workers for the deaf etc, many deaf will struggle with the forms too.  Understanding the English will be too difficult for them

I started typing the answers to  the pip questions on a word app months ago.  I have all my medical stuff scanned, copied, number coordinated, and in plastic folders ready to send, before  the forms arrive.  Therefore, I'm pretty well organised compared to many.  However, I wasn't contemplating this obstacle. POA over me is something I didn't expect.  I feel as though my rights as a person is being violated.somehow.  See how it goes tomorrow.  Thanks  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 12 Sep 2017 11:54AM
Quote
I have all my medical stuff scanned, copied, number coordinated, and in plastic folders ready to send, before  the forms arrive.


 >thumbsup< and hope you get a good award after all the malarkey!!  >x-fingers<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 12 Sep 2017 12:48PM
I just had a word with AHL  (= RNID).

They gave me a 'test' email for the DWP:

rfp1.pilot@DWP.GSI.gov.uk

(I'm not sure about the upper and lower case, but I don't think it matters, does it?)

Anyway, even if Maximus/Capita won't use it, maybe when dealing with the DWP decision makers it would work?
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 12 Sep 2017 03:51PM
I just had a word with AHL  (= RNID).

They gave me a 'test' email for the DWP:

rfp1.pilot@DWP.GSI.gov.uk

(I'm not sure about the upper and lower case, but I don't think it matters, does it?)

Anyway, even if Maximus/Capita won't use it, maybe when dealing with the DWP decision makers it would work?
i'd be amazed if that e-mail address is for the use of the general public tbh due to the "pilot" reference. You would need to check with whoever supplied you with it what guidance had been issued for its use.
Capita etc did not have access to DWP e-mail accounts a couple of years ago & doubt that has changed though who knows these days
Title: Re: The dreaded DLA to PIP transfer
Post by: Big Muff on 12 Sep 2017 04:01PM
Thank you.  I'll let everyone know how it goes tomorrow.  My husband says its for POA over me so he can answer the phones on my behalf.  Why havent the Dwp thought about this before now?  The pip forms are not on line due to the bar code procedure, as far as I know?  I'm not the only profoundly deaf person this will affect.  Due to the cuts in cab, social workers for the deaf etc, many deaf will struggle with the forms too.  Understanding the English will be too difficult for them

I started typing the answers to  the pip questions on a word app months ago.  I have all my medical stuff scanned, copied, number coordinated, and in plastic folders ready to send, before  the forms arrive.  Therefore, I'm pretty well organised compared to many.  However, I wasn't contemplating this obstacle. POA over me is something I didn't expect.  I feel as though my rights as a person is being violated.somehow.  See how it goes tomorrow.  Thanks  >bighugs<
so the DWP what you to grant POA simply due to the fact they cant "talk" to you on the phone !
The POA doesn't take effect until registered with the court of protection  anyway so assume it is a notional POA  just for their purposes.

Have to say I did the telephone section of the claim for the wife but she did "confirm" her identity - she said "yes" when asked if she was Mrs Air and she wanted me to act on her behalf <laugh> tbf had a sensible agent who could see that her communication difficulties were a large part of the existing DLA claim.
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 12 Sep 2017 04:41PM
Sunny thanks  for the test email for the Dwp.  I didn't use it, due to some on the B&W trying it, and had problems with it.  Apparently, the forms either didn't arrive, or, arrived too late.  It seems hit and miss.  I wanted everything out of the way, with no restrictions.  As soon as the forms arrive, I intend to fill them in ASAP.  The typed out answers will be attached to the form, and sent off within a couple of days.  The less stressed out I am the better.  It plays havoc with my pain levels. 

It's just Sod's law that I've hit the obstacle with being unable to use a phone.  What amazes me, is the fact that the Dwp haven't thought about the population of deaf in the U.K. who will be scuppered that way.  Will every deaf person be visited by the Dwp with forms to fill in for the POA?  If so, their staff levels will be depleted, if they're out of the office  visiting the deaf.  It's crazy!!

KK I'll need more then a gold award after this malarkey.  I thought I had everything covered.  I thought wrong  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 13 Sep 2017 03:51PM
The DWP worker duly arrived this morning.  The Dwp department that deals with the calls for changeover from dla to pip had asked her to call about POA over me.  She spent some time talking to my husband, and, apologised for wasting our morning.  Since I'm not suffering from dementia. Nor do I have a learning disability, being deaf doesn't mean I need a POA.  She took all the details of the difficulties we had trying to ring the number on the pip form, and, promised to see what she can do.

