They've got me at last...

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Monic1511

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Re: They've got me at last...

  • on: 08 Jul 2019 08:22PM
RE Medical Evidence
This is the form that my work has created to allow people to request medical evidence to support their appeals.

The main points are 1 - its free but 2. You can only request this once.  We use it to try and get additional evidence when someone comes in to complete a mandatory reconsideration.  This issues we have are
the practice is allowed 28 days to produce the evidence

You have to say from what date you want said evidence - for appeals we normally only need 2 years prior to the appeal.

Practices have a habit of redacting anything prior to the date you ask for - this lead to me having an argument that we needed to see all the active problems even if they'd been diagnosed years before the date requested.

Some practices provide the information in CD format as they refuse to print anything.  This means the patient has to access a computer with a CD drive, upload the information, save it as a pdf and then either print it or email it to the advice agency.  We cant put the disc into a networked council computer as its a data risk.  I mean the CD makes a decent coaster but its useless if you cant access the information.

Its not the first time a client has tried to hand the judge at appeal the cd saying they wanted to hand in the information provided by the gp.


Have a look and see if you can amend it for your own practices and if it might be helpful but be warned - read the gp notes carefully.  a note saying Patient is going on holiday to the alps doesn't help the argument cant travel, cant socialise, has mobility problems.

Sorry when I try to attach the document the whole site hangs up so I will put the text of it below


TO:  GP Name & address
Medical records access Subject Access request.
 
 From 01/04/2019 HM Courts and Tribunal Service will no longer make direct requests for an appellant’s medical evidence.

 This letter is to request a written copy of my GP notes from____________________                                   
 up to present date, for my upcoming Tribunal. Please do not redact the details
 of active problems diagnosed prior to the above date.

Name
DOB

Address
Signature and date


GDPR changes to Subject Access Requests and fees from 25 May 2018
The General Data Protection Regulations and the Data Protection Act 2018 replaced the Data Protection Act 1998 on 25 May 2018, bringing in widespread changes to UK data protection legislation. For GPs the act brings in a number of changes, specifically the charges that were in place for undertaking Subject Access Requests.
Since 25 May 2018, in most cases, patients must be given access to their medical records as a Subject Access Request (SAR) free of charge. 
If the request is for a medical report to be created, or for interpretation of information within a medical report/record, this will fall under the Access to Medical Report Act (AMRA) - as these both require new data to be created, which is out with the scope of the GDPR and Subject Access Requests. In these cases, a fee can be charged.
A medical report/record that already exists will be accessible, for free, as a SAR. A ‘reasonable fee’ can be charged for a SAR if the request is manifestly unfounded or excessive, however, these circumstances are likely to be rare.
END OF DOCUMENT.


All that was on a word doc which is being stubborn - heres hoping this works  >x-fingers<
« Last Edit: 09 Jul 2019 08:31PM by Monic1511 »

Monic1511

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Re: They've got me at last...

  • on: 08 Jul 2019 10:16PM
Sorry if the attachment doesn’t work, I will try again tomorrow  >dove<

Jockice

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Re: They've got me at last...

  • on: 09 Jul 2019 11:40AM
No problem Monic. I do have letters from various doctors saying I live independently but also I am a wheelchair user with modifications in my flat. I'm taking them into the disability organisation I do stuff for tomorrow to see what they think. Then I'll take it from there.

Jockice

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Re: They've got me at last...

  • on: 01 Aug 2019 11:13AM
Hiya. Just to tell you it's going in the post today. I took your advice and I also had a mate who does welfare stuff for a homeless people's charity go through it with me. He reckons I should be okay. I'll let you all know hoe it goes when and as it happens. Thanks. And breathe.

SashaQ

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Re: They've got me at last...

  • on: 01 Aug 2019 11:51AM
Well done  >thumbsup<  >biggrin<  >x-fingers<

Sunshine Meadows

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Re: They've got me at last...

  • on: 01 Aug 2019 04:40PM
Well done and best wishes for smooth sailing  >thumbsup<

Jockice

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Re: They've got me at last...

  • on: 02 Aug 2019 11:58AM
Cheers. All I can really do now is wait.

Jockice

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Re: They've got me at last...

  • on: 11 Oct 2019 06:10PM
They've finally sent me a date. And it turns out that it's one when my mate (the one who does the welfare stuff) is away, so they're sending me another one. And it continues...

Monic1511

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Re: They've got me at last...

  • on: 11 Oct 2019 08:06PM
Is this a date for the assessment?

Jockice

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Re: They've got me at last...

  • on: 12 Oct 2019 10:22AM
Yeah, it was next Monday (21st) for a home visit. But my friend will be visiting his sister (who has just moved to Cornwall - only about 350 miles away. Couldn't really ask him to come back) so I've had to ask for another date. They're going to write to me. It'll probably be Christmas Day or something. You can only change it once apparently, so I'll have to do it on whatever day they send me now. I simply can't wait.

Sunshine Meadows

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Re: They've got me at last...

  • on: 13 Oct 2019 10:40AM
I just got my transfer papers too, not to worry though we are both a lot more disabled than we were so we are in for a pay rise  >biggrin<

It is weird how people say cerebral palsy is non progressive, I think Wiki needs to catch up with how life is for people like us. 

( I know the version you have is different to mine)

Jockice

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Re: They've got me at last...

  • on: 14 Oct 2019 12:56PM
I certainly hope so. My mate was amazed that I've never even applied for care. And we've known each other since the first year at secondary school, so he knows how much I've deteriorated.

Oh yeah, incidentally, the doctors don't think I have CP anymore. I don't mean that I've been cured but they think it's something else now. I've always thought there was something strange about it. CP doesn't usually spontaneously arrive when you're five and not get diagnosed until you're 17.

The closest they can get is something called Hereditary Spastic Paraplegia (HSP) which is progressive and a lot rarer than CP, and is sometimes misdiagnosed as it. It's a weird one though, as it can only be totally diagnosed by discounting every single other possibility and it doesn't usually affect your speech (although it can). My ability to speak has gone rapidly downhill in the last few years, which is of course great for someone who was a journalist. And can no longer handwrite either.

One doctor just said I appear to have a 'rogue gene' but you can't really put that down on an assessment form so for the purposes of that I have HSP.

Good luck anyway Sunshine Meadows. And everyone else on this site.

Jockice

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Re: They've got me at last...

  • on: 14 Oct 2019 01:25PM
And since sending that message, I've got my new date. A fortnight today. Super.

auntieCtheM

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Re: They've got me at last...

  • on: 14 Oct 2019 07:10PM
You are having a fun time arn't you Jockice.

Sunshine Meadows

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Re: They've got me at last...

  • on: 15 Oct 2019 04:12PM
Jockice,

It is interesting that you mentioned the age you were when symptoms arrived because I had a similar experience in that my walking difficulties became more obvious as I got older and physically. Getting boobs and bigger hips rally messed up my walking gate. I think there are many people who had CP like symptoms as children in the late 1970s  and 80s  were expected to just get on with it and here we are in our 50s no longer able to just get on with it because of the damage caused throughouit our younger years.

https://www.nhs.uk/conditions/hereditary-spastic-paraplegia/ the description does sound like my symptoms but as I have other conditions it is too difficult to work out exactly going on.

I think maybe the way to go in the assessment is to think about how  the reasons for your limitations colour you description of what you can do. If an able bodied person was to have a traumatic brain injury that put them at the level of disability you have now they would need to be taught how to manage whereas you have ways of doing things that you worked out over time. For example I wear baggy clothes a lot of the time because it is easier to get dressed than wearing things in the right size.