Stop the detention of people with autism & learning disabilities in ATUís.

  • 6 Replies
  • 570 Views

Richard_D

  • *
  • Charter Member and Volunteer
  • Hero Member
  • *****
  • Posts: 1415
Stop the detention of people with autism & learning disabilities in ATUís.

Too many people with Autism and learning disabilities are detained in Assessment and Treatment Units (ATUs), some end up being put in seclusion units, this needs to stop.


People with Autism & learning disabilities need appropriate support and care and not be detained in units that cannot appropriately support them.

https://petition.parliament.uk/petitions/231406?fbclid=IwAR0Lv5hfyupyT052bla-MmjbySJkrsnuXZxZdUgMCPe9l3KJt79gvDk-Agg
July 2017- Autism Spectrum Condition.

On the edge

  • *
  • Gold Member
  • ***
  • Posts: 88
I think they are complying with insurances and 'legal duty of care' in preventing some free movement.  Which is meant for basic safety reasons, however, used in a blanket/global way, is unfair and anti-human rights.  If an autistic wants to move outside the building they should be allowed to and accompanied, again I suspect the issue is they don't want to pay for an escort service.  What we parents need is an end to family court/SS decisions that undermine autistic rights and parents rights as they move to protect their own systems and debatable care decision-making.  I  have also asked the welsh assembly to remove Local authorities having the ultimate control over financing care, because it fails to include neutral-professionals being involved or relatives who will rightly feel the current system is unworkable and damaging our young people and others in residential care too.  All LA's work via receiving advice from medical professionals and then deciding if an assessment transpires, it goes to their accounts to decide if they can/will meet the defined need.

However the very real issues of insurances and huge criticisms of current care provision even those who asses a child as needing a particular service provision will not oppose the LA who decides they cannot afford it, (or have decided against the medical advice).  Family courts where issues arise, we see the LA NOT calling on assessors to testify for the child, or for the parent's who believe the initial LA decision is bad for that child, despite family courts set up to include both sides of the issue, they close ranks.  The parents can be undermined by the very people who assessed the need, who won't attend the court to say one way or the other they believe the LA is not meeting the child's need, and also where a  residential area is refused attendance in case they support the fact the child needs more care and the LA won't pay them to provide it, at the same time, some residential areas not wanting to oppose LA decisions, in case they lose income!  There is vested and financial interest in NOT opposing bad LA decisions, where in reality, the social services are an irrelevance but used as buffers so the real culprits can blame everyone else.  No wonder my child had 4 social workers in 9 months, they cannot cope with the blame culture of their superiors and having their hands tied 24/7,and then pilloried for it.  They are there to take the flak for others.

Meanwhile, the kids and adults suffer on...  Having read the list of appeals on LA care decisions, I found only 3 in every 100 won an appeal, with the system backing itself to the hilt, right or wrong often using the law to our disadvatge, their legal cost must be considerable!  (Of course OUR legal aid was removed).
« Last Edit: 04 Jan 2019 12:02PM by On the edge »

huhn

  • *
  • Hero Member
  • *****
  • Posts: 832
that is similar to what I am fighting, my girl with  learning difficulties and  a syndrome similar to autism is  put in a  child care home without any proper access to therapies and medical care, the welfare claims, the girl is normal  and shows only  signs of neglect and is more and more cutting the access from my person to her and   nobody else is able to see her, no friends or family or  teacher. the  positive thing is , she is already 14 and so needs  when we are loosing the court case 4 years before  she  can  join the family

Spindrift

  • *
  • Newbie
  • Bronze Member
  • *
  • Posts: 21
Here is a link to a page on the National Autistic Society website, it has information and links there which provide more information than I already had (which was not much.

DD or Over the edge,

Do people get sent to the ATUs when their Local Authorities can't or wont provide care or are ATUs supposed to be there for assessing needs and not ongoing care? It is just this article is talking about NHS England and not local authorities. I think you are right about the financial aspect to this.