I think the deaf, and others who need to,  should be allowed to apply for pip on line.  However, what I think, and what the Dwp think, are two different matters entirely.   I knew from what I'd read about implementing pip,  that the deaf would have issues applying by phone.  Surely, they could've sorted it out by now.  I'm waiting to see what happens with the above.  So far, if I need to contact the department again, I'm still going to have the same issues.  I'll let you know what transpires with the above, if anything.  Thanks for the support  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 13 Sep 2017 04:19PM
The irony is that as I understand it, UC has to be applied for online. It seems to be random which benefits you can apply for which way, and certainly not to make anything better or easier for anyone.

I thought about my PIP application and how someone in a centre somewhere is supposed to scan every page into the system.  I bet some of my pages got lost.  Imagine if I could have emailed it as an attachment or sent it on a disk.

Oh well, hopefully you'll get there in the end. 

I'm afraid that after hoping from what my GP said that I wouldn't need an assessment, I'm rather maliciously hoping not only that I'll get one but that I'll be able to ask the assessor to repeat everything over and over and over again and write stuff down etc.  Horrible, but the mood I'm in.  PIP's supposed to be for people with a variety of extra needs but the system doesn't cater for extra needs.  Surreal.  I know that some of what's going on is just backdoor cuts, but it isn't all that.

Oh well, fingers crossed Ally.
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 13 Sep 2017 04:57PM
Sunny, I'm actually smiling and nodding in agreement, imagining you causing the assessor as much grief as possible.  Obviously, I hope you won't need a f to f.  However, if you do, I hope you do what you've promised.  In my case, I'll need an interpeter, and my husband present.  It's guaranteed I won't hear the assessor.  I can't even hear myself.  I don't always follow interpreters  either.  If I'm stressed, or, the meds make me woozy, my concentration goes out of the window.  I might end up doing what you've suggested, not out of choice, but, necessity.  I'm convinced that the changeover from dla to pip is made as stressful as possible for all claimants.  It stinks.
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 13 Sep 2017 11:01PM
I've a clinical appointment tomorrow.  Keep your fingers crossed for me - the last time I went to this clinic they 'lost' me for about 3 hours after not passing the message on to wave vigorously and shout very loudly in the very large, very crowded, very noisy waiting room.  Still, it could be worse - there was the clinic where nobody told me that the doctor had a buzzer.  It was nearly an hour before someone found me sitting in a totally empty waiting room with the building about to be closed for the night.  At least in this clinic, the doctor will send a letter to my GP so I can find out afterwards what he's said.  That may be useful, just as it was on the occasion when I attended hospital having broken a bone and returned home thinking they'd said I hadn't.  Oops! 
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 14 Sep 2017 09:14AM
Hope it goes well.   >x-fingers<  I can totally empathise with you.  I can't go to any appointments alone due to the issues you've mentioned.  I left hospital after my accident thinking I'd had a plate and scew job on my fractured hip.  It wasn't until my follow up appointment with the consultant after discharge,  that I discovered I had my hip replaced.  Years ago I had a cleaning job.  The Hoover wouldn't suck up, but I decided to continue cleaning the office I was in.  A man at his desk give me some strange looks, but, I ignored them.  It wasnt until I went to unplug the Hoover, that I realised it wasn't  plugged in.   >biggrin<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 14 Sep 2017 09:24PM
I had the day from hell.  At least unlike one clinic I went to years ago, they didn't leave me somewhere, accidentally forget about me, and lock up for the night.  But when I realised no one else was being called through and the only people left in the waiting room were 3 companions waiting for patients, I worked out I'd been forgotten again.

What hurts most isn't the lack of adjustments, it's the knowledge I've no one to go with me.  No family or close friends.  I tried to find out beforehand about lipspeakers but the nearest one is in another town, and I don't know how you book her.  I don't think you can even book an ordinary carer from an agency without being a regular client. 

In all seriousness, I think that if I need to go to a similar clinic in future I'll go private.  The clinical care won't be better than NHS but for extra money they'd probably have a smaller waiting room and better systems for calling people through.
Title: Re: The dreaded DLA to PIP transfer
Post by: KizzyKazaer on 14 Sep 2017 09:39PM
Sorry you had that experience, Sunny - and it shouldn't be so bad that you have to consider paying privately  >doh< >thumbsdown<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 14 Sep 2017 10:21PM
What did the receptionists say when you pointed this out Sunny?
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 14 Sep 2017 10:59PM
That they didn't know about the hearing problem.

It all comes down to a lack of communication.

But I've yet to ask for any adjustment that cost anything other than a message passed on from person A to person B and someone gesticulating or walking an extra 4-5 metres to collect me.

I felt so incredibly lonely with no one with me.

