Weather

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NeuralgicNeurotic

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Re: Weather

  • on: 27 Jul 2014 06:28PM
For me as temperature rises more Acetylcholinesterase the enzyme that breaks down Acetylcholine is produced than Mestinon can control so my symptoms are made far  worse.

IE  AChE = spoons, an increase in  Acetylcholinesterase = less AChE = less spoons and also MG gets worse.  :-(

Conversly the cooler it is the better I feel.  >biggrin<

I hope the temperatures are now more 'spoon friendly' where you are, Dic.  >hugs<

Dic Penderyn

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Re: Weather

  • on: 27 Jul 2014 08:04PM
Thank goodness yes it's a quite pleasant 16oC at the moment much better.
Be careful in what you wish for, God has a sense of humour

ditchdwellers

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Re: Weather

  • on: 27 Jul 2014 08:38PM
I'm not sure what the temperature is today,  it's felt very sticky.
Dic, I think many people with autoimmune issues find extreme temperatures hard to manage. It's just one of the annoying things that have to be dealt with  >hugs<

Dic Penderyn

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Re: Weather

  • on: 27 Jul 2014 10:27PM
Yes I know it's just until recently I didn't know the actual mechanism that was the cause in my case. But generally knew that people had various problems with highish temperatures. And in the last  nine years or so had never really tried to find out why.
Be careful in what you wish for, God has a sense of humour

ditchdwellers

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Re: Weather

  • on: 27 Jul 2014 11:40PM
It's always interesting to find out more about our own conditions.  Hopefully greater insight and understanding will lead to more effective treatments.  I know that the more I learn about EDS the more 'lightbulb' moments I have and another piece of the jigsaw slots into place.

It's feeling cooler now,  although I'm still feeling so unbelievably uncomfortable.  I think it's a matter of spending the night on the sofa again so that I can fidget and squirm as much as I need to without disturbing my husband.

Dic Penderyn

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Re: Weather

  • on: 30 Jul 2014 10:40AM
What a  Beautiful day basking in a glorious 17oC best I've felt in several days.  >cool<
Be careful in what you wish for, God has a sense of humour

KizzyKazaer

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Re: Weather

  • on: 30 Jul 2014 12:15PM
Hmmm, not quite as 'chilly' as that for us yet, but I can live with the low 20s;  glad you're perking up, Dic, I have a similar problem with health matters affecting how my body deals with heat.  One of my medication side-effects is impairment in ability to control body temperature, which obviously becomes worse with either extreme.  At least we had a mild winter!

Ditchdwellers, are you having better nights yet?

huhn

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Re: Weather

  • on: 30 Jul 2014 06:54PM
38 today,only problem it was humid,  not  good for my bones

Dic Penderyn

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Re: Weather

  • on: 30 Jul 2014 07:03PM
Unfortunately it got hotter during the day  :-(
Be careful in what you wish for, God has a sense of humour

ditchdwellers

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Re: Weather

  • on: 30 Jul 2014 07:41PM

Ditchdwellers, are you having better nights yet?

Thanks, yes, a bit better.  The storms have eased off for a while, which is a huge relief. 

It's felt a bit cooler today with a breeze, although I'm not sure what the temperature was.

Huhn, those temperatures and humidity sound ghastly.  I hope you are coping OK.

auntieCtheM

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Re: Weather

  • on: 30 Jul 2014 10:49PM
I left my bedroom window open again last night and the only way I got any sleep was with a sleeping pill and putting on the electric under-blanket.  Very odd.

Yvette

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Re: Weather

  • on: 31 Jul 2014 12:20PM
I used to love the heat but can't take it anymore.

I have to cover up from head to toe whenever I'm out too, as I'm on both Doxycycline and Levofloxacin permanently (because of the infections in my bones) and they each cause painful photosensitivity (the Doxycycline is the worse of two).   I burn badly within a just couple of minutes and come out in a painful rash.  Once I get the rash, even when covered up, the heat makes the rash agony.

Last summer I asked to come off the Doxycycline - which is what caused the abscess in my leg to return this year (as it kept the infection supressed), so I now have to cover up and bear it.  Even Factor 50 doesn't stop it.

http://emedicine.medscape.com/article/1049648-overview

NeuralgicNeurotic

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Re: Weather

  • on: 31 Jul 2014 03:57PM
Yvette  >hugs<

Dic and dd, I'm glad that things are a little more comfortable for you.


It's humid here today, but thunder is forecast for later on, which will hopefully remedy the situation.  >x-fingers<

Dic Penderyn

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Re: Weather

  • on: 31 Jul 2014 08:02PM
Absolutely lashing it down with rain right now.
Be careful in what you wish for, God has a sense of humour

ditchdwellers

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Re: Weather

  • on: 31 Jul 2014 10:13PM
No rain here,  just hot and humid still.