Author Topic: Pain  (Read 24992 times)

Prabhakari

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Pain
« on: 16 Feb 2012 03:44AM »
The Mail Online has a story of a man who hanged himself because of a rare condition which meant he suffered toothache in all his teeth.
He must have endured a kind of hell, poor chap.

I sometimes think I have a bad tooth. I go to the dentist who tells me she can find nothing wrong. It is a part of my illness.
I cannot ignore it, though as sometimes I do need a filling.
Two members of my family lost all their teeth. I have not been that unfortunate, but have had problems.

Low on painkillers yet again. I need to get in touch with the chemists, to make sure I will have more before the weekend. Bone pain being a pain just now.


I wish the poor man a good rebirth, without extreme pain. Prabhakari.
Bless 'em all, bless 'em all,
The long and the short and the tall.

Gravity

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Re: Pain
« Reply #1 on: 16 Feb 2012 08:48AM »
Yes, I read this this morning when I was unable to sleep due to pain and so on.
Ehlers-Danlos Syndrome, is what he had. There are members here with it and I've multiple friends who have it.

I'm saddened especially that I feel if he had come online, found a very good HMS/EDS forum and talked to people, they may have been able to help him find specialists who were able to help him. It appears he was left out to dry by the medical profession due to the rarity and poor understanding of EDS.

Second EDS story in the Daily Mail in as many weeks... The previous one was rather more positive.


Prabhakari

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Re: Pain
« Reply #2 on: 16 Feb 2012 10:42AM »
Deep pain like this is horrible.
I have just telephoned the chemist.
They are going to try to get my painkillers  by tomorrow afternoon.
I do hope so, as even if I ration them, I will still run out by Sunday, and rationing means pain all the time.

MY HEARTFELT SYMPATHIES TO ALL WHO SUFFER PAIN.

With metta, Prabhakari.
Bless 'em all, bless 'em all,
The long and the short and the tall.

Gravity

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Re: Pain
« Reply #3 on: 16 Feb 2012 01:49PM »
Hugs and loves for you, Prab. I hope you get your pills.

I left the medical centre this morning clutching a prescription for vast quantities of gabapentin (evidently my GP no longer has any worries I may be a suicide risk) in the hopes something can put a dent in this everlasting pain.

Hurtyback

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Re: Pain
« Reply #4 on: 16 Feb 2012 01:50PM »
Prab  >hugs< .
 
Good luck with the gaba, Gravity. It didn't suit me, but I know that it works very well for some people.

Fizzbw

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Re: Pain
« Reply #5 on: 16 Feb 2012 02:07PM »
 >bighugs< pain sucks. Gaba might be a really good thing Gravity, and the side effects often decrease with time so persevere.

I take fentanyl lollipops for my pain and oramorph, on top of tramadol and codeine. At the moment I'm having a flare up and even 8 lollies a day is not really allowing me to function, it really sucks!! Distraction techniques and drugged up sleep are my best friends right now. I do find that Reiki reduces my pain levels, though when I do it to myself it works better for indegestion or muscle pain, not nerve pain, but if someone else does it it does help, trouble is, it only works really while it's being done. Hey ho.

Big hugs to all in pain, it really does drag you down and down.

Nx

Prabhakari

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Re: Pain
« Reply #6 on: 16 Feb 2012 02:41PM »
Pain does drag us down. Well said, Fizz.

I once nearly completely severed my left leg at the knee. That pain was the most
savage I had ever experienced as a child.
How fortunate it is that time makes bad memories fade.

I am certain that we all have extreme moments of suffering, and such moments take different forms. It is a constant threat.
So far, I am able to endure.
I wish the same for you all.

With metta, Prabhakari.
Bless 'em all, bless 'em all,
The long and the short and the tall.

Gravity

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Re: Pain
« Reply #7 on: 16 Feb 2012 07:20PM »
Thanks guys. I took pregabalin before which had no effects whatsoever, a very expensive waste of time. Hopefully gabapentin will be more successful...
I told my GP I would try anything at this point.

 >bighugs<

Fizzbw, do you know someone who can do reiki in your home? It seems that relief, even temporarily, is worth having, but if it requires you to travel may not be. I hope your pain level dies down a bit so you can do something other than distraction and sleep!

Richard_D

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Re: Pain
« Reply #8 on: 16 Feb 2012 07:22PM »
Pain is bad, but the impact of it can be made worse if you are ignored, not taken seriously and not enabled to progress to the level where you can access the right kind of support to cope better.
July 2017- Autism Spectrum Condition.

sherbs

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Re: Pain
« Reply #9 on: 16 Feb 2012 08:43PM »
Pain really sucks. 

I feel i can cope with my disability, well as best as i can, i still despise being disabled, but it is the pain, the nerve and muscular-skeletal pain it is relentless.   I had a terrible bad day at work yesterday, got home and cried, all because of the pain.  Today i rested up, but  tomorrow back to work again, and it goes on and on.