Quote
While the NHS used to operate most units, private firms now run half the beds available Ė making hundreds of millions from doing so. Barbara Keeley, Labourís Shadow Minister for Mental Health and Social Care, said Mr Hancock must explain Ďwhy companies with a vested interest in keeping vulnerable people in these Bedlam-like conditions are permitted to do so when they could be in community care for a fraction of the costí.

On the edge

  • *
  • Gold Member
  • ***
  • Posts: 88
Here is a link to a page on the National Autistic Society website, it has information and links there which provide more information than I already had (which was not much.

DD or Over the edge,

Do people get sent to the ATUs when their Local Authorities can't or wont provide care or are ATUs supposed to be there for assessing needs and not ongoing care? It is just this article is talking about NHS England and not local authorities. I think you are right about the financial aspect to this.

Quote
While the NHS used to operate most units, private firms now run half the beds available Ė making hundreds of millions from doing so. Barbara Keeley, Labourís Shadow Minister for Mental Health and Social Care, said Mr Hancock must explain Ďwhy companies with a vested interest in keeping vulnerable people in these Bedlam-like conditions are permitted to do so when they could be in community care for a fraction of the costí.

Its  valid point England, Wales, Scotland, and Northern Ireland operate differing levels of Autistic support because service provision is devolved, we should all 'Tag' posts with origin/source because we had the ridiculous situation in Wales, whereby some parents commuted to London to lobby on what was an English provision, not a Welsh one.  E.G. Wales has the worst provision in the entire UK for autistics, and a lot of care is 'exported' to England dividing families and causing huge issues with autistics themselves.  What it means if, LA's are forced to provide the appropriate level of care identified then the only answer is they leave Wales to get it.  NOT good news when we saw issues at Bristol where wholesale abuse of young autistic people was a norm.  Out of sight, out of mind!  In Wales we saw a woman with 3 autistic children kill one of them because the SS and LA refused to support her or her kids after the father deserted them she just lost it.  The lad was my son's friend in school. Another mother took her 12yr old son to a bridge and they both jumped off to their deaths, it's horrible, and these LA's hiding behind accountants need to be gaoled frankly.

huhn

  • *
  • Hero Member
  • *****
  • Posts: 832
so, I went today with my little  boy of 19 to his neurologist and ask , how is it to get papers that he can  move out and life independent that his 14 year old sister can come back, she look at me and ask was I serious, I can not let the boy life independent, there is not better care then mum , it  is the responsibility from the welfare to  provide  care that both children are living  at home. I know my girl  gets not the necessary care  and I do not know  how we solve the case. my two have  learning difficulty and communication problems and  something similar to autism. and  all the years I had no proper support and now  my court case is the last what we needed.

On the edge

  • *
  • Gold Member
  • ***
  • Posts: 88
so, I went today with my little  boy of 19 to his neurologist and ask , how is it to get papers that he can  move out and life independent that his 14 year old sister can come back, she look at me and ask was I serious, I can not let the boy life independent, there is not better care then mum , it  is the responsibility from the welfare to  provide  care that both children are living  at home. I know my girl  gets not the necessary care  and I do not know  how we solve the case. my two have  learning difficulty and communication problems and  something similar to autism. and  all the years I had no proper support and now  my court case is the last what we needed.

I can completely emphasise with this.  Parents left unsupported mean situations can get difficult to address, no respite etc then the system moves against to place the child somewhere else.  Without a really dedicated special school support, my child would have ended up in hospital.  They had to BAN his social worker from his school and meetings because their negativity was affecting their ability to care and teach him.  I strongly believe if many parents are supported a child would not be in residential accommodation anywhere. What happens is LA's abandon their legal duty, then allow situations to get worse then penalise parents and child after, even abusing the systems and parents via 'best interests of the LA' stances thinly-veiled as 'best interests of the child', thus adding real insult and abuse to real injury at the parent by heaping guilt on them.  In Wales we asked the assembly to remove LA authority autonomy, it was that bad, but, the AM's sided with the systems yet again because money isn't there.  No-one is considering the Autistic or their families.