I wasn't going to say about it on here, but if someone from the clinic's a lurker, then I'm not saying here anything I didn't say to their faces.

I'm not asking them to go out and buy lots of expensive kit (although I don't think it would be unreasonable if for the benefit of those that find them helpful they bought some stuff like portable loops etc.).

The good side of all this is that various local people in shops saw I was upset and were kind.

I stumbled when I tried to step out of the way of some teenagers were larking about with a bit of chasing and friendly shoving and they stopped and asked if I was ok and how could they  help.  I said I've got balance problems and it's ok, the thing that really matters is when people aren't horrible if I stumble or fall, and it's a good thing when youngsters are lively and enjoying a bit of larking about.  They're like the youngsters that accidentally knocked me down some stairs recently.  It was scary to fall but ok because they stopped and asked if I was ok and I could say I was ok but it made the difference between feeling ok and feeling very upset that they'd stopped to make sure I was ok and thank you. 

But I feel increasingly anything between hesitant and scared to go anywhere.  I wish I knew how to overcome this psychological hurdle.  I keep trying but it takes more and more of an effort.

And to go back to the topic of the thread, the whole process of PIP has made me feel so much worse.  It was utterly humiliating doing the paperwork and the government knows it.  It's one of the many ways they try to stop us claiming.  And if a few of us depressives decide it's all too much?  More money saved.  If a few people with physical impairments can't do the basics and die of infections or hunger or whatever?  More money saved.

Surely that has to be a reason to keep going and, if I don't get PIP, to appeal etc.  To fight back, to take a stand.

Title: Re: The dreaded DLA to PIP transfer
Post by: Sunshine Meadows on 15 Sep 2017 09:51AM
 >bighugs< >bighugs< >bighugs< >chocolate< >chocolate< >chocolate<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 15 Sep 2017 12:57PM
Thank you.

I'm musing about how much this is helping and I think I'll post something more general elsethread.
Title: Re: The dreaded DLA to PIP transfer
Post by: huhn on 15 Sep 2017 05:12PM
we have here in Cyprus not DLA and no PIP but my big girl has a change in her payments for here illness or handicap and off course , it did not get smoothly, she got last month no money, now I have to wait is she getting this month her money or we have again  to fight again  for her rights. everywhere the  same problems how it looks. and  please do not laugh, the change took 3 years, even a snail is faster. >whistle< >whistle< >whistle< >whistle< >whistle< >whistle< >whistle<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 15 Sep 2017 05:55PM
 >bighugs< >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: auntieCtheM on 15 Sep 2017 07:47PM
Sunny, if it helps, every time you fall down think of it as extra proof that you need the money to pay someone to be with you when you go out.  Something else to tell the DWP at your hearing.  Maybe make a list of falls that you can take with you.
Title: Re: The dreaded DLA to PIP transfer
Post by: ally on 15 Sep 2017 08:10PM
Sunny when I posted about the POA being imposed on me against my will, it wasn't my intention to worry anyone  What you've posted below about your experience at a clinic, is something that's normal for someone deaf.  I've had it all my life.  Paying to go private won't solve the problem.  You need to educate those who don't understand deafness. Don't allow anyone to treat,  or, make you feel inferior.  If you've told the receptionists  you're deaf, and need someone to come over to get you, if they dont.   Make sure they know how you feel about it.  You deserve a lot more.

I often feel the odd one out on this forum.  I'm married with a husband who's always there for me, and,  I don't have MH problems.  However, I feel I've learnt a lot on here, and, I know how many struggle with loneliness, and, additional needs.  Without sounding condescending, I feel very sorry for many on here.  If I'm struggling with the forms,  feeling down, and they're making me focus inwards  on my disabilities..  God knows what it's doing to those on here.  So hugs to you sunny, Huhn, and everyone else.  Stay strong  >bighugs<
Title: Re: The dreaded DLA to PIP transfer
Post by: Sunny Clouds on 15 Sep 2017 09:39PM
Incidentally, in relation to the 'all my life' stuff...

My current hearing problems may be primarily relating to poor sound discrimination and poor hearing aids, but for years I've had less than ideal hearing, being of the generation of soldiers that didn't have ear-defenders.   (Now you know why sergeant majors shout!)  I also had some sensineural loss from severe ear infections at the age of about 5.

However, as a child I had what is now called glue ear, and for some years was profoundly deaf in one ear and severely deaf in the other.   I know what it is to go through the school day hearing very little at all of what the teachers said, sometimes nothing at all, for year after year.

Ironically, whilst my school was hopeless at dealing with it, I think that hospitals were generally better at dealing with patients with impairments round where I live when I was young.