My heart goes out to all those in pain,   >hugs<   I fear it will get me in the end!!

Prabhakari

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Re: Pain
« Reply #10 on: 16 Feb 2012 09:02PM »
I have given spiritual healing. So has my father.
I was helping a healing group once. They gave healing to the hospitals as well
as having a healing night each week.

I do not know if Reiki has anything different to offer,  but I do know how healing can give temporary relief. In the past I gave absent healing to people who were suffering. It was really good to see them say that their pain had gone down a minute later.

Now I am more ill, I do not know if I could do absent healing.
So I would suggest that if anyone want to try healing, to look for a healing group in their area.
I have read about Reiki, and it does seem to be just a different way of presenting the same ability; that of healing.

Healing does not claim to cure, although there have been cases where it has been recorded. Matthew Manning took part in clinical tests years ago. He got more publicity because he was more in the public eye.

In my experience, having healing can make one feel worse for a short while. Then there is a period where one feels much better. It will be different for others.

Many of us could give healing. We will not all be powerful channels for healing energy, but we can all have a go.

With metta, Prabhakari.
Bless 'em all, bless 'em all,
The long and the short and the tall.

auntieCtheM

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Re: Pain
« Reply #11 on: 16 Feb 2012 09:19PM »
I agree.  24/7 pain is such a drag.  The more pain-killers the more side effects - hang on a minute whilst I have a quick doze!! 

I hate not having enough time during the day to do anything other than survive. 

I want to get something positive done each day as that always makes me feel a lot better; being restricted by pain sucks.

Fizzbw

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Re: Pain
« Reply #12 on: 17 Feb 2012 09:57AM »
Yes healing and Reiki are the same thing, just that Reiki uses external energy not the internal energy of the healer.

Gravity, a decent Reiki practitioner should be able to visit your home. You might have to ring around but I certainly have and would have gone to people's houses (safely) if asked. The other benefits of healing is that bit tends to calm and de stress as well. If you need some help finding so numbers pm me and I can look for you on line if you like?

I'm lucky that I'm a Reiki teacher, though while I am so ill I don't teach. But I'd already taught my mum how to do Reiki and my sister though she no longer lives near, so I can get Reiki whenever I need it. Also taught my best friend as well. I find Reiki has made me stronger, I feel more empowered as I can help myself and others so I get a bit of self esteem back as well.

Big hugs

Fxxx

Prabhakari

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Re: Pain
« Reply #13 on: 17 Feb 2012 10:27AM »
A spiritual healer never uses their own energy. They are channels for healing energy.
This was constantly emphasised, and I do know the difference.
One asks for healing.
Healing energy is felt by the patient as a feeling of cold or heat.
It is unmistakable.
If Reiki is the same, then it is just another name for the same thing.

Healers learn to channel so that they do not burn out.
I knew about this, long before the name Reiki was heard in the West.
If it is the same, then healing by someone who has the ability to heal will help, no matter what it is known by.
I have known many healers.
I have only known three really powerful healers.
There were many who thought they were healers but nothing came out of them.

When I had healing, it always knocked me for six. I needed to lie down until I recovered, if I had healing from the ones with real power. If one of the others gave me healing, I got nothing from it.


If anyone would like to experience energy, find someone who will help. It is very simple to do.

Each of you raise a hand, palm facing outward towards the other.
Each bring their hand towards the other.
When the palm is about an inch or half an inch from the other's, but not touching, a cool breeze will be experienced. This is the energy that can be seen as the aura.

With metta to Fizzbw  >rainbow< Prabhakari.
Bless 'em all, bless 'em all,
The long and the short and the tall.

NeuralgicNeurotic

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Re: Pain
« Reply #14 on: 17 Feb 2012 11:26AM »
"Pain is bad, but the impact of it can be made worse if you are ignored, not taken seriously and not enabled to progress to the level where you can access the right kind of support to cope better."


It happens all too often. It took 6 years for me to get a diagnosis and any treatment. People with a history of serious mental health conditions tend to be dismissed if they present with inexplicable pain - particularly if they're female and the trouble begins in their, ahem, "lady equipment". By the time anyone worked out what the problem was the pain had spread throughout my pelvis, abdomen and legs. I couldn't sit, could barely walk and was experiencing urinary incontinence. I don't blame the medical profession for failing to make a swift diagnosis - PN/PNE is a very obscure condition, I was just annoyed at having been dismissed so often owing to my MH condition.

Gravity - best of luck with the Gabapentin. I took it for a while, but needed to stop as it was exacerbating some of my nastier MH symptoms. It didn't offer much in the way of pain relief for me either. Pregabalin is working out quite well at the moment (the pain remains, but at a more bearable level), but needs to be topped up with OxyNorm when things flare really badly. Here's hoping that you too find some relief!

 >bighugs< to everyone living with chronic pain.