DFG and adaptions.

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Fiz

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DFG and adaptions.

  • on: 16 Jan 2019 07:57AM
I had an OT assessment when I moved here in 2010 and the OT was offering me more things than I felt I needed at the time so what I asked for at the time was immediately approved and I was put on the 'substantial need' waiting list which turned out to be 18 months. Baths aren't possible so it was just a shower fitting over the bath and a grab rail. I'd been offered a wet room shower but dd needed to soak in stuff to control her eczema so needed the bath then. It's painful now stepping into the bath triggering neuropathic pain so I often can't shower and I can't stand long so I'm needing the bath removed, more wall tiling and the wet room floor created. The OT came yesterday and it felt like everything was a battle, I guess this has come with the budget cuts. She wanted me to have a bath board rather than a wet room because we have to try cheaper ways and only if these cheaper options don't work out will a DFG be granted for something dearer. I explained that while a bath board would reduce standing time, I'd still be in a lot of pain stepping into and out of the bath plus reaching for wash things, shampoo etc is painful. Despite saying this she measured the lip of the bath on the wall side which was 1 inch or 2.5cm before going. So this time I'm unsure whether I'll be granted what I need because I'm not sure if they're applying for the wet room or not.

I guess this is budget cuts changes, I was turning down offers in 2010 and now in 2019 I'm not sure I will get what I need. Oh and I asked for a second grab rail on the other side of the shower so there's one available for each hand because my balance isn't good.

She suggested a care line because I've fallen down the stairs 3 times, once breaking my big toe, once breaking my little toe on the other foot, neither time bothering with hospital because I knew I had just broken toes. The last time I tore a ligament across the top of a foot where it bent back and that time I did call an ambulance because the pain was much higher and I thought I might have broken the foot. On each occasion I managed to sort myself out so I don't see how a care line would have helped and it's an ongoing cost I don't feel I need at the moment.

So we'll see if what I know I need is asked for on this occasion and how long the wait is. The OT was okay but her mind seemed to be elsewhere and not on my needs. I forgot to ask for a perching stool for the kitchen. Washing up is painful.

JLR2

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Re: DFG and adaptions.

  • on: 16 Jan 2019 08:46AM
Fiz on the main issues you're probably right in the reluctance to provide what you need being down to budget cuts but so far as the perch stool goes that should definitely be provided without hesitation or fuss.

I would make mention to your OT that without the changes you are not unreasonably asking for the chances are that the costs involved in the future will be higher for your local social services department as without the changes you will be left in a situation whereby accidents are more likely.

Sunshine Meadows

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Re: DFG and adaptions.

  • on: 16 Jan 2019 09:30AM
>bighugs<

It does sound a similar story to mine although it does sound like you got an OT that can at least look into your application for a wet room. My timeline is similar in that we got the grant through in 2009 and the work was done in the same year. We got so much done it was amazing there was even a suggestion that once it becomes unsafe for me to use the stairs they would look into installing a lift.All that is gone now and I don't know what disabled people are supposed to do. When I asked about getting a fan heater in the bathroom new OT that came here did mention the fact I get middle rate DLA as though that should be used to pay for such things. If so what are council OTs there for, is it just to tell me what I can buy and where. Heck they could at least have a Wickes or other shop trade card so they could get things for us at a discount and pass that discount to us. pffffft

It is a pity the OTs dont give out an email address because if they did you could email and ask if they were going forward with the wet room application for you.
« Last Edit: 16 Jan 2019 09:44AM by Sunshine Meadows »

JLR2

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Re: DFG and adaptions.

  • on: 16 Jan 2019 02:40PM
''OT that came here did mention the fact I get middle rate DLA as though that should be used to pay for such things. If so what are council OTs there for''

I have had a similar experience in respect of my orthopaedic footwear, where once upon a time I was provided with my shoes free of charge at the physiotherapy dept at Raigmore hospital in Inverness I am now only provided with a catalogue to choose and buy shoes from.

Sunshine Meadows

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Re: DFG and adaptions.

  • on: 17 Jan 2019 09:31AM
Fiz,

Just a thought have you ever used a shallow bath, it is the sort of thing that motorway motels have? When we had to replace the big old original bath we got one of those shallower baths and it makes a big difference when it comes to using the bath board. I still find getting a bath its self too tiring most of the time but I can sit on the bath board with my feet and legs in the water and get washed sitting on the bath board. The reason I do that sometimes is I find a shower even more tiring and so dont do it if I have other plans for the day. I dont wash my hair and body at the same time because that can also be too tiring and luckily the lower bath is the right height for me to wash my hair kneeling with my head over the bath. The other thing we did was move the location of the bath to the other side of the bathroom so I get in left to right which is easier for me.

I realised we have very different pain profiles and think in your circumstances a shallower bath will not help but figured it worth suggesting.

>bighugs<

Fiz

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Re: DFG and adaptions.

  • on: 17 Jan 2019 06:25PM
I would think removing the bath and installing a wet floor which is very "grippy" given my tendance to fall would be a better solution and no dearer than changing the bath to a shallower one and would sort me out long term as in forever bathroom wise considering a shallower bath would mean more tiling anyway.

Slightly worried about the mention about funding for stair lifts being possibly problematic in the future because my answer to my sister saying was I wise spending my one and only inheritance, given my parents died decades ago, on the garden when it's painful managing stairs and I'd said a stair lift could be installed but maybe not if they're cutting right back. I'd crawl up the stairs through gritted teeth rather than move from my safe haven here.

Fiz

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Re: DFG and adaptions.

  • on: 17 Jan 2019 06:35PM
I think what made this latest assessment so much harder was the assessor herself. She gave no sense of feedback or show any empathy, care and understanding so I'm left with no clue as to what's happening or what's being requested. I'm annoyed with myself for not remembering the kitchen perching stool. I think the poor woman seems to be feeling detached from her work and the people she's assessing which might be her personal life, her team morale or budget restraints so I just need to not take it personally. And be patient about the outcome because it's no use worrying about something that might not be an issue. This is me talking to myself.

Thank you everyone, as always you're stars.

ally

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Re: DFG and adaptions.

  • on: 17 Jan 2019 06:39PM
I think you’ll be asked to try a bath board first.  After my accident, and, the fact I’ve had six spinal operations, an appointment with an OT was suggested before I was discharged form hospital.  She was helpful with suggestions.  I got an adjustable kitchen chair, hand held grippers, a bed lever etc.  I was also given a swivel over bath seat.  However, once on the seat, I couldn’t switch on/off the shower, pull over the shower curtain,  or, reach the shampoo etc.  My husband had to remain with me at all times. There’s no way someone was going to pay for a wet room, or, a walk in shower. They was made obvious by the OT.  We had to pay the full cost ourselves. My husband fitted an extra set of handrails for the stairs after she left. When she arrived next, he was told they would’ve done it.  Therefore, they might pay for some things, depending on the cost, and, their budget. See how things go.

Sunshine Meadows

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Re: DFG and adaptions.

  • on: 18 Jan 2019 09:51AM
Quote
I would think removing the bath and installing a wet floor which is very "grippy" given my tendance to fall would be a better solution and no dearer than changing the bath to a shallower one and would sort me out long term as in forever bathroom wise considering a shallower bath would mean more tiling anyway. 


I agree with the wet room being the best option when it comes to a Disabled facilities Grant. The council have allsorts of rules and regulations when it comes to getting work done so for example the flooring they put in for us was around £1000 and had to be fitted by a specialist. It is one of the things I dread replacing because I dont know how we will afford it, luckily it is long lasting. The thing is though it should not be about money it should be about need. 


Ally,

Your experience shows how important it is for OTs to be completely honest and then we can work with that reality. I agree with what you said about them paying for some